CES | ماه 8 مبتلا به سندرم دم اسب

ces awarenss wristbandمن 8هفتم month with سندرم اسب دم is in the books now and what a month! We moved back to our old house on Sep 6هفتم and began the process of unpacking. I took time off from Sep 6 - 15 so I could help monitor the move (and maybe even help a little bit.) We’ve been taking it slowly, metering our energy and pain levels out. My wife and I enjoyed our time together immensely. We did our devotional times together and then discussed it in depth, often spending an hour or more a day on it. We found out that there is a lot of truth in the statement, “The closer a couple gets to God, the closer they get to each other.” We had a great time of reconnecting in a relaxed atmosphere. We sure needed this time!

Just prior to the end of Month 7, I reached a low point in battling CES. The long days of physical challenge, the emotional toll, and the strain on my wife as well came to a head. من آن را نمی دانید پس از آن, but God was preparing me for what was just days away. He broke me down completely as I spent several hours one night, sobbing and crying out to Him. I was looking for answers and understanding. سرانجام, I was spent physically, emotionally, mentally and spiritually. Then there was nothing. No prompting, no comfort, no answers. I fell asleep.

Blessed be your nameImmediately upon waking the following morning, I knew God had answered. His peace was on me like never before and I felt His comfort wrapping me. Not a in a physical sense, but just knowing, throughout my being, that He had heard and was showing His love for me. It changed my outlook on life, my Cauda Equina Syndrome, and much more. I even changed the title of this blog. You can read more about it here - http://wp.me/p3A64Y-7V

During the study my wife and I were doing together after moving, each of us (separately) came to a realization that we had slowly taken back our lives from God and that He was calling us back to fully committing to Him. We explored the depth of that commitment because it was clear that it was far more than we had ever considered it to be. As we each pondered it that day, the Word sank in. That evening, I told my wife that I had decided to go all in – yielding my life to God for His purposes. She had made the same decision. We rejoiced together.

In Month 8, I also came to the end of the road for legal action regarding my Cauda Equina Syndrome. I had 2 separate law firms look at the case for a possible malpractice claim. Both attorneys say that without doubt there was medical malpractice committed on me. اما, under Ohio law, the “value” of a medical malpractice case is determined by how much better your outcome would have been if the malpractice made a difference. I have been very blessed by the Lord in my recovery thus far. Most who are afflicted with Cauda Equina Syndrome are left mostly or totally disabled for the rest of their lives – dealing with pain, numbness/lack of feeling, bladder and bowel problems and sexual dysfunction.

I’ve pushed hard since my surgery, spending a week in Acute Rehab at the hospital then 2 months of outpatient ورزش درمانی. I’ve done my stretches and exercises faithfully. I willed myself back to work and worked through pain for several months. My recovery, by objective standards, has been remarkable. My prognosis at the time of the surgery was in the worst possible outcome category due to the malpractice and delay in diagnosing and treating the CES. God fooled them all. I still have all of the above problems, but they are quite manageable with proper treatment and sensible limitations on my activities. I’m in the top 5% of outcome possibilities. So you can see that had the malpractice not occurred, my actual outcome wouldn’t be much, if any, better than it has been. Legally, that means the malpractice didn’t matter. I will be dealing with these symptoms and restrictions for the rest of my life but because I am doing better than I should, it isn’t worth anything. You know what? I’ll take my recovery over having done poorly enough to have a good malpractice case – ANY DAY!!!

The week after my wife and I committing and yielding fully to the Lord was one of great spiritual attack upon us. Everything that could go wrong did, 10 times over it did. And then some! I’ve never seen anything like it in my 55 years. We were so overwhelmed with PROBLEMS that arose with everything, from fighting with an unscrupulous business, to insurance issues with health, home, life and auto insurances, to mail going missing (it took one important letter 20 days to make it 40 miles), pharmacy orders disappearing in transit (and unable to reach anyone in the company to fix it), to car problems, and much, much more!

در ابتدا, we fell back to our old ways and began to feel overwhelmed and angry. But God wasn’t going to let us go back to what we were. He showed us that it was a spiritual attack and calmed us with His comfort. You know what, He was right. None of it surprised Him, He has our lives so He can do whatever He wants with them, and the result was amazing. We put out a prayer request and many people from all over the country prayed. We were protected and the attacks ceased.

