Walking on Rebar og andre underlige ting, du føler med CES

Because nerves are the highways of our physical sensations, we can feel different types of pain, pleasure, tickling, being wet, hot, cold, sensations that aren't there, and several other sensations.

With Cauda Equina Syndrome, I think it falls more into just a few main types, with a lot of sub-types:

  • Normal feeling
  • Numb / no feeling - touch me, pinch me, or stick me with a pin - I won't know it
  • Tingly (Pins and needles) - Like your hand or foot went to sleep and is starting to wake up
    • Subtype - Not Painful - this just produces a strange feeling like a low level electric shock, not painful just strange
    • Subtype - Painful - this feels like anything from being stung by wasps to sticking your finger in an electrical outlet to putting your body part in a tight vise
    • Sub-subtypes:
      • Sub-subtype - Surface - this feeling only occurs at the surface, normal feeling occurs at muscle level
      • Sub-subtype - Deep - this goes right on through to your muscles
  • Nerve - This pain can take several forms:
    • Subtype - Elektrisk stød - usually severe, sometimes less so - feels like what you would imagine 10,000 volts going through you would feel like
    • Subtype - Burning - yep, feels like the nerve is on fire
    • Subtype - Creepy Crawly - feels like "things" are crawling on you
    • Subtype - Stretched Out - feels like your nerve has been stretched and can't go any further (e.g. nerve running from hip to big toe - as you take a step with your other foot and your ankle bends, you get the distinct feeling that your toe will not bend any further to allow a bigger step - this is usually painful, sometimes not
    • Subtype - Phantom - any of the above that really isn't a physical cause for, but your irritated nerve thinks it is happening so you feel it anyway 🙁

With CES you can mix and match those all across your lower body and extremities. For example, I have a 2 inch wide strip across the front of my right thigh, just above my knee, which has normal feeling. The whole front of my left thigh has normal feeling...

I have very little area which has normal feeling, most is Tingly, Non Painful. My left foot is definitely Tingly Painful and the right foot is TINGLY PAINFUL!!!! Just ask my wife, she'll tell you. The worst thing about the right foot, though, is walking on it. No matter how expensive the cushion insert is it still feels as though I'm walking on rebar. You know, those iron poles with big raised spots on them that construction workers put into concrete to help it be much stronger? Ja, those rebars. Next time you're at a home improvement or hardware store take a look at one. Then imagine having that in the heel of your shoe all day and night. Welcome to a tiny part of CES.

I've not seen any sensory improvement since sometime around mid-April of this year. By that I mean that the areas of my lower body which had no feeling, or abnormal feeling, are still the same. I noticed last week that a small strip down the middle of my right calf has gone from surface tingly NP to no feeling. At the same time I discovered that my right big toe now refuses to be lifted. This is definitely regression.

I don't know what is going on, but I know Who is in control of it. Without seeing God's hand in all of this, it would become easy to grow bitter and changing into a grump old man. But I'm not ready to make life miserable for everyone around me... at least not yet 😉

CES | Måneder 5 & 6

Min 5 måned jubilæum bekæmpe cauda equina syndrom er kommet og gået med en masse travlhed. Så meget, at jeg er mindre end en uge fra slutningen af ​​Månedens 6.

disse 3

Den tilsyneladende evig parade af læge aftaler er nu blevet en sive. Men livet har været meget travlt - we're preparing to move back to our unsold house in Lancaster, Åh, og der er meget at gøre i den forbindelse.

I've settled into a routine with my recovery from CES, med ingen forbedring i mine symptomer undtagen for mere styrke i benene. Det har givet mig mulighed for at øge de afstande, jeg kan dække bruge min stok og gå uden hjælp. En morgen, to uger siden, Jeg gik uden hjælp i ca 400 fødder. Jeg gjorde det, men det var det for dagen - Jeg måtte bruge min rollator rollator efter at. Den afvejning indsats virkelig træt mig.

Min rutine begynder med stigende i morgen 1 time og 45 minutter før jeg forlader for arbejde. Jeg går fodre vores kat og sidde med hende, mens hun spiser, hvorefter jeg gå ændre min ble. Næste op er en tur i køkkenet for at lave min morgenmad (nogle dage Kim rejser sig og tager sig af dette - det afhænger af, hvordan hun føler). Jeg får min bagel og flødeost, mælk, og en Coke Zero. Jeg satte bagel i brødrister ovnen og gå videre til spisebordet, hvor min glucometer og mundtlige meds venter.

