Cauda equine syndrome – Unforeseen tseg

I really didn't want to believe it...

Tiam sis hnub no nws yog ib rau tej yam.

Lub lim tiam dhau, Kuv tau nce teeb meem nrog kuv tshuav nyiaj li cas. Now that really helps when I've also got a torn peroneal txog leeg nyob rau txoj cai pob taws! Anyway, Thursday hmo kuv Cauda equine syndrome upped lub ante - Kuv nce mob nyob rau hauv kuv txoj cai ko taw / pob taws (hlab ntsha mob, nqaij tu-sauv, fab xav hauv siab mob - tag nrho ntawm nws).

ps21v14Yog li ntawd xav txog kuv xav tsis thoob thaum lig nyob rau hnub Saturday, cia li ua ntej yuav mus pw, qhov nqi koj tshuav rov qab nrog heev poob mob!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Zoo rau yav sawv ntxov, tus mob yog tseem heev tsawg. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, tab sis tseem yuav tsum tos kuv.

On waking tag kis no, kuv ko taw zoo li kuv yuav khiav rau lawv dua yog tias tsis rau txog leeg. Of course my legs wouldn't let me run anyway, tab sis tam sim no nws twb tau tshaj 36 teev - ntev txaus mus tshaj tawm hais tias kuv ko taw mob tau dramatically hloov rau lub zoo dua. All of this just after the 1 xyoo cim. In fact, raws li kuv post no, tag kis qhab nia lub 1 xyoo hnub tseem ceeb ntawm kuv decompression phais.

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I've also regain some feeling in the back (hamstring) cheeb tsam ntawm kuv sab laug ceg - that's new feeling too! So progress continues. God has a wonderful sense of timing - thaum koj xav tias koj xav tau kev txhawb zog rau hauv ib cheeb tsam, Nws muab koj cov lus ntuas rau lwm. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Ua tsaug rau koj, Tswv!

Continuing the walk...

D.V.

David

 

Back Zaj Dab Neeg – Ces | Lub hli 3 nrog Cauda Equina Syndrome

Zoo siab txais tos rau Back Zaj Dab Neeg, Ib feem 3.

Cov posts yuav txais li ntawm thaum kuv raug nrog Cauda equine syndrome kom txog rau thaum pib kuv blog nyob rau lub Hlis 4.

Apr 17th, 2013, Home:

Los ntawm kuv - my rehabilitation continues and I am seeing improvement, uas yog txais tos, tab sis tsis yeej ib txwm qab ntxiag. Thaum kuv pib tau txais xav rov qab nyob rau hauv ib cheeb tsam, nws yog ib feem ntau yog mob uas kuv xav tias. I've had a lot of pain related to a very tight piriformis nqaij nyob rau hauv kuv txoj cai ntsag. I've had exercises and stretches for it, uas tau pab ib co. Raws li ib co lwm pains muaj subsided, nws yog lub sij hawm mus rau feeb kom meej rau lub biggest mob kuv xav tias tam sim no thiab uas yog nyob rau sab saum toj ntawm lub ntsag nyob rau nraum qab sab. Nws los ntawm ib tug knotted li, sab saum toj kawg ntawm tus piriformis.

Hnub Monday tom Cev nqaij daim tawv Therapy, kuv kws kho mob coj txog 5 feeb mus ua ib tug sib sib zog nqus nqaij zaj lus ntawm hais tias nqaij ntawd. Nws "mob zoo" tag nrho lub sij hawm. Ob peb feeb tom qab cov zaj lus, lub mob poob mus tsis muaj dab tsi. Kuv muaj ntau zoo dua kev mus ncig, tsis hnov ​​mob los ntawm taug kev los yog zaum! Hnub Monday thiab lub thawj 1/2 ntawm Tuesday twb zoo. Ces, ntawm chav kawm, lub nqaij pib dua zawm. Thursday kuv muaj kuv tom ntej PT kev sib ntsib. Kim yog mus nrog kuv thiab kuv kws kho mob, Carrie, yog mus qhia nws nyob qhov twg thiab yuav ua licas. Thaum lub sij hawm tseg los ntawm no mob, Kuv xav tau heev me ntsis mob noj tshuaj. Now that is a goal I'm looking for!

I'm working 1/2 lub sij hawm tam sim no, thiab nrog lub PT thiab tseem rebuilding stamina, hais tias ua hauj lwm zoo rau kuv. Kuv yuav nyob hauv 1/2 - 3/4 lub sij hawm ib ob peb ntau lub lis piam ces sim kom nws rov qab mus rau tag nrho lub sij hawm.