In the rest of Month 8, I’m now commuting 100 miles a day, round trip. I can make the trip in to work in just 45 دقیقه. اما, the trip home takes about 65-75 دقیقه. In the old days (last month), I would have worked myself up in a tizzy with Road Rage in that time! اکنون, God is in control of when I get to work and when I get home. I just enjoy talking with Him and being courteous to the other drivers who are desperately frazzled. I used to pride myself on my “excellent” driving skills allowing me to move through traffic quicker than others. Now I drive to help others, even though they won’t often know it. And I get a much bigger charge out of the new way!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Photo credit: Wikipedia)

In summary, at the end of Month 8, life is good. It certainly isn’t what I would have designed or wanted from the individual aspects. But the whole of what God has made of my life and done in me with His relationship with me, is great! I love my wife more than I ever knew one could love. And the love for my Christian family has multiplied many times over. My life is now focused on how I can help others as I go through life knowing that God’s desire for me is to become, in words, افکار, and actions, an extension of Jesus. When others interact with me, they must see Jesus and His love for them. This is what drives me now. It is what should drive all who call themselves Christians. Charles Spurgeon once said, Every Christian is either a missionary or an imposter.” Which are you?

ماه 8 = more normal feeling, more changing of tingly not painful into tingly painful (this means movement towards normal feeling), and better bowel & bladder activity. I was told the nerves would regenerate for a year with most of the regeneration occurring in the first 6 ماه. I’d had no significant changes since Month 2. Maybe I was too busy مبارز Cauda Equina Syndrome rather than living with it. I’m not going to say that this is a reward from God for yielding to Him because I don’t believe He operates that way. He loves us all and wants us all to trust in Jesus, first for salvation and secondly for life. All that He allows or causes in our lives are to bring us to those two goals – first to rely on Jesus’ death in our place as the only way we can have a right relationship with Him and live with Him in Heaven one day. Once we have done that, God focuses all of His resources towards us to make us into images of Jesus – we are molded to have kind and loving words like Jesus, have gracious and generous thoughts like Jesus, and not WWJD (What Would Jesus Do?) but WDJD – What Did Jesus Do? How did He act with love for others and for the Father? Not what we think He would act like regarding something today, instead acting out of His love in ALL things.

What a month! What a life! Thanks for reading, my family, my friends, and my extended family in His Spirit.

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بی عدالتی – من سندرم دم اسب حقوقی داستان

Malpractice - 165/365 Because it is rare, some who develop سندرم اسب دم are the victims of medical malpractice. Anecdotal stories abound, along with some documented ones, of CES being brought on or made worse by malpractice. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, no one can be certain if a case exists or how it will turn out. This is my story. It has been reviewed by 2 Ohio attorneys who have experience in Cauda Equina Syndrome malpractice cases. You won't like what it says about our legislatures, legal system, and of course doctor education.

My Cauda Equina Syndrome started with my injury. Within 10 hours of the onset of my CES symptoms, I was in an Emergency Room in Westerville, OH. Upon waking on the morning of Feb 12, 2013, I found that I not only had the severe back and sciatic pain of the night before, but now I was NUMB from the waist down! I could not void my bladder nor defecate. I could not move my feet up اینها 3nor down and without feeling in my feet and ankles, I could not balance. These are all classic symptoms of Cauda Equina Syndrome. Fortunately we had a wheelchair (and some adult diapers) and just after 10 a.m., I arrived at the ER in my wheelchair.

We had been told that this ER was fast and efficient, and it was close to the office of the physician who suspected Cauda Equina Syndrome and sent us to an ER (with specific directions to have an MRI done.) Immediately upon arrival at the ER, I was wheeled to an exam room and I transferred from my wheelchair to the exam table. My vitals were taken and the male nurse assigned to me came in for the initial assessment. He stood about 5' 4", در حدود 150 pounds, a pleasant. individual who began asking about my symptoms. With my mentioning Cauda Equina Syndrome, he asked if I was incontinent. I said, "No. I can't go!" He then asked me to stand up. I told him I couldn't. I knew I would fall right over, not because my legs wouldn't support me but because I had no balance. And I knew that his small frame would be overwhelmed by my 6 foot tall, 325 pound body. No way he can stop me from falling over if he doesn't prevent it to start with. I told him so, yet he insisted. The results were predictable. On standing up, I immediately began tilting (away from him, naturally) and over I went. The nurse could no longer stop it. The rolling chair in front of a fixed desk was in line with my movement. I was able to grab the back of the chair and as it rolled into the desk, it locked in and I was able to stop my fall. He asked me again if I was incontinent. I responded as I had before. That concluded the initial exam.

