CES | Måned 8 med cauda equina syndrom

ces awarenss wristbandMin 8th måned med Cauda heste syndrom er i bøgerne nu, og hvad en måned! Vi flyttede tilbage til vores gamle hus den sep 6th og begyndte processen med udpakning. Jeg tog fri fra september 6 - 15 så jeg kunne hjælpe med at overvåge bevægelse (og måske endda hjælpe en lille smule.) Vi har taget det langsomt, måling vores energi og smerte niveauer ud. Min kone og jeg nød vores tid sammen uhyre. Vi gjorde vores hengiven tider sammen og derefter drøftet det i dybden, ofte bruge en time eller mere om dagen på det. Vi fandt ud af, at der er en masse sandhed i opgørelsen, "Jo tættere et par får til Gud, jo tættere de kommer på hinanden. "Vi havde en stor tid for gentilslutning i en afslappet atmosfære. Vi har sikker brug for denne gang!

Lige før udgangen af ​​måned 7, Jeg nåede et lavpunkt i kæmper CES. De lange dage med fysisk udfordring, den følelsesmæssige vejafgift, og stammen på min kone, samt kom til et hoved. Jeg vidste det ikke så, men Gud var ved at forberede mig for hvad var blot få dage væk. Han brød mig helt ned, da jeg brugte flere timer en nat, hulkende og råber til ham. Jeg var på udkig efter svar og forståelse. Til sidst, Jeg blev brugt fysisk, følelsesmæssigt, mentalt og åndeligt. Så var der ikke noget. Ingen tilskyndelse, ingen trøst, ingen svar. Jeg faldt i søvn.

Blessed be your nameStraks, når man vågner den følgende morgen, Jeg vidste, at Gud havde besvaret. Hans fred var på mig som aldrig før, og jeg følte hans trøst indpakning mig. Ikke et i fysisk forstand, men blot at vide, hele mit væsen, at han havde hørt og viste hans kærlighed til mig. Det ændrede mit syn på livet, Cauda Equine syndrom min, og meget mere. Jeg skiftede selv titlen på denne blog. Du kan læse mere om det her - http://wp.me/p3A64Y-7V

I løbet af undersøgelsen min kone og jeg lavede sammen efter flytning, hver af os (særskilt) kom til en erkendelse af, at vi langsomt havde taget tilbage vores liv fra Gud, og at Han kaldte os tilbage til fuldt ud at forpligte sig til Ham. Vi udforsket dybden af ​​denne forpligtelse, fordi det var tydeligt, at det var langt mere, end vi nogensinde havde anset det for at være. Da vi hver overvejede det den dag, Ordet sank i. Denne aften, Jeg fortalte min kone, at jeg havde besluttet at gå all in - giver mit liv til Gud for hans formål. Hun havde gjort den samme beslutning. Vi glædede os sammen.

I måned 8, Jeg kom også til enden af ​​vejen for sagsanlæg vedrørende min cauda equina syndrom. Jeg havde 2 separate advokatfirmaer se på tilfældet for en eventuel fejlbehandling krav. Begge advokater siger, at uden tvivl var der medicinsk fejlbehandling begået på mig. Men, under Ohio lov, "værdien" af medicinsk fejlbehandling tilfælde er bestemt af, hvor meget bedre dit resultat ville have været, hvis fejlbehandling gjort en forskel. Jeg har været meget velsignet af Herren i min helbredelse hidtil. De fleste, der er plaget af cauda equina syndrom er tilbage for det meste eller fuldstændigt handicappet for resten af ​​deres liv - der beskæftiger sig med smerte, følelsesløshed / manglende følelse, blære og tarm problemer og seksuel dysfunktion.

Jeg har presset hårdt siden min operation, tilbragt en uge i Akut Rehab på hospitalet så 2 måneders ambulant Fysioterapi. Jeg har gjort mine strækøvelser og øvelser trofast. Jeg villet mig tilbage til arbejdet og arbejdede gennem smerter i flere måneder. Min opsving, objektivt, har været bemærkelsesværdig. Min prognose på tidspunktet for operationen var værst mulige resultat kategori på grund af fejlbehandling og forsinkelse i diagnosticering og behandling CES. Gud narret dem alle. Jeg har stadig alle de ovennævnte problemer, men de er ret overskuelige med den rette behandling og fornuftige begrænsninger på mine aktiviteter. Jeg er i top 5% af outcome muligheder. Så du kan se, der havde fejlbehandling ikke indtruffet, mit egentlige resultat ville ikke være meget, Eventuelle, bedre, end det har været. Lovligt, det betyder, at fejlbehandling ikke noget. Jeg vil beskæftige sig med disse symptomer og begrænsninger for resten af ​​mit liv, men fordi jeg har det bedre, end jeg burde, er det ikke noget værd. Du ved, hvad? Jeg tager min helbredelse over at have gjort dårligt nok at have en god fejlbehandling tilfælde - ALLE DAG!!!

