Cauda Equina Sindromo – #Neanta?vidita #trankvili?o

I really didn't want to believe it...

But today it is for certain.

Last week, I had increased problems with my balance. Now that really helps when I've also got a torn peroneal tendon on the right ankle! Anyway, Thursday evening my Cauda Equina Sindromo upped the ante - I got increased pain in my right foot/ankle (nerve pain, muscle cramps, imaginary pain - all of it).

ps21v14So imagine my surprise when late on Saturday, just before bedtime, the balance returned along with greatly decreased pain!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Well Sunday morning, the pain was still very low. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, but still I waited.

On waking this morning, my feet felt like I could run on them again if not for the tendon. Of course my legs wouldn't let me run anyway, but it had now been over 36 hours - long enough to declare that my foot pain has dramatically changed for the better. All of this just after the 1 year mark. In fact, as I post this, tomorrow marks the 1 year anniversary of my decompression surgery.

moving-forward-quotes253

I've also regain some feeling in the back (hamstring) area of my left leg - that's new feeling too! So progress continues. God has a wonderful sense of timing - just when you think you need encouragement in one area, He gives you encouragement in another. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Thank you, Lord!

Continuing the walk...

D.V.

David

 

#Malanta?a Rakonto – CES | Monato 3 Kun Cauda Equina Sindromo

Bonvenigi al #Malanta?a Rakonto, Part 3.

#?I tiu #po?to estos kaptanta supre de kiam mi estis trafita kun Cauda Equina Sindromo #?Is komencanta mian blogon #?e Monato 4.

Apr 17th, 2013, Hejmo:

De mi - my rehabilitation continues and I am seeing improvement, which is welcome, but not always pleasant. As I start getting feeling back in an area, it is usually pain that I feel. I've had a lot of pain related to a very tight piriformis muscle in my right hip. I've had exercises and stretches for it, which have helped some. As some other pains have subsided, it is time to concentrate on the biggest pain I feel right now and that is at the top of the hip on the back side. It comes from a knotted up, top end of the piriformis.

Monday at Physical Therapy, my therapist took about 5 minutes to do a deep muscle massage of that spot. It "hurt good" the whole time. A few minutes after the massage, the pain decreased to nothing. I had much better mobility, no pain from walking or sitting! Monday and the first 1/2 of Tuesday were great. Tiam, of course, the muscle started tightening again. Thursday I have my next PT session. Kim is going with me and my therapist, Carrie, is going to show her where and what to do. During the relief from this pain, I need very little pain medication. Now that is a goal I'm looking for!

I'm working 1/2 time right now, and with the PT and still rebuilding stamina, that works good for me. I will stay at 1/2 - 3/4 time a few more weeks then try to make it back to full time.

Feeling recovered in the last week:

Right outside thigh (parts) - result is that I feel the tight, inflamed tendon there now
Bottoms of feet - I can now feel when the floor is cool
Top of right foot - anything that touches it feels like I'm being stung by a wasp
Both calves - I can now feel the cramps they have been having

Still numb/no feeling:

Backside and groin areas
Thighs - back side, upper 4 inches only, both legs
Lower legs - I can tell touch to these areas, no pain in shins or sides, calves cramping though
Feet & Ankles - still mostly numb

Still hard to balance - I can stand without assistance for 60 - 90 seconds, I can reach a short distance (in certain directions only) for objects

Sitting - still tough to sit for long. Some chairs I can last an hour, others 10 minutes. And how long I can bear to sit in which chairs changes from day to day.

Walking (with walker) - pain from the piriformis usually limits me to walking around 400 feet at a time with a long rest in between

Walking (with cane) - I can now walk short distances (<50 feet) with a cane. Very tiring to do so, so I don't do it much. Therapist recommends 3 short cane walks a day.

Walking (unassisted) - I can walk very slowly, make dead sure of my balance for each step, for a distance of 5 - 8 feet. This is new.

Summary - progress being made, a long way to go yet. Keep on praying for Kim and me as there are still other issues from the cauda equina syndrome which are likely to never get back to normal and affect everyday life. These are the toughest as there is no treatment available for these issues, it is just up to the Lord whether the nerve damage heals or not.

Our hopes and faith are in Dio's hands. Praise be to God for His blessings!

Apr 26th, NovaCare Rehabilitado, Westerville, OH:

De mi - Well today is a sad day of sorts. It is my physical therapist's last day here in Ohio. She is a Doctor of Physical Therapy student who has been doing her final internship at NovaCare in Westerville. After today, she will be finished and headed back to Buffalo, NY to graduate. Congratulations, Carrie!

NovaCare had a goodbye party for her yesterday with a Shrek theme. Carrie was dressed up as Donkey. As for me, the following picture will confirm what some of you have thought about me for a long time....

Carrie

 

 

Apr 20th, 2013, Hejmo:

De mi - Bummer... but good, I hope. The front of my right thigh feels like it is itching. Of course when I scratch it, I don't feel a thing. But I'm hopeful that this is an indicator of feeling coming back to that area. However, nothing escapes the fact that it is a total bummer having a body part itch and not be able to get relief from scratching it 🙂

And with that, we come to the end of the back story. Continue with Month 4>>>

#Malanta?a Rakonto – CES | Monato 1 Kun Cauda Equina Sindromo

Bonvenigi al #Malanta?a Rakonto.