Xav zoo nyob rau hauv lub lim tiam dhau:

Txoj cai sab nraum ncej puab (qhov chaw) - tshwm sim yog tias kuv xav tias lub ceev, kub lug txog leeg muaj tam sim no
Bottoms ntawm taw - Kuv muaj peev xwm tam sim no xav thaum hauv pem teb yog txias
Sab saum toj ntawm txoj cai ko taw - anything that touches it feels like I'm being stung by a wasp
Ob leeg calves - Kuv muaj peev xwm tam sim no xav tias lub tu-sauv lawv tau muaj

Tseem loog / tsis xav:

Backside thiab lub puab tais chaw
Ncej puab - rov qab sab, Upper 4 nti xwb, ob txhais ceg
Qis ob txhais ceg - Kuv yuav qhia tau kov mus rau cov cheeb tsam no, tsis muaj mob nyob rau hauv los yog sab shins, calves cramping txawm
Taw & Ankles - feem ntau tseem loog

Tseem nyuaj rau sib npaug - Kuv sawv tsis muaj kev pab rau 60 - 90 seconds, Kuv yuav ncav cuag ib luv luv deb (nyob rau hauv tej yam lus qhia tsuas) rau tej khoom

Zaum - tseem nyuaj zaum rau ntev. Qee cov rooj zaum kuv yuav kav ib teev, lwm tus 10 feeb. Thiab ntev npaum li cas kuv yuav ris mus zaum rau cov rooj zaum uas hloov los ntawm hnub rau hnub.

Taug kev (nrog Rollator) - mob los ntawm lub piriformis feem ntau yog txwv kuv mus taug kev nyob ib ncig ntawm 400 ko taw nyob rau hauv ib lub sij hawm nrog ib tug ntev so nyob rau hauv nruab nrab ntawm

Taug kev (nrog pas nrig) - Kuv muaj peev xwm tam sim no taug kev luv luv ncua (<50 taw) nrog ib tug pas nrig. Heev tiring mus ua li ntawd, so I don't do it much. Therapist pom zoo 3 luv luv pas nrig mus kev ib hnub.

Taug kev (unassisted) - Kuv tau taug kev heev maj mam, ua tuag nco ntsoov ntawm kuv tshuav nyiaj li cas rau txhua kauj ruam, rau ib tug deb ntawm 5 - 8 taw. Qhov no yog tshiab.

Sua Lus - kev kawm ua tau, ib tug ntev txoj kev uas yuav mus tsis tau. Cia li thov Vajtswv rau Kim thiab kuv li tseem tshuav lwm yam teeb meem los ntawm lub cauda equina syndrome uas yog yuav mus tsis tau rov qab rau li qub thiab cuam tshuam rau lub neej txhua hnub. Cov no yog cov toughest li tsis muaj kev kho mob muaj nyob rau cov teeb meem, nws yog cia li mus txog rau tus Tswv seb cov hlab ntsha puas tsuaj los yog tsis heals.

Peb cia siab thiab kev ntseeg yog nyob rau hauv Vajtswv's hands. Qhuas yuav mus rau Vajtswv rau Nws tej koob hmoov!

Apr 26th, NovaCare Rehabilitation, Westerville, Oh:

Los ntawm kuv - Well today is a sad day of sorts. It is my physical therapist's last day here in Ohio. Nws yog ib tug kws kho mob ntawm lub cev Txoj kev kho me nyuam kawm ntawv uas tau ua nws kawg internship nyob NovaCare nyob rau hauv Westerville. Tom qab hnub no, she will be finished and headed back to Buffalo, NY mus kawm tiav. Nrog koj zoo siab, Carrie!

NovaCare muaj ib tug mus zoo tog rau nws nag hmo nrog ib tug Shrek ntsiab lus. Carrie twb hnav ris tsho li raws li tus zag. Raws li rau kuv, the following picture will confirm what some of you have thought about me for a long time....

Carrie

 

 

Apr 20, 2013, Home:

Los ntawm kuv - Bummer... tab sis zoo, Kuv vam thiab cia siab. Pem hauv ntej ntawm kuv txoj cai ncej puab mam paub tias zoo li nws yog khaus. Ntawm cov hoob kawm thaum kuv kos nws, I don't feel a thing. But I'm hopeful that this is an indicator of feeling coming back to that area. Txawm li cas los, nothing escapes the fact that it is a total bummer having a body part itch and not be able to get relief from scratching it 🙂

Thiab nrog hais tias, peb tuaj mus rau thaum xaus ntawm lub qab zaj dab neeg. Continue with Month 4>>>

Back Zaj Dab Neeg – Ces | Lub hli 1 nrog Cauda Equina Syndrome

Zoo siab txais tos rau Back Zaj Dab Neeg.

