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Update – 18 Months AgoMy Journey with Cauda Equina Syndrome Began

18 Months Ago…

On Feb 11, 2013, I had never heard of Cauda syndrom ceffylau (CES). That changed the next day. This very day, 18 months ago, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, but I was beginning the journey called Cauda Equina Syndrome.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, especially given that it took 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Many neurosurgeons and other physicians say that nerve regeneration only occurs for 12 months, while others say 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 months. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

I mi, the months since my 1 year anniversary have been challenging with some minor regression – but, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, which is usually around 1 awr 10 cofnodion. The last 10 - 15 minutes of the drive I would get the “electro-shock” feeling so familiar from other body parts earlier in my recovery.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Fly the plane, in this case, drive the car – make sure you don’t run into someone or something), Navigate (Don’t get lost and for the car it means make sure you don’t miss a turn while distracted), Communicate (In the air, we’d get help from controllers on the ground, in the car, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ inch band around my foot, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 traed, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, slowly but surely, I continue to strengthen and improve.

I still cannot stand for more than 20 - 30 eiliad, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, with 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depression, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and work for it!

 

Cauda syndrom ceffylau – Rhyddhad annisgwyl

I really didn't want to believe it...

Ond heddiw ei fod ar gyfer rhai.

Yr wythnos diwethaf, Yr wyf wedi cynyddu problemau gyda fy chydbwysedd. Now that really helps when I've also got a torn peroneal tendon ar y ffêr dde! Beth bynnag, Nos Iau fy Cauda syndrom ceffylau upped y cyfnod cyn - Yr wyf yn got mwy o boen yn fy nhroed / ffêr dde (poen nerfau, cramp yn y cyhyrau, poen dychmygol - cyfan ohono).

ps21v14Felly dychmygwch fy syndod pan yn hwyr ar ddydd Sadwrn, yn union cyn mynd i'r gwely, y cydbwysedd dychwelyd ynghyd â gostwng yn fawr phoen!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Dydd Sul y bore yn dda, y boen yn dal yn isel iawn. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, ond yn dal yr wyf yn aros.

Ar deffro y bore yma, yn teimlo fy nhraed fy mod gallai rhedeg arnynt eto os nid ar gyfer y tendon. Of course my legs wouldn't let me run anyway, ond mae bellach wedi bod yn rhy 36 oriau - ddigon hir i ddatgan bod fy poen droed wedi newid yn ddramatig er gwell. All of this just after the 1 marc y flwyddyn. In fact, fel yr wyf yn bostio hwn, yfory yn nodi 1 pen-blwydd blwyddyn fy llawdriniaeth datgywasgu.

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I've also regain some feeling in the back (hamstring) ardal fy nghoes chwith - that's new feeling too! So progress continues. God has a wonderful sense of timing - dim ond pan fyddwch yn meddwl eich bod angen anogaeth mewn un ardal, Mae'n rhoi anogaeth i chi mewn un arall. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Diolch yn fawr, Arglwydd!

Continuing the walk...

D.V.

David

 

CES | Mis 11 gyda Syndrom Cauda equina

Mis 11 Mae gan hedfan (fel y mae Mis 12 hyd yn hyn, felly y swydd hon yn hwyr).

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Mis 10 a ddaeth i ben gyda rhai pethau drwg yn digwydd yn fy mywyd personol. Mae'r rhain yn parhau trwy'r rhan fwyaf o Mis 11 yn ogystal. I was dealing with the feelings caused by my teulu member and also a friend. O'r ddau, y torri cyfeillgarwch hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, ond byr, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, ond mae wedi bod mor hir ers i rhywun rwy'n dal bod yn agos yn fy nghalon wedi gwneud y fath beth.

 

.unknowingNid wyf am y cyfeillgarwch torri, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; Fodd bynnag, ni fyddai'n mor agos ag o'r blaen ... Dydw i ddim ar bwynt yn fy mywyd lle yr wyf yn barod i ymddiried yn ddigon celwyddog i'w galluogi i mewn i fy cylch o ffrindiau agos. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

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Nadolig came and went during Month 11. We had a nice, quiet time - ond older Rwy'n cael, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Diolchgarwch & Nadolig) bob amser yn dangos fawr lle mae pawb yn rhoi ar mwgwd ac yn byw allan yn gorwedd ein bod i gyd yn normal, caring family. The rest of the year told a different, sad story. I survived, ond nid yn ddianaf, by getting out. 2014 yn nodi fy 21st blwyddyn o gannoedd byw (rywbryd miloedd) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, neu godi ei hyd, Gallaf gyfrif ar y bysedd traed un llaw faint o weithiau fy nheulu wedi ymweld â mi yn y rhai 21 years. I, Fodd bynnag,, wedi ymweld â nhw o leiaf ddwsin o weithiau.