Ugen efter min kone og jeg at begå og eftergivende fuldt til Herren var en af ​​stor åndelig angreb på os. Alt, hvad der kunne gå galt gjorde, 10 gange over det gjorde. Og derefter nogle! Jeg har aldrig set noget lignende det i mit 55 år. Vi var så overvældet med problemer, der opstod med alt, fra at kæmpe med en skruppelløs virksomhed, til forsikringsselskaber problemer med sundhed, hjem, liv og auto forsikringer, til mail vil mangler (det tog en vigtig skrivelse 20 dage til at gøre det 40 miles), apotek ordrer forsvinder i transit (og ude af stand til at nå alle i virksomheden til at løse det), bilproblemer, og meget, meget mere!

Ved første, vi faldt tilbage til vores gamle måder og begyndte at føle sig overvældet og vred. Men Gud ville ikke lade os gå tilbage til det, vi var. Han viste os, at det var en åndelig angreb og beroligede os med sin komfort. Du ved, hvad, Han havde ret. Intet af det overraskede ham, Han har vores liv, så han kan gøre, hvad han vil med dem, og resultatet var forbløffende. Vi lægger ud en bøn anmodning og mange mennesker fra hele landet bad. Vi blev beskyttet og angrebene ophørt.

I resten af ​​Månedens 8, Jeg er nu pendling 100 miles en dag, rundtur. Jeg kan gøre turen i at arbejde i bare 45 minutter. Men, hjemturen tager omkring 65-75 minutter. I gamle dage (sidste måned), Jeg ville have arbejdet mig op i en tizzy med gadeoptøjer i den tid! Nu, Gud er i kontrol over, når jeg kommer til at arbejde, og når jeg kommer hjem. Jeg nyder bare at tale med ham og være høflig til de andre bilister, der er desperat frazzled. Jeg plejede at stolthed mig på min "fremragende" køreevner tillade mig at bevæge sig gennem trafikken hurtigere end andre. Nu kører jeg at hjælpe andre, selvom de ofte ikke vil vide det. Og jeg får en meget større gebyr af den nye måde!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Foto kredit: Wikipedia)

Sammenfattende, ved udgangen af ​​måned 8, livet er godt. Det er bestemt ikke hvad jeg ville have udformet eller ønsket fra de enkelte aspekter. Men hele af, hvad Gud har gjort i mit liv og gjort mig med Hans forhold med mig, er stor! Jeg elsker min kone mere end jeg nogensinde vidste man kunne elske. Og kærligheden til min kristne familie har mangedoblet. Mit liv er nu fokuseret på, hvordan jeg kan hjælpe andre, som jeg går gennem livet at vide, at Guds ønske for mig er at blive, i ord, tanker, og handlinger, en udvidelse af Jesus. Når andre interagerer med mig, de skal se Jesus og hans kærlighed til dem. Dette er, hvad der driver mig nu. Det er, hvad der skal drive alle der kalder sig kristne. Charles Spurgeon sagde engang, "Enhver kristen er enten en missionær eller en bedrager."Hvad er du?

Måned 8 = Mere normal følelse, flere skift af tingly ikke ondt i tingly smertefulde (dette betyder bevægelse i retning af normal følelse), og bedre tarm & blæreaktivitet. Jeg fik at vide nerverne ville regenerere i et år med de fleste af regenerering opstår i første 6 måneder. Jeg havde haft nogen væsentlige ændringer siden Måned 2. Måske var jeg for travlt kampene Cauda equina syndrom snarere end levende med det. Jeg har ikke tænkt mig at sige, at dette er en belønning fra Gud for at give efter for ham, fordi jeg ikke tror, ​​han opererer på den måde. Han elsker os alle og ønsker os alle til at tro på Jesus, først for frelse og for det andet for livet. Alt, hvad han gør eller årsager i vores liv er at bringe os til disse to mål - først til at stole på Jesu død i vores sted som den eneste måde, vi kan have et ret forhold med ham og leve med ham i himlen en dag. Når vi har gjort det, Gud fokuserer alle hans ressourcer til os at gøre os til billeder af Jesus - er vi støbt til at have venlige og kærlige ord som Jesus, har elskværdige og generøse tanker som Jesus, og ikke WWJD (Hvad ville Jesus gøre?) men WDJD - Hvad gjorde Jesus? Hvordan kom han handle med kærlighed til andre og for Faderen? Ikke hvad vi tror, ​​han ville handle som om noget i dag, i stedet handler ud af hans kærlighed i alle ting.