Cov posts yuav txais li ntawm thaum kuv raug nrog Cauda equine syndrome kom txog rau thaum pib kuv blog nyob rau lub Hlis 4. So join me as we look back at the beginning...

FEB 25, 2013, Riverside Methodist Tsev Kho Mob, hnub ntawm kuv decompression phais:

Los ntawm kuv tus poj niam, Kim - David raug coj los rau pre op nyob 5:30 tag kis no. Phais yog nyob rau ntawm 7:30. Tawm los ntawm 9:30. Tag nrho cov mus zoo, tiam sis nws tseem muaj qhov seem tingling nyob rau hauv nws ob txhais taw. Nws tsis tau tsiv ntau tag nrho cov hnub; mob yog nyob rau ntawm ib tug 2 (NTAU zoo dua ua ntej). Tag kis nws pom lub Phys kws kho mob thiab YOG HAIS TIAS nws yuav taug kev nws yuav mus tsev lawv hais. Tab sis nws tsis tau muaj ib tug bm, tseem muaj ib tug muaj Medicare,, thiab lawv kev txhawj xeeb nrog nws ob lub raum. Yog li ntawd, nws muaj ib ultrasound ntawm lawv. Tej zaum tag kis peb yuav paub ntau. Tsaug ntau heev rau tag nrho cov kev thov Vajtswv! Nws tseem foom koob hmoov rau peb nrog ib tug xws li txav ntawm kev txhawb zog peb awestruck. Ua tsaug ntau!

FEB 28th, 2013, Riverside Methodist Tsev Kho Mob:

Los ntawm kuv - Today should be my last in the medical side of the hospital. Lub hom phiaj yog rau kuv pib intensive rehab txoj kev kho nyob rau hauv ib tug pw hauv paus no nyob rau ntawm lub tsev kho mob. I don't have much pain, tab sis muaj tseem numbness thiab tingling los ntawm kuv hips rau toes. Kuv sab xis yog weaker tshaj rau sab laug, tab sis kuv tau mus nyob rau kuv ko taw thiab taug kev 50+ taw (Kuv twb tsis mus txij 2/11, yog li ntawd nws mam paub tias zoo, txawm tias nws yog nyuaj thiab ntxiv rau lub mob.)

No one knows how long for the rehab yet... Lawv hais tias nyob qhov twg los ntawm ib tug ob peb hnub mus rau ob peb lub lis piam. Ntawm cov hoob kawm, Kuv yuav mus tsev hnub no thiab rehab muaj, but the house isn't suited to it and I still need a good bit of help that Kim is unable to provide. Ua tsaug rau koj tag nrho rau koj cov lus thov thiab kev xav thaum lub sij hawm lub sij hawm no. Tam sim no lub nyuaj ib feem pib, thiab peb tseem yuav tsum tau cov lus thov. Peb hlub koj tag nrho!

Mar 2nd, 2013, Mob Inpatiant Rehab Center, Riverside Methodist Tsev Kho Mob:

Hloov tshiab los ntawm Kim on David - Nws ua hauj lwm thiab lub cev txoj kev kho kev cobqhia yog tsim; nws qis rov qab thoob plaws hips tseem quaj ntsuag rau nws tab sis tsis pom qhov twg nyob ze li phem heev li ua ntej; hamstrings yog txoj kev ceev heev thiab yuav tsum tau ncab ce li nws core; 6 kev cobqhia hnub no dispersed thruout thaum sawv ntxov thiab yav tav su teev; nws tau txais ib tug zoo pw tsaug zog hmo kawg thiab cia siab tonite li zoo. Nws ko taw ruaj ntseg yog lub biggest yam tav kev tam sim no. Nws siv Rollator & tshwj xeeb tso zis tso quav rooj zaum tab sis yog tau txais nyob rau hauv thiab tawm ntawm lub txaj ok, thiab taug kev nyob ib ncig ntawm lub halfway rehab chav tsev nyob rau hauv pem teb tam sim no 6. Tag nrho cov no yuav siv sij hawm lub sij hawm. Nws yog tseem catheterized thiab yuav zoo rau tom ntej no lub lim tiam los sis ntev dua nyob ntawm seb ib co zis tswj kev xeem rau hnub Wednesday. Nws bowels yog loosening yuav luag ntau dhau lawm tam sim no !! ;Au Peb thiaj li txaus siab rau txhua leej txhua tus thov Vajtswv thiaj li Vajtswv thiab xwm yeem rau rov qab. Txawm muaj tej kev sim siab ntawm koj tus kheej, koj tseem thov Vajtswv. TIAS qhov uas yog KEV HLUB rau ya! Loj hugs rau txhua tus.

