Actualització – 18 Fa mesos… El meu viatge amb síndrome de cauda equina Began

18 Mesos fa ...

Al febrer 11, 2013, Jo mai havia sentit parlar d' Cauda Equina Syndrome (CES). That changed the next day. This very day, 18 Fa mesos, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, però començava el viatge anomenada síndrome de cauda equina.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, especialment tenint en compte que va prendre 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Molts neurocirurgians i altres metges diuen que la regeneració nerviosa només es produeix per 12 mesos, mentre que altres diuen 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 mesos. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Per a mi, els mesos transcorreguts des del meu 1 aniversari han estat un desafiament amb algun retrocés menor - però, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, que és en general al voltant 1 hora 10 acta. The last 10 - 15 acta de la unitat em dóna la sensació de "electro-xoc" pel que familiars d'altres parts del cos abans en la meva recuperació.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Volar l'avió, en aquest cas, conduir el cotxe - assegureu-vos que no es quedi en algú o alguna cosa), Navegar (No perdre i per al cotxe que significa que assegura't que no es perdi una vegada mentre està distret), Comunicar (En l'aire, ens anàvem a l'ajuda dels controladors en terra, al cotxe, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ banda polzades al voltant del meu peu, començant al voltant de ½ polzada per sobre de les plantes dels peus (els meus dits dels peus exceptuats ja que han tingut la sensació durant algun temps.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 peus, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, lenta però segura, Segueixo enfortir i millorar.

I still cannot stand for more than 20 - 30 segon, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, amb 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depressió, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and treballar per ella!