Hvad en måned! Sikke et liv! Tak for læsning, min familie, mine venner, og min udvidede familie i hans Ånd.

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Uretfærdighed – Min cauda equina syndrom Juridisk Story

Malpractice - 165/365 Because it is rare, some who develop Cauda heste syndrom are the victims of medicinsk fejlbehandling. Anekdotiske historier bugne, sammen med nogle dokumenterede dem, CES blive bragt på eller forværret af fejlbehandling. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, no one can be certain if a case exists or how it will turn out. This is my story. It has been reviewed by 2 Ohio attorneys who have experience in Cauda Equina Syndrome malpractice cases. You won't like what it says about our legislatures, legal system, and of course doctor education.

My Cauda Equina Syndrome started with my injury. Within 10 hours of the onset of my CES symptoms, I was in an Emergency Room in Westerville, OH. Upon waking on the morning of Feb 12, 2013, I found that I not only had the severe back and sciatic pain of the night before, but now I was NUMB from the waist down! I could not void my bladder nor defecate. I could not move my feet up disse 3nor down and without feeling in my feet and ankles, I could not balance. These are all classic symptoms of Cauda Equina Syndrome. Fortunately we had a wheelchair (and some adult diapers) and just after 10 om morgenen, I arrived at the ER in my wheelchair.

We had been told that this ER was fast and efficient, and it was close to the office of the physician who suspected Cauda Equina Syndrome and sent us to an ER (with specific directions to have an MRI done.) Immediately upon arrival at the ER, I was wheeled to an exam room and I transferred from my wheelchair to the exam table. My vitals were taken and the male nurse assigned to me came in for the initial assessment. He stood about 5' 4", om 150 pounds, a pleasant. individual who began asking about my symptoms. With my mentioning Cauda Equina Syndrome, he asked if I was incontinent. I said, "No. I can't go!" He then asked me to stand up. I told him I couldn't. I knew I would fall right over, not because my legs wouldn't support me but because I had no balance. And I knew that his small frame would be overwhelmed by my 6 foot tall, 325 pound body. No way he can stop me from falling over if he doesn't prevent it to start with. I told him so, yet he insisted. The results were predictable. On standing up, I immediately began tilting (away from him, naturally) and over I went. The nurse could no longer stop it. The rolling chair in front of a fixed desk was in line with my movement. I was able to grab the back of the chair and as it rolled into the desk, it locked in and I was able to stop my fall. He asked me again if I was incontinent. I responded as I had before. That concluded the initial exam.

A short while later the nurse came back in. He told me that the ER doctor had ordered an MRI for me. The MRI machine was located at the other end of this Ohio Health Medical Campus and did not have an opening for me for almost 4 timer. I had to wait, on that exam table, in pain, until then. The nurse did check on me a couple of times, one time bringing me a couple of replacement diapers as my bladder was so full it was leaking (I still couldn't go!) Thankfully, my wife had some snacks in her purse or I would have been without food for over 10 hours that day - not good for a diabetic! No one ever asked if I was hungry, even though I was there over lunch time. Around 2:15 p.m. the nurse came and took me to the MRI machine. As we wheeled in, I could see that the machine was an older type that was very small. I did not think I would fit. They told me the test would last about 45 minutes and that I needed to lie as still as possible (easy to do when you rate your pain at a 10 and you are not medicated - NOT). I was put into the machine and I did fit, dog, as I tried to breathe,

The opening in a GE Signa MRI machine
The opening in a GE Signa MRI machine (Foto kredit: Wikipedia)

I could not fully expand my chest to take in a breath. I could get no more than 1/2 a breath before the constriction of the machine prevented further expansion of my chest. After several partial breaths, I knew that I could not breathe this way for 45 minutter. I told them so and I was removed from the machine - it was just a little too small. As I was wheeled back to the ER, the nurse told me about the larger machines and the open MRI machines in the area. He said, "We can get you into one of those. We'll see what we can do about that." I was returned to the exam table to wait. A half an hour passed with no one checking on me. Then the ER doctor arrived. He told me who he was and that he had been overseeing my care. He then asked me twice if I was incontinent. Again I responded with, "Not incontinent, I can't go!" Then he said, "You do NOT have Cauda Equina Syndrome. Since we are an Emergency Room and your case is not emergent, we can not refer you to an outpatient MRI facility. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, for a first available appointment. He can order an MRI for you." With that he was gone.