A short while later the nurse came back in. He told me that the ER doctor had ordered an MRI for me. The MRI machine was located at the other end of this Ohio Health Medical Campus and did not have an opening for me for almost 4 ساعت. I had to wait, on that exam table, in pain, until then. The nurse did check on me a couple of times, one time bringing me a couple of replacement diapers as my bladder was so full it was leaking (I still couldn't go!) Thankfully, my wife had some snacks in her purse or I would have been without food for over 10 hours that day - not good for a diabetic! No one ever asked if I was hungry, even though I was there over lunch time. Around 2:15 p.m. the nurse came and took me to the MRI machine. As we wheeled in, I could see that the machine was an older type that was very small. I did not think I would fit. They told me the test would last about 45 minutes and that I needed to lie as still as possible (easy to do when you rate your pain at a 10 and you are not medicated - NOT). I was put into the machine and I did fit, اما, as I tried to breathe,

The opening in a GE Signa MRI machine
The opening in a GE Signa MRI machine (Photo credit: Wikipedia)

I could not fully expand my chest to take in a breath. I could get no more than 1/2 a breath before the constriction of the machine prevented further expansion of my chest. After several partial breaths, I knew that I could not breathe this way for 45 دقیقه. I told them so and I was removed from the machine - it was just a little too small. As I was wheeled back to the ER, the nurse told me about the larger machines and the open MRI machines in the area. He said, "We can get you into one of those. We'll see what we can do about that." I was returned to the exam table to wait. A half an hour passed with no one checking on me. Then the ER doctor arrived. He told me who he was and that he had been overseeing my care. He then asked me twice if I was incontinent. Again I responded with, "Not incontinent, I can't go!" Then he said, "You do NOT have Cauda Equina Syndrome. Since we are an Emergency Room and your case is not emergent, we can not refer you to an outpatient MRI facility. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, for a first available appointment. He can order an MRI for you." With that he was gone.

Shortly, a person came in and told my wife and I that 2 more people would be coming in, one with the discharge papers and another to wheel me out of the facility. در حدود 3:15, the woman with the prescription and discharge papers came in. The discharge papers said I should come back to the ER if any of my symptoms got worse OR if I developed any of these symptoms:

"Increased pain, abdominal pain, fever, difficulty controlling bowel/bladder, or any further concerns."

That was on one page of the instructions.

Another page stated this:


  • Loss of bowel or bladder control (you soil of wet yourself).
  • Weakness of inability to walk or user your leg(s) or arm(s).
  • Pain not relieved by pain medication.
  • Fever (temperature over 100.5 F) or shaking chills.
  • Severe pain that settles over one particular vertebrae (bone) in your back."

I laughed when I read these! Well as much as one can laugh while in the worst pain I've ever felt. من already had most of these return or get immediate attention symptoms!! The woman said that these were just generic discharge instructions for herniated discs and not specific to me.

Most medical literature states that decompressive surgery must be done within 24-48 hours or the outcome is far worse. Once those 48 hours are gone, you're pretty well going to wind up disabled for the rest of your life. So says the literature. I can tell you right now that that is not always the case as I'm living proof, but that is another story.

Other medical literature says that the surgery must be done within 6-12 hours to effect the outcome. Still other studies say that time to surgery doesn't affect the outcome. Why such divergence? Cauda Equina Syndrome is rare. No one knows exactly how rare, but my research of available estimates would indicate no more than a few hundred new cases a year in the U.S.

It ultimately took 2 weeks for my surgery to be performed. The surgery at Riverside Methodist Hospital in Columbus, OH went well, I went through Acute Rehab there for a week after the surgery. I then went through 15 sessions of Physical Therapy at NovaCare in Westerville, OH. My outcome is that I have some normal feeling again in my waist area somewhat in my thighs and in my shins. I have painful tingling in other parts of my thighs and in my feet. My calves are mostly numb unless pressed upon - then I can tell the leg muscles are cramped up, but the good part is that I can't feel the cramps. I do stretches several times a day for calves and hamstrings. I use vision for balance and the leg weakness has diminished, i.e. strength has returned, to the point where I can walk about 500 feet with a cane and about 125 feet unassisted. Bowel and bladder functioning is that they function, I just can't control them or tell when I have to go - I get surprises. I try to go on a regular schedule to avoid surprises and I can tell most of the time when my bladder is getting close to the leaking point. I get a minute or two of warning on bowel movements most of the time, but I don't generally feel them.