Efter at have taget mit blodsukker læsning og Downing mine meds, Jeg vender tilbage til køkkenet for at få bagel ud af brødrister ovnen og sprede flødeost. Jeg begynder at spise som jeg sætte tingene tilbage i køleskabet og vende tilbage til bordet for at afslutte spise. Efter at have spist, Jeg derefter tage 2 skeer af fiber i et glas vand. Jeg derefter blandes en dosis MiraLAX sammen med Coke Zero i glasset og ned det.

Hvorfor Coke Zero?

Når jeg blander og drikke fiberen, noget af det klæber til glasset og skeen jeg brugte til omrøring. Resten klæber til glasset som hvis de blandes med superlim! 2 eller 3 doses of fiber and it's time for a new glass and spoon. Men, Coke produkter er meget ætsende og rengøre glasset særdeles godt bare ved at hælde det i glasset! Coke's "rengøring" kompetencer er blevet bevist af ingen andre end den MythBusters.

Nå efter alt dette, Jeg derefter tage en dosis af hver af mine 2 insuliner og hovedet til badeværelset for at barbere og brusebad. Når afsluttet, er der, Jeg flytter til soveværelset, hvor jeg strække mine haser og gøre mit fod flexor øvelser. Derefter kommer de tilbage strækninger, Piriformis strækninger, og 2 forskellige hip bortføreren øvelser. Hvert par dage Jeg kan balancere øvelser efter at.

Jeg så får klædt og orlov til arbejde. Yep, grund til at være stiv og ikke har taget smertestillende medicin for over 8 timer, mens sovende, denne proces tager mig 1+45, mens før min skade, Jeg kunne være ude af døren 30 minutter efter at vågne. Hele dagen, I don't sit for too long before getting up and walking around (med sukkerrør) nogle få minutter. Jeg bruger sukkerrør på grund af balance. Jo mindre jeg er nødt til at hjælpe mig balance, jo mere energi er brugt i gå. Under alle omstændigheder, stående er stadig begrænset til en max 3 minutter, så ofte jeg nødt til at få folk på arbejde til at gå, mens vi taler. Otherwise I'd just have to walk away from them. Samme ting i kirken.

Time to Adapt - ClockEfter at komme hjem, aktivitet varierer mellem at tilbringe tid sammen med min kone, e-mail, flytter prep, TV, lege med vores kat, og mine blogs. Der er også flere øvelser at gøre. Den medicinske litteratur siger, at de fleste af de opsving fra CES sker i første 6 måneder efter operationen. I'll be there at that point in 3 weeks and I've really had no increase in sensation/feeling since around the 2 måned mark. Alt er temmelig stabil. So maybe this is all I'll get back and will forever remain unable to feel normally in most of my body below my waist. Ingen følelse overhovedet i noget af det, kun smertefulde fornemmelser i det meste af det. Sidste nat, mens Kim lagde lotion på mine ben, she gently gripped my right foot to move my leg's position. Jeg rykkede det ud af hånden på hende så hurtigt, som jeg kunne - det følte hun havde taget en klemme og placeret det meget stramt på min fod. Of course she hadn't, men det sikker følte måde!

Så dette er den rutinemæssige nu. Hvordan dette passer ind i næste ministerium etape Gud har i tankerne for mig, ved jeg ikke. Uanset hvad det er, it must be important because of this training process I'm being put through. Gud gør et stort arbejde i mig, støbning mig ind i et bedre menneske og blive mere Kristus-lignende hver dag. Jeg er taknemmelig for de ændringer i mine holdninger og livssyn, som han har påvirket gennem denne lidelse. Men jeg ønsker selvfølgelig var der en mindre smertefuld måde at komme igennem mit tykke kranium.

Tyrkiet skyde opfølgning…

While I do take things literally, I don't think I'm quite as literal as Louie in the following story:

Louie and his wife are listening to the radio when they hear the weather report: "A snow emergency has been declared. You must park your cars on the odd-numbered side of the street." So Louie gets up and moves his car.

Two days later - same thing. "A snow emergency Continue reading Tyrkiet skyde opfølgning…