Mar 3rd, 2013, Mob Inpatiant Rehab Center, Riverside Methodist Tsev Kho Mob:

Los ntawm kuv - The staff tells me I will be finished at the rehab unit on Wed (6th)! I just hope that my week left knee doesn't slow that down.

Mar 3rd, 2013, Home:

Los ntawm Kim - Zoo, it's good to have David home again! Tam sim no rau lub disciplining ntawm peb txhua tus kom paub tseeb tias nws tau txais PT ce ua (ib txhia nws, ib txhia kuv yuav tsum tau ua MUS / rau nws). Nws yog tseem incontinent nyob rau hauv ob cheeb tsam, so we're keeping the Depends folks in business 🙂

Tsaug ntau heev rau cov lus thov, thiab peb ua Vajtswv tsaug rau Nws lub answering nyob rau hauv Nws txoj kev, nyob rau hauv Nws lub sij hawm. David's not out of the woods yet with his walking/stability though. We'll keep y'all posted.

Mar 12, 2013:

Kuv thawj thawj lub hlis nrog Cauda Equina Syndrome xaus ... Lub hlis 2>>>>

Ces | Lub hli 11 nrog Cauda Equina Syndrome

Lub hli 11 muaj flown los ntawm (raws li muaj rau lub Hlis 12 kom deb li deb, li no lig post).

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Lub hli 10 ended with some bad things happening in my personal life. These continued through most of Month 11 as well. I was dealing with the feelings caused by my tsev neeg member and also a friend. Of the two, lub tawg phooj ywg hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, tab sis luv luv, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, tab sis nws yeej ntev txij li thaum ib tug neeg hais tias kuv tuav ze nyob rau hauv kuv lub siab tau ua xws li ib tug tshaj plaws.

 

.unknowingKuv tsis xav tau tus phooj ywg tawg, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; txawm li cas los nws yuav tsis nyob ze li ua ntej ... Kuv tsis nyob rau ntawm ib tug taw tes nyob rau hauv kuv lub neej qhov twg kuv txaus siab cia siab rau liars txaus rau lawv mus rau hauv kuv lub voj voog ntawm nyob ze cov phooj ywg. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

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Christmas came and went during Month 11. We had a nice, quiet time - tab sis lub older kuv tau, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Thanksgiving & Christmas) twb yeej ib txwm loj nyob qhov twg qhia txhua leej txhua tus muab tso rau ib daim npog qhov ncauj thiab nyob tawm ib qhov dag hais tias peb twb tag nrho ib txwm, caring family. The rest of the year told a different, sad story. I survived, tiam sis tsis unscathed, by getting out. 2014 qhab nia kuv 21st xyoo ntawm nyob pua pua (caij nyoog txhiab) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, los yog tsaws nws, Kuv yuav suav rau lub toes ntawm ib txhais tes li cas ntau zaus kuv tsev neeg tau mus xyuas kuv nyob rau hauv cov 21 xyoo. I, li cas los xij, tau mus xyuas lawv tsawg kawg yog ib tug kaum os lub sij hawm.

Nyob rau kuv ces ...

Thaum kuv tseem taug kev zoo li Frankenstein thiab tsis muaj peev xwm xav tias kuv ankles, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Kuv paub ib yam dab tsi lwm yam tshaj li lub paj mob ntawm Cauda equine syndrome was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, tab sis nws yog ib tug tshiab xyoo, with a new insurance deductible. And of course I’m on a high deductible plan (tsis los ntawm kev xaiv - nws yog tag nrho kuv cov chaw ua hauj lwm muaj).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “hluav taws xob poob siab"Hom kev xav, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B yog ib qhov teeb meem tseem hais tias yuav siv sij hawm ib tug ntau ntawm kev tswj (hais tias zis & Quav, tsis Txaj & Pluas tshais).

Kuv tau txhawb kom, raws li lub Hlis 11 kaw, los ntawm pawg me me Kawm Vajlugkub we’re doing in our home. Between that and studying for my CMA xeem nyob rau hauv Lub ob hlis ntuj, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Kuv muaj ib tug ob ntawm lwm yam dej num rau kuv npaj txhij daim ntawv teev, yog li ntawd kuv tseem yuav nyob tibneeg hu tauj coob.

Kuv Cauda Equina Syndrome cuam tshuam tag nrho cov ntawm no? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, Kuv muaj phem hnub, ob qho tib si cev nqaij daim tawv thiab raug kev puas siab - hopefully tsis ob qho tib si nyob rau tib lub sij hawm! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, nurtured kuv, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, tab sis li cas ib tug taug txuj kev nyuaj kuv nyob!