In other words, my delayed surgery should have left me disabled, in bed, cathing myself, and on pain killers. I work full time, am ambulatory over short distances don't need cathing, and am on mild, non-narcotic pain relievers. In short, my recovery has been great. One of the best. اما, I still have a life of everyday being a physical challenge and struggle. That won't change, but that's okay (subject of another story.) I did a lot of wondering if I would have gotten back to normal, or almost normal, had I had surgery quickly, در داخل 48 ساعت. Feeling that the care I received from the ER doctor was negligent, I took everything to a Columbus, OH attorney. He called on another attorney in Cleveland, OH for a second opinion.

They both agreed that malpractice was committed, that the ER doctor "dropped the ball" as one of the attorneys put it. اما, due to the standards for malpractice claims in Ohio, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (my really much better than predicted by the facts outcome) would be an insurmountable challenge in court. Since that is the portion that really drives the dollar amount of any settlement, and thus the attorney's fees, my remarkable, blessed recovery makes pursuing the malpractice and negligence of the ER doctor not feasible. If I had not pushed to recover, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, and will go through the rest of my life, amounts to nothing. Our legal system is such that only lucrative cases are pursued. And our medical system does not educate doctors, nurses, and first responders adequately nor does it keep them updated. Had the ER doctor realized that bladder retention and not only incontinence is an indicator, we would have been golden. The info regarding retention is widely available on the internet and in medical journals.

To discount the correct diagnosis on the basis of 1 symptom is not what I want in a doctor. I feel that justice has lost in this one. اما, I am at peace with this as I relate in this post - My Blog Title Changed but Still About Cauda Equina Syndrome and Me.

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عنوان وبلاگ تغییر اما هنوز هم در مورد سندرم دم اسب & به من

من عنوان وبلاگ من تغییر کرده است. چرا? نه از خستگی و یا فقط شهوت و میل تغییر, بسیاری از آخرین پست من اتفاق افتاد. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... و اهداف فوری خود را پشت آن.

ایمان من به من از طریق این دیده "نبرد" با سندرم اسب دم (CES) تا کنون, اما من تا به حال هیچ ایده که در آن سفر ایمان من شد عنوان. بله, من تعجب که چرا این اتفاق افتاده بود, آنچه خدا به من می خواستم برای یادگیری و چگونه باید آن را. همه ما می دانیم که همه چیز بد اتفاق می افتد به مردم خوب و چیزهای خوب اتفاق می افتد به مردم بد. ما همیشه می خواهند بدانند که چرا و اغلب پاسخ ما این است که ما هیچ وقت نفهمیم که چرا در این طول عمر بنابراین ما فقط باید با آن زندگی می کنند. I've heard a lot over the years about people with terrible injuries and diseases "مبارز" یا "مبارزه با" آن چیزهایی که به دنبال یا خراب کردن و یا زندگی خود را. دوستان و اقوام توسط لمس شده است, و برخی از دست داده به, آسیب یا بیماری. حالا نوبت من است.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. خدا می خواست خیلی بیشتر از من اما من به پای درآمد "مسابقه موش صحرایی" و خودم را به کار من اختصاص داده شده. Don't get me wrong, کار مهم است, اما خیلی بیشتر بود رنج می برد. ارتباط من با همسرم, زمان و خدمات خود را به خدا و لذت از زندگی من رفته بود. از طریق این زمان از یک زندگی تغییر, که در آن زندگی روزمره از بلند شدن و رفتن به محل کار یک چالش فیزیکی تخلیه برای من است, I've seen myself as battling CES as though my faith, شن و عزم و اراده که مورد آزمایش قرار گرفتند. در حالی که آنها در حال آزمایش شد, that wasn't all. تمرکز من در دوره نقاهت به مراتب بیشتر از پزشکان و درمانگران فیزیکی بوده است که تا به حال فکر می کردم من می توانم, بیشتر از پژوهش های پزشکی گفت: من می توانم. من که قرار بود به نفع خود من "نبرد". I didn't, and don't, برگزاری این ایده از بهبود کامل اما هدف من این بوده است که قادر به راه رفتن بدون کمک دوباره - هدف بلند پروازانه برای کسی که با CES.