#?I tiu #po?to estos kaptanta supre de kiam mi estis trafita kun Cauda Equina Sindromo #?Is komencanta mian blogon #?e Monato 4. So join me as we look back at the beginning...

Feb 25th, 2013, Riverside Methodist Hospital, day of my decompression surgery:

De mia edzino, Kim - David was taken down to pre op at 5:30 #?I tiu mateno. Surgery was at 7:30. Out by 9:30. All went well, but he still has residual tingling in his feet. He has not moved much all day; pain is at a 2 (MUCH better than before). Tomorrow he sees the phys therapist and IF he can walk he can go home they say. But he has not had a bm, still has a catheter, and they were concerned with his kidneys. So he had an ultrasound of them. Maybe tomorrow we will know more. Thanks so much for all the prayers! He continues to bless us with such a movement of encouragement we are awestruck. Thanks so very much!

Feb 28th, 2013, Riverside Methodist Hospital:

De mi - Today should be my last in the medical side of the hospital. The plan is for me to start intensive rehab therapy on an inpatient basis here at the hospital. I don't have much pain, but there is still numbness and tingling from my hips to toes. My right side is weaker than the left, but am able to get up on my feet and walk 50+ feet (I had not walked since 2/11, so it feels good, even if it is challenging and added to the pain.)

No one knows how long for the rehab yet... They say anywhere from a few days to a couple of weeks. Of course, I could go home today and rehab there, but the house isn't suited to it and I still need a good bit of help that Kim is unable to provide. Thank you all for your prayers and thoughts during this time. Now the tough part begins, and we still need the prayers. Ni amas vin #?iu!

Mar 2nd, 2013, Acute Inpatiant Rehab Center, Riverside Methodist Hospital:

Update from Kim on David - His occupational and Fizika terapio sessions are productive; his lower back across hips still grieve him but nowhere near as badly as before; hamstrings are way too tight and require stretching exercises as does his core; 6 sessions today dispersed thruout the morning and afternoon hours; he got a good sleep last night and hopes to tonite as well. His foot stability is the biggest obstacle now. He uses walker & special toilet chair but is able to get in and out of bed ok, and walk halfway around the rehab unit on 6th floor now. This all takes time. He is still catheterized and will be well into next week or longer depending on some bladder control test on Wednesday. His bowels are loosening almost too much now !! ;O We so appreciate everyone praying so fervently and consistently for recovery. Even with trials of your own, you still pray. THAT is LOVE for ya! Big hugs to all.

Mar 3rd, 2013, Acute Inpatiant Rehab Center, Riverside Methodist Hospital:

De mi - The staff tells me I will be finished at the rehab unit on Wed (6th)! I just hope that my week left knee doesn't slow that down.

Mar 3rd, 2013, Hejmo:

From Kim - Puto, it's good to have David home again! Now for the disciplining of each of us to make sure he gets the PT exercises done (some he does, some I need to do TO/for him). He is still incontinent in both areas, so we're keeping the Depends folks in business 🙂

Thanks so much for the prayers, and we thank God for His answering in His way, in His time. David's not out of the woods yet with his walking/stability though. We'll keep y'all posted.

Mar 12th, 2013:

My first month with Cauda Equina Syndrome ends ... Month 2>>>>

CES | Monato 11 Kun Cauda Equina Sindromo

Monato 11 has flown by (as has Month 12 so far, thus this late post).

.lies

Monato 10 ended with some bad things happening in my personal life. These continued through most of Month 11 as well. I was dealing with the feelings caused by my family member and also a friend. Of the two, the broken friendship hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, but short, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, but it has been so long since someone I held that close in my heart has done such a thing.

 

.unknowingI don’t want the friendship broken, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; however it would not be as close as before… I’m not at a point in my life where I am willing to trust liars enough to allow them into my circle of close friends. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Christmas came and went during Month 11. We had a nice, quiet time - but the older I get, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Thanksgiving & Christmas) were always big shows where everyone put on a mask and lived out a lie that we were all normal, caring family. The rest of the year told a different, sad story. I survived, but not unscathed, by getting out. 2014 marks my 21st year of living hundreds (sometime thousands) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, or pick her up, I can count on the toes of one hand how many times my family has visited me in those 21 years. I, Tamen, have visited them at least a dozen times.

On to my CES…

While I was walking like Frankenstein and unable to feel my ankles, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, I knew something other than the nerve pain of Cauda Equina Sindromo was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, but it’s a new year, with a new insurance deductible. And of course I’m on a high deductible plan (not by choice – it is all my employer offers).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “electric shock” type feelings, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B is still an issue that takes a lot of management (that’s Bladder & Bowel, not Bed & Breakfast).

I have been encouraged, as Month 11 closed, by the small group Bible study we’re doing in our home. Between that and studying for my CMA exam in February, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, I have a couple of other projects on my ready list, so I will continue to stay busy.

Does my Cauda Equina Syndrome affect all of this? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, I have bad days, both physically and emotionally – hopefully not both at the same time! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, nurtured me, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, but what an adventure I am on!