Shortly, a person came in and told my wife and I that 2 more people would be coming in, one with the discharge papers and another to wheel me out of the facility. Om 3:15, the woman with the prescription and discharge papers came in. The discharge papers said I should come back to the ER if any of my symptoms got worse OR if I developed any of these symptoms:

"Increased pain, abdominal pain, fever, difficulty controlling bowel/bladder, or any further concerns."

That was on one page of the instructions.

Another page stated this:

"YOU SHOULD SEEK MEDICAL ATTENTION IMMEDIATELY, EITHER HERE OR AT THE NEAREST EMERGENCY DEPARTMENT, IF ANY OF THE FOLLOWING OCCURS:

  • Loss of bowel or bladder control (you soil of wet yourself).
  • Weakness of inability to walk or user your leg(s) or arm(s).
  • Pain not relieved by pain medication.
  • Fever (temperature over 100.5 F) or shaking chills.
  • Severe pain that settles over one particular vertebrae (bone) in your back."

I laughed when I read these! Well as much as one can laugh while in the worst pain I've ever felt. Jeg already had most of these return or get immediate attention symptoms!! The woman said that these were just generic discharge instructions for herniated discs and not specific to me.

Most medical literature states that decompressive surgery must be done within 24-48 hours or the outcome is far worse. Once those 48 hours are gone, you're pretty well going to wind up disabled for the rest of your life. So says the literature. I can tell you right now that that is not always the case as I'm living proof, but that is another story.

Other medical literature says that the surgery must be done within 6-12 hours to effect the outcome. Still other studies say that time to surgery doesn't affect the outcome. Why such divergence? Cauda Equina Syndrome is rare. No one knows exactly how rare, but my research of available estimates would indicate no more than a few hundred new cases a year in the U.S.

It ultimately took 2 weeks for my surgery to be performed. The surgery at Riverside Methodist Hospital in Columbus, OH went well, I went through Acute Rehab there for a week after the surgery. I then went through 15 sessions of Physical Therapy at NovaCare in Westerville, OH. My outcome is that I have some normal feeling again in my waist area somewhat in my thighs and in my shins. I have painful tingling in other parts of my thighs and in my feet. My calves are mostly numb unless pressed upon - then I can tell the leg muscles are cramped up, but the good part is that I can't feel the cramps. I do stretches several times a day for calves and hamstrings. I use vision for balance and the leg weakness has diminished, i.e. strength has returned, to the point where I can walk about 500 feet with a cane and about 125 feet unassisted. Bowel and bladder functioning is that they function, I just can't control them or tell when I have to go - I get surprises. I try to go on a regular schedule to avoid surprises and I can tell most of the time when my bladder is getting close to the leaking point. I get a minute or two of warning on bowel movements most of the time, but I don't generally feel them.

In other words, my delayed surgery should have left me disabled, in bed, cathing myself, and on pain killers. I work full time, am ambulatory over short distances don't need cathing, and am on mild, non-narcotic pain relievers. In short, my recovery has been great. One of the best. Men, I still have a life of everyday being a physical challenge and struggle. That won't change, but that's okay (subject of another story.) I did a lot of wondering if I would have gotten back to normal, or almost normal, had I had surgery quickly, inden 48 timer. Feeling that the care I received from the ER doctor was negligent, I took everything to a Columbus, OH attorney. He called on another attorney in Cleveland, OH for a second opinion.

They both agreed that malpractice was committed, that the ER doctor "dropped the ball" as one of the attorneys put it. Men, due to the standards for malpractice claims in Ohio, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (my really much better than predicted by the facts outcome) would be an insurmountable challenge in court. Since that is the portion that really drives the dollar amount of any settlement, and thus the attorney's fees, my remarkable, blessed recovery makes pursuing the malpractice and negligence of the ER doctor not feasible. If I had not pushed to recover, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, and will go through the rest of my life, amounts to nothing. Our legal system is such that only lucrative cases are pursued. And our medical system does not educate doctors, nurses, and first responders adequately nor does it keep them updated. Had the ER doctor realized that bladder retention and not only incontinence is an indicator, we would have been golden. The info regarding retention is widely available on the internet and in medical journals.

