Update – 18 Месяцаў Назад… My Journey with Cauda Equina Syndrome Began

18 Месяцаў таму ...

З февр 11, 2013, Я ніколі не чуў пра Конскага коней сіндром (CES). That changed the next day. This very day, 18 месяцаў таму, I awoke with no feeling below my waist. Something very wrong was going on with my body! Я не ведаў пра гэта, то, але я пачаў падарожжа пад назвай конскага хваста Сіндром.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, асабліва улічваючы, што ён прыняў 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Многія нейрахірургі і іншыя лекары кажуць, што рэгенерацыя нерва мае месца толькі для 12 месяцаў, у той час як іншыя кажуць, 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 месяцаў. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Для мяне, месяцы, так як мой 1 гадовы юбілей быў складаным з невялікімі рэгрэсіі - але, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, якія, як правіла, вакол 1 гадзіну 10 хвілін. The last 10 - 15 хвілін з прывада я б атрымаць "электрашокавыя" пачуццё гэтак знаёмыя з іншых частак цела раней у маім выздараўленні.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Fly самалёт, у гэтым выпадку, drive the car – make sure you don’t run into someone or something), Navigate (Don’t get lost and for the car it means make sure you don’t miss a turn while distracted), Communicate (In the air, we’d get help from controllers on the ground, in the car, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ inch band around my foot, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 ногі, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, slowly but surely, I continue to strengthen and improve.

I still cannot stand for more than 20 - 30 секунды, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, with 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depression, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and працаваць на яго!