Ymlaen at fy CES ...

Er fy mod yn cerdded fel Frankenstein ac yn methu i deimlo fy fferau, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Roeddwn i'n gwybod rhywbeth ar wahân i'r boen nerf Cauda syndrom ceffylau was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, ond mae'n flwyddyn newydd, with a new insurance deductible. And of course I’m on a high deductible plan (nid o ddewis - mae'n fy holl gynigion cyflogwr).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “sioc drydanol"Deipio teimladau, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B yn dal i fod yn fater sy'n cymryd llawer o reoli (dyna bledren & Coluddyn, Ni Gwely & Brecwast).

Yr wyf wedi cael eu hannog, fel Mis 11 ar gau, gan y grŵp bach Astudio'r Beibl we’re doing in our home. Between that and studying for my CMA arholiad ym mis Chwefror, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Mae gen i un neu ddau o brosiectau eraill ar fy rhestr yn barod, felly byddaf yn parhau i aros yn brysur.

A yw fy Syndrom Cauda equina yn effeithio ar hyn i gyd? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, Yr wyf yn cael diwrnodau gwael, yn gorfforol ac yn emosiynol - gobeithio nid y ddau ar yr un pryd! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, meithrin i mi, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, ond yr hyn antur fy mod ar!

Syndrom Cauda equina yn achosi mwy o ddifrod

Sometimes it just doesn't seem to end.moving-forward-quotes253

Fel yr wyf wedi cael aildyfiant nerfau ar ôl y difrod a achosir gan fy Syndrom Cauda equina, I was able to feel a pain in my right ankle that wasn't like the pain in my other ankle nor the other side of my right one. Fy mod wedi ei wirio cyn y Nadolig. Dr. Dywedodd ei fod yn credu ei fod yn tendon rhwygo & archebu prawf dargludiad nerf (i benderfynu ar y swm y difrod nerf dal yn bresennol) ac MRI ar y ffêr dde. Profion yn cael eu wneud yn iawn ar ôl y Nadolig.

Dychwelais ddoe at y Doctor i gael y canlyniadau. Peidiwch byth â difrodi - dal i fod yn llawer; tendon - rhwygo, a rhwygo i'r fath raddau fel y bydd yr unig atgyweiria i fod yn llawdriniaeth. Wel, rydym newydd ddechrau blwyddyn newydd fel y byddai llawdriniaeth allan o draul poced. Ddim yn broblem os oes rhywbeth yn y boced. Ar ôl 4 meddygfeydd a'r llynedd adsefydlu rhwng Kim a fi, y pocedi yn foel. Felly, mae'n rhaid i ni ymddiried yn Nuw i ddarparu ar gyfer hyn. Nid oes darpariaeth = dim llawdriniaeth.

blessings-healing-mercies-lauras-story-song-lyrics-the-positive-pear1So I'm wearing a brace and have order to take it easy. Dr. dangos i mi y symudiadau wyf i beidio â chaniatáu fy nhroed i wneud, ynghyd â rhai cyfyngiadau gweithgaredd (rhan fwyaf ohonynt na allaf ei wneud beth bynnag oherwydd y Syndrom Cauda equina). Dywedodd os yw'n mynd yn rhy boenus neu os byddaf yn cael diwrnodau drwg na da, yna bydd yn amser i weithredu.

Yna mae adferiad - nad ydynt yn bwysau gan gadw fwriwyd dros 3 wythnos, cerdded a fwriwyd dros 3 mwy o wythnosau, iachus lesewch i eto 3 mwy o wythnos therapi corfforol, yna. Ar hyn o bryd yn unig yw nad ydynt yn y cardiau.

Sut y mae hyn yn ymwneud â fy Syndrom Cauda equina? The inflammation of my superficial peroneal nerve restricted how far upwards I could bend my right foot, felly wrth gymryd cam ymlaen gyda fy nhroed chwith, y cyfyngiad hwnnw cadw fy ffêr rhag plygu ymlaen fel y dylai. Once it hit that point, byddai'n "gofrestr" i'r tu allan (hawl) ochr y ffêr. This caused a lot of motion in bad ways on the tendon, yn y pen draw yn achosi rhwyg.

Felly, rydym yn mynd ymlaen. So far this has affected the speed and length of my walking. We'll see what else it affects. But in this, ac ym mhob peth, my wife and I trust God's plan for us. And we praise Him and continue to walk, er yn arafach, gydag ef ar y daith hon.