Update – 18 Pipila ka bulan ang Ago… Ang akong Journey uban sa Cauda Equina Syndrome Nagsugod

18 Pipila ka bulan ang Ago ...

Sa Feb 11, 2013, Ako wala gayud nakadungog sa Cauda equine syndrome (CES). That changed the next day. This very day, 18 ka bulan ang milabay, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, apan ako nagsugod sa panaw nga gitawag Cauda Equina Syndrome.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, ilabi na sa gihatag nga kini gikuha 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Daghang mga neurosurgeons ug uban pang mga mga doktor nag-ingon nga nerve pagkatawo pag-usab lamang mahitabo alang sa 12 mga bulan, samtang ang uban nag-ingon 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 mga bulan. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Alang kanako, ang mga bulan sukad sa akong 1 tuig nga anibersaryo nga mahagiton uban sa pipila ka menor de edad nga pagbalik - apan, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, nga mao ang kasagaran sa palibot 1 oras nga 10 minutos. The last 10 - 15 minutos sa drive nga ako makakuha sa "electro-shock" pagbati nga hilabihan pamilyar nga gikan sa ubang bahin sa lawas sa sayo pa sa akong pagkaayo.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Molupad ang eroplano, sa niini nga kaso, pagpapahawa sa mga sakyanan - sa pagsiguro nga kamo wala modalagan ngadto sa usa ka tawo o sa usa ka butang), Navigate (Ayaw og nawala ug alang sa mga sakyanan kini nagpasabot sa pagsiguro nga kamo dili mingawon sa usa ka turn samtang ang nabalda), Pakigkomunikar (Sa hangin, kita pud og tabang gikan sa mga controller sa ibabaw sa yuta, sa sakyanan, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ pulgada band sa akong tiil, sugod sa mga ½ pulgada sa ibabaw sa mga bottoms sa mga tiil (ang akong mga tudlo sa tiil ilakip ingon nga sila may mibati alang sa uban nga panahon.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 mga tiil, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, hinay-hinay apan sa pagkatinuod, Ako magpadayon sa paglig-on ug pagpalambo sa.

I still cannot stand for more than 20 - 30 seconds, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (walay pun gitumong.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, uban sa 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depresyon, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and pagtrabaho alang niini!