To discount the correct diagnosis on the basis of 1 symptom is not what I want in a doctor. I feel that justice has lost in this one. Men, I am at peace with this as I relate in this post - My Blog Title Changed but Still About Cauda Equina Syndrome and Me.

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Blog titel ændret, men stadig om cauda equina syndrom & mig

Jeg have changed the title of my blog. Why? Not out of boredom or just liking change, much has happened since my last post. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... and His immediate purposes behind it.

My faith has seen me through this "Battle" med Cauda heste syndrom (CES) thus far, but I had no idea where my faith journey was heading. Ja, I wondered why this had happened, what God wanted me to learn and how I should view it. We all know that bad things happen to good people and good things happen to bad people. We always want to know why and often the answer we get is that we may never know why in this lifetime so we just have to live with it. I've heard a lot over the years about people with terrible injuries and diseases "kampene" eller "battling" those things which seek to either ruin or take their life. Friends and relatives have been touched by, and some lost to, injuries or disease. Now it is my turn.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. God wanted so much more from me but I had succumbed to "The Rat Race" and devoted myself to my work. Don't get me wrong, work is important, but so much more had suffered. My relationship with my wife, my time and service to God and the joy was gone from my life. Through this time of a changed life, where the daily routine of getting up and going to work is a draining physical challenge for me, I've seen myself as battling CES as though my faith, grit and determination were being tested. While they were being tested, that wasn't all. My focus had been on recovering far more than the doctors and physical therapists ever thought I could, further than the medical research said I could. I was going to win my "Battle". I didn't, and don't, hold out the idea of a complete recovery but my goal has been to be able to walk without assistance again - a lofty goal for someone with CES.

It was my attitude that needed changing. I saw this as a challenge where my faith would see me through and coming out the other side of this I would give the credit to God. I would be a faithful soldier in His service. Nothing wrong with that, but... God wanted me. All of me. He has wanted all of me for a long time. I thought I had given myself to Him fully many years ago. He has used me in so many ways everywhere I've lived. But as I said, I had slowly slipped back in to taking His blessings and running with it for my own purposes without even considering His. My wife tried to help me see it, but I was too focused on my goal - which had been so out of reach and now, because of God's blessing, was within my grasp. My attitude had slowly changed and was no longer good. God's smackdown on me physically also affected me emotionally, mentally and spiritually as well. Til sidst, everything was stripped away but the spiritual. I found that I had taken myself back from God and He was calling me to give myself completely to Him. Only this time, I understand there is much more depth in this commitment than I ever thought possible before.


In the Ohio derecho storms of June 29, 2012, we lost an old Ash tree that was 85 feet in length. Two men gave us a really good quote on cutting up the tree, removing the stump, and hauling it all away. They figured they could do it in 2 days, 6 hours a day . The stump was incredibly stubborn. Once they started on it, they found it had thick roots running out in all directions for many, many feet. It was too thick for their saws. They chopped at it with axes and worked 3 days from morning till dark. They even had another person come help. And still the stump remained. Finally they rented a stump grinder and did their best. That stump beat them badly for days. I sidste ende, they accomplished what we needed leaving a small mound where the tree had been, dog, there are still roots under that mound. And they had spent over 40 hours on the project. Their quote earned them less than $6 per hour.

That's how it is when I first gave myself "fully" to God. I saw what looked like full commitment and made that commitment. Over time, there was more and more revealed but I had my goals and dreams too and there was no time, no room, for truly giving myself to God as fully as He wanted. In time, I took back what I had given Him. Suddenly, this year, God changed all of that. Stricken with an injury that would change the rest of my life, taking away many of the things I wanted to do and accomplish, I now had time for Him. I've learned that He wants all of me, and I've made that commitment to Him. Nu, whatever recovery I have is fine with me. Of course being who I am, I will still be pushing for the best results possible. As with many whom God used in the past, He has place His mark of ownership on me - my CES. It is a reminder of whose I am, whose strength I depend on, and who has complete control of my life. We are not to give God a little, or even a large, part in our lives. He wants our whole life to be a part of His. He wants to live out His life through us. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. Not just our character, but character drives motivation, and out of motivation comes actions. God uses the events in our lives to transform us (Romans 12), and He transforms us into people who think, act, speak, and love just like Jesus. Why? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - look at how we Christians live! That isn't God's plan. Time for me to get with the plan. And I no longer fight CES, but it is a mark of ownership on me and of my commitment to God. So it is now "Mit liv med cauda equina syndrom" and thus the new name for my blog.


 

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