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Actualització – 18 Fa mesos… El meu viatge amb síndrome de cauda equina Began

18 Mesos fa ...

Al febrer 11, 2013, Jo mai havia sentit parlar d' Cauda Equina Syndrome (CES). That changed the next day. This very day, 18 Fa mesos, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, però començava el viatge anomenada síndrome de cauda equina.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, especialment tenint en compte que va prendre 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Molts neurocirurgians i altres metges diuen que la regeneració nerviosa només es produeix per 12 mesos, mentre que altres diuen 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 mesos. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Per a mi, els mesos transcorreguts des del meu 1 aniversari han estat un desafiament amb algun retrocés menor - però, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, que és en general al voltant 1 hora 10 acta. The last 10 - 15 acta de la unitat em dóna la sensació de "electro-xoc" pel que familiars d'altres parts del cos abans en la meva recuperació.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Volar l'avió, en aquest cas, conduir el cotxe - assegureu-vos que no es quedi en algú o alguna cosa), Navegar (No perdre i per al cotxe que significa que assegura't que no es perdi una vegada mentre està distret), Comunicar (En l'aire, ens anàvem a l'ajuda dels controladors en terra, al cotxe, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ banda polzades al voltant del meu peu, començant al voltant de ½ polzada per sobre de les plantes dels peus (els meus dits dels peus exceptuats ja que han tingut la sensació durant algun temps.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 peus, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, lenta però segura, Segueixo enfortir i millorar.

I still cannot stand for more than 20 - 30 segon, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, amb 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depressió, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and treballar per ella!


Una dutxa real mentre Viure amb síndrome de cauda equina

Cauda Equina Syndrome Finally Singing in the ShowerI've reached another milestone! Aquesta setmana vaig tenir l'oportunitat de prendre una dutxa completa, mentre que de peu!

That doesn't sound like a big deal to some, però per a nosaltres de lidiar amb la síndrome de cauda equina de peu durant un període de temps no és una opció. Una de les coses CES presa de sou força a les cames. Even if feeling returns, força no pot. So to stand in the shower for the few minutes it takes to shower, i afegint l'esforç físic de la dutxa, és una fita molt important per a mi!

One letdown though is that it did take so much strength that I can't do it every day, or even most days... encara. But the future is before us and we shall see what it brings, però per ara no puc abandonar el seient de la dutxa. I am currently passing Month 13 amb el CES, so I've really got to get busy on my Month 12 i Mes 13 informes! Hope to have them up this weekend.

Cauda Equina Syndrome – Alleujament imprevistos

I really didn't want to believe it...

Però avui és certa.

Setmana passada, Jo havia incrementat els problemes amb l'equilibri. Now that really helps when I've also got a torn peroneal tendó al turmell dret! De totes maneres, Dijous a la nit el meu Cauda Equina Syndrome pujat l'aposta - Em augment del dolor en el meu peu dret / turmell (dolor en els nervis, rampes musculars, dolor imaginari - tot això).

ps21v14Així que imaginin la meva sorpresa quan la nit de dissabte, just abans de l'hora d'anar a dormir, el saldo es retorna juntament amb una disminució en gran mesura el dolor!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Diumenge Bé demà, el dolor era encara molt baixa. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, però encara esperava.

En despertar aquest matí, els peus se sentien com si pogués executar-hi de nou si no fos pel tendó. Of course my legs wouldn't let me run anyway, però ara havia estat més 36 hores - el temps suficient per declarar que el meu mal de peus ha canviat radicalment per a millor. All of this just after the 1 marca de l'any. In fact, com puc publicar aquest, marca el matí 1 any aniversari de la meva cirurgia de descompressió.


I've also regain some feeling in the back (tendó de la sofraja) zona de la cama esquerra - that's new feeling too! So progress continues. God has a wonderful sense of timing - just quan creus que necessita l'estímul en una àrea, Ell li dóna l'estímul en un altre. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Gràcies, Déu!

Continuing the walk...




CES | Mes 11 amb síndrome de cauda equina

Mes 11 té volat per (com té Mes 12 fins aquí, per tant aquest post tardà).


Mes 10 acabar amb algunes de les coses dolentes que succeeixen en la meva vida personal. Aquests van continuar durant la major part del mes 11 també. I was dealing with the feelings caused by my família member and also a friend. Dels dos, el trencat amistat hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, però curt, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, però ha passat tant de temps des que algú em va sostenir que prop del meu cor s'ha fet tal cosa.


.unknowingNo vull que l'amistat trencada, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventualment, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; No obstant això, no seria el més a prop que abans ... No estic en un punt en la meva vida on jo estic disposat a confiar prou per permetre que els mentiders en el meu cercle d'amics íntims. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.




Nadal came and went during Month 11. We had a nice, quiet time - però la Older obtinc, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Acció de gràcies & Nadal) sempre van ser grans espectacles on tothom va posar una màscara i va viure una mentida que tots estàvem normals, caring family. The rest of the year told a different, sad story. I survived, però no indemnes, by getting out. 2014 marca la meva 21er any centenars de viure (en algun moment milers) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, o recollir, Puc comptar amb els dits d'una mà les vegades que la meva família m'ha visitat en els 21 years. Jo, però, els han visitat almenys una dotzena de vegades.

En els meus CES ...

Mentre anava caminant com Frankenstein i no pugui sentir els meus turmells, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Sabia alguna cosa més que el dolor dels nervis de Cauda Equina Syndrome was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, però és un any nou, with a new insurance deductible. And of course I’m on a high deductible plan (no per elecció - és totes les meves ofertes patronals).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “descàrrega elèctrica"Escriu sentiments, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B segueix sent un problema que necessita una gran quantitat de la gestió (aquesta és la Bufeta & Intestí, no Llit & Esmorzar).

M'ha encoratjat, com el Mes 11 tancat, pel grup petit Estudi de la Bíblia we’re doing in our home. Between that and studying for my CMA examen al febrer, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Tinc un parell d'altres projectes en la meva llista llista, així que seguiré per mantenir-se ocupat.

¿La síndrome de la meva cua de cavall afecta tot això? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Sí, Tinc dies dolents, tant física com emocionalment - esperem que no les dues a la vegada! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, em nodreix, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, però el que és una aventura que estic en!