Tag Archives: Cauda hobuste sündroom

Ajakohastama – 18 Kuud tagasi… Minu teekond Cauda equina sündroom Hakkas

18 Months Ago…

On Feb 11, 2013, I had never heard of Cauda hobuste sündroom (CES). See muutis järgmisel päeval. See on väga päev, 18 kuud tagasi, Ma ärkasin ilma tunne allpool oma talje. Midagi väga valesti juhtus mu keha! Ma ei teadnud seda siis, but I was beginning the journey called Cauda Equina Syndrome.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, especially given that it took 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Many neurosurgeons and other physicians say that nerve regeneration only occurs for 12 kuud, while others say 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 kuud. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Minu jaoks, the months since my 1 year anniversary have been challenging with some minor regression – but, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, which is usually around 1 tund 10 protokoll. The last 10 - 15 minutes of the drive I would get the “electro-shock” feeling so familiar from other body parts earlier in my recovery.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Fly the plane, in this case, drive the car – make sure you don’t run into someone or something), Navigate (Don’t get lost and for the car it means make sure you don’t miss a turn while distracted), Communicate (In the air, we’d get help from controllers on the ground, in the car, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ inch band around my foot, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 jalad, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, slowly but surely, I continue to strengthen and improve.

I still cannot stand for more than 20 - 30 sekundit, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, with 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depression, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and work for it!


Real Dušš elades Cauda equina sündroom

Cauda Equina Syndrome Finally Singing in the ShowerI've reached another milestone! Sel nädalal oli mul võimalus võtta täielikult dušš seistes!

That doesn't sound like a big deal to some, aga meile, kes tegelevad Cauda equina sündroom seisma pikemaks ajaks ei ole lahendus. Üks asi CES võtab teilt jala tugevust. Isegi kui tunne tagasi, tugevus ei tohi. Nii seista dušš paar minutit kulub duši, ja lisades füüsilise pingutuse duši, on verstapostiks mind!

One letdown though is that it did take so much strength that I can't do it every day, or even most days... veel. Aga tulevik on meie ees ja me näeme, mida see endaga kaasa toob, aga praegu ma ei saa kraavi dušš iste. Olen praegu kulgeb kuu 13 koos CES, so I've really got to get busy on my Month 12 ja Kuu 13 aruanded! Lootus on neid sel nädalavahetusel.

Cauda hobuste sündroom – Ettenägematud leevendust

I really didn't want to believe it...

Aga täna on see teatud.

Eelmisel nädalal, Ma tõusnud probleeme minu saldo. Now that really helps when I've also got a torn peroneal kõõlus paremal pahkluu! Niikuinii, Neljapäeva õhtul minu Cauda hobuste sündroom upped ante - Ma sain suurenenud valu mu parem jalg / pahkluu (närvivalu, lihaskrambid, kujuteldav valu - kõik see).

ps21v14Nii kujutleda mu üllatust, kui hilja laupäeval, vahetult enne magamaminekut, saldo tagastatakse koos oluliselt vähenenud valu!! Läksin magama mõtlesin, et see on juhus. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Noh pühapäeva hommikul, valu oli ikka väga madal. Käisime kirikus ja tuli koju. I waited for the pain to increase... Pärast koju kirikust pühapäeva õhtul olin väga lootusrikas, et püsiv muutus toimunud, kuid siiski ootasin.

On ärkamine hommikul, mu jalad tundsin ma võiks sõita neid uuesti, kui mitte kõõlus. Of course my legs wouldn't let me run anyway, kuid see oli nüüd juba üle 36 tööaeg - piisavalt kaua, et tunnistada, et mu suu valu on oluliselt paremaks muutunud. Kõik see just pärast 1 aasta märk. Tegelikult, kui ma postitamiseks seda, Homme tähistab 1 aastapäeva minu alanemise kirurgia.


I've also regain some feeling in the back (Kinnerjänne) ala mu vasak jalg - that's new feeling too! Seega edu jätkub. Jumal on imeline ajataju - just siis, kui te arvate, et teil on vaja julgustust ühes valdkonnas, Ta annab teile julgustust teises. Ja et julgustust sirutab ja venitab ise otse vaatamiseks pead ta minna. Nii et on topelt õnnistus! Aitäh, Isand!

Continuing the walk...




CES | Kuu 11 koos Cauda equina sündroom

Kuu 11 on sõidab (kui on Kuu 12 seni, seega see hilises).


Kuu 10 lõppes halbu asju juhtub minu isikliku elu. Neid jätkus enamik Kuu 11 samuti. I was dealing with the feelings caused by my pere member and also a friend. Kahe, purustatud sõprus hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, kuid lühike, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, kuid see on olnud nii ammu keegi ma otsustanud, et lähedal minu südames on teinud midagi sellist.


.unknowingMa ei taha, sõprus katki, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; aga see ei ole nii lähedal kui enne ... Mul pole mõtet oma elu, kus ma olen valmis usaldama valetas piisavalt, et võimaldada neil võtta minu ring lähedasi sõpru. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.




Jõulud came and went during Month 11. We had a nice, quiet time - kuid older saan, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Tänupüha & Jõulud) alati olnud suur näitab, kus igaüks panna mask ja elas vale, et me kõik olime normaalne, caring family. The rest of the year told a different, sad story. I survived, kuid mitte puutumata, by getting out. 2014 tähistab oma 21st aastal elab sadu (millalgi tuhandeid) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, või valida teda üles, Ma võin loota varbad ühe käega mitu korda mu pere on külastanud mind nendes 21 aastat. I, siiski, on külastanud neid vähemalt tosin korda.

On minu CES ...

Kuigi ma kõndisin nagu Frankenstein ja ei suuda tunda minu pahkluude, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Ma teadsin, et midagi muud peale närvi valu Cauda hobuste sündroom was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, aga see on uus aasta, with a new insurance deductible. And of course I’m on a high deductible plan (mitte valida - see on kõik minu tööandja pakkumised).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “elektrilöögi"Tüüpi tunded, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B on veel küsimus, mis võtab palju haldamine (et põis & Soolestik, mitte Voodi & Hommikusöök).

Mul on julgustatud, kui kuu 11 suletud, poolt väike rühm Piiblitund we’re doing in our home. Between that and studying for my CMA eksami veebruaris, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Mul on veel kaks projekti minu valmis nimekiri, nii et ma jätkab jääda kinni.

Kas minu Cauda equina sündroom mõjutab see kõik? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, Mul on halb päeva, nii füüsiliselt kui emotsionaalselt - loodetavasti mitte mõlemad samal ajal! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, rikastab mind, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Kui see toob kaasa Ma ei tea, kuid mida seiklus Olen!