این نگرش من است که مورد نیاز در حال تغییر بود. من این را به عنوان یک چالش که در آن ایمان من به من از طریق دیدن و بیرون آمدن از طرف دیگر از این من اعتباری به خدا را دیدم. من یک سرباز وفادار در خدمت او. هیچ چیز اشتباه با آن, but... خدا از من خواست. همه از من. او از من برای یک مدت طولانی می خواست تا به. من فکر کردم من خودم سال ها پیش به طور کامل به او داده بود. He has used me in so many ways everywhere I've lived. اما همانطور که گفتم, من به آرامی پشت در به در نظر گرفتن نعمت او و در حال اجرا با آن برای مقاصد خود من حتی بدون در نظر گرفتن تضعیف شده بود او. همسر من تلاش برای کمک به من را ببینید, اما من خیلی در هدف من متمرکز شد - که بوده است به طوری که دور از دسترس و در حال حاضر, because of God's blessing, در چنگ من بود. نگرش من به آرامی تغییر کرده است و دیگر خوب بود. God's smackdown on me physically also affected me emotionally, ذهنی و روحی و همچنین. سرانجام, همه چیز دور محروم شد اما روحانی. که من پیدا کردم که من خودم به عقب از خدا گرفته بود و او به من دعوت به خودم را به طور کامل به او. فقط این بار, من درک می کنم این است که عمق بیشتری را در این تعهد از من همیشه قبل از ممکن تصور وجود دارد.

در اوهایو طوفان derecho ماه ژوئن 29, 2012, ما درخت خاکستر که از دست داده بود 85 متر طول. دو مرد نقل قول واقعا خوب در برش درخت به ما, حذف از بیخ و بن, و تخلیه آن همه دور. آنها کشف آنها می تواند از آن در انجام 2 روز, 6 ساعت در روز . استامپ فوق العاده خیره بود. هنگامی که آنها بر روی آن آغاز شده, آنها دریافتند آن بود ریشه های ضخیم در حال اجرا در همه جهات برای بسیاری از, بسیاری از فوت. آن را برای اره خود را بیش از حد غلیظ بود. آنها در آن را با محور خرد شده و مشغول به کار 3 روز از صبح تا تاریک. آنها حتی فرد آمده کمک به حال. و هنوز هم از بیخ و بن باقی مانده است. در نهایت آنها یک چرخ کنده اجاره و انجام بهترین خود را. که بیخ و بن آنها را برای روز بد ضرب و شتم. در پایان, آنها انجام چیزی است که ما نیاز به ترک تپه کوچک که در آن درخت شده بود, اما, هنوز ریشه های وجود دارد که در زیر تپه. و آنها به سر برده بود 40 ساعت در این پروژه. نقل قول خود را به دست آورده آنها کمتر از $6 در ساعت.

That's how it is when I first gave myself "کاملا" به خدا. من تو را دیدم چه شبیه تعهد کامل و ساخته شده است که تعهد. با گذشت زمان, وجود دارد بیشتر و بیشتر نشان داد اما من تا به حال به اهداف و رویاهای من خیلی بود و هیچ زمان وجود دارد, بدون اتاق, برای واقعا به خودم به خدا به عنوان به طور کامل به عنوان او می خواست. در زمان, من در زمان به عقب چیزی است که من به او داده بود. ناگهان, در این سال, خدا همه چیز تغییر. زده با آسیب که بقیه عمر خود را عوض, فاصله گرفتن بسیاری از چیزهایی که من می خواستم برای انجام و تحقق, من در حال حاضر زمان برای او به حال. I've learned that He wants all of me, and I've made that commitment to Him. اکنون, هر بهبودی من است خوب با من. البته بودن که من هستم, من هنوز هم برای بهترین نتایج ممکن خواهد هل دادن می شود. همانطور که با بسیاری که خدا در گذشته مورد استفاده قرار, او قرار علامت خود را در مالکیت من - CES من. این یک یادآوری است که از من است, که قدرت من بستگی دارد, و است که کنترل کامل زندگی من. ما به خدا نمی دهد کمی, و یا حتی بزرگ, در زندگی ما. او می خواهد تمام زندگی ما را به عنوان بخشی از او. او می خواهد به زندگی خود را از طریق ما. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. نه فقط شخصیت ما, اما شخصیت درایوهای انگیزه, و از انگیزه می آید اقدامات. خدا با استفاده از حوادث در زندگی ما تبدیل به ما (رومی ها 12), و او ما را به افرادی که فکر می کنم تبدیل, عمل, سخن گفتن, و عشق درست مثل عیسی. چرا? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - در چگونه ما مسیحیان زندگی می کنند نگاه! That isn't God's plan. زمان برای من با این طرح دریافت. و من دیگر مبارزه CES, اما یک علامت مالکیت در من و از تعهد من به خدا است. بنابراین در حال حاضر "زندگی من با سندرم دم اسب" و به این ترتیب به نام های جدید برای وبلاگ من.


پیشرفته توسط Zemanta