ពិព័រណ៍ CES | ខែ 8 ជាមួយ Cauda Equina រោគសញ្ញា

ces awarenss wristbandខ្ញុំ 8ទី month with ជម្ងឺ equine Cauda is in the books now and what a month! We moved back to our old house on Sep 6ទី and began the process of unpacking. ខ្ញុំ​បាន​ចំណាយ​ពេល​ចេញពី​កញ្ញា 6 - 15 ដូច្នេះ​ខ្ញុំ​អាច​ជួយ​ត្រួត​ពិនិត្យ​ទង្វើ​នេះ (និង​ប្រហែល​ជា​ជួយ​សូម្បី​តែ​បន្តិច​។) We’ve been taking it slowly, metering our energy and pain levels out. My wife and I enjoyed our time together immensely. We did our devotional times together and then discussed it in depth, often spending an hour or more a day on it. We found out that there is a lot of truth in the statement, “The closer a couple gets to God, the closer they get to each other.” We had a great time of reconnecting in a relaxed atmosphere. We sure needed this time!

Just prior to the end of Month 7, I reached a low point in battling CES. The long days of physical challenge, the emotional toll, and the strain on my wife as well came to a head. I didn’t know it then, but God was preparing me for what was just days away. He broke me down completely as I spent several hours one night, sobbing and crying out to Him. I was looking for answers and understanding. Eventually, I was spent physically, emotionally, mentally and spiritually. Then there was nothing. No prompting, no comfort, no answers. I fell asleep.

Blessed be your nameImmediately upon waking the following morning, I knew God had answered. His peace was on me like never before and I felt His comfort wrapping me. Not a in a physical sense, but just knowing, throughout my being, that He had heard and was showing His love for me. It changed my outlook on life, my Cauda Equina Syndrome, and much more. I even changed the title of this blog. You can read more about it here - http://wp.me/p3A64Y-7V

During the study my wife and I were doing together after moving, each of us (separately) came to a realization that we had slowly taken back our lives from God and that He was calling us back to fully committing to Him. We explored the depth of that commitment because it was clear that it was far more than we had ever considered it to be. As we each pondered it that day, the Word sank in. That evening, I told my wife that I had decided to go all in – yielding my life to God for His purposes. She had made the same decision. We rejoiced together.

In Month 8, I also came to the end of the road for legal action regarding my Cauda Equina Syndrome. I had 2 separate law firms look at the case for a possible malpractice claim. Both attorneys say that without doubt there was medical malpractice committed on me. ទោះ​ជា​យ៉ាង​ណា, under Ohio law, the “value” of a medical malpractice case is determined by how much better your outcome would have been if the malpractice made a difference. I have been very blessed by the Lord in my recovery thus far. Most who are afflicted with Cauda Equina Syndrome are left mostly or totally disabled for the rest of their lives – dealing with pain, numbness/lack of feeling, bladder and bowel problems and sexual dysfunction.

I’ve pushed hard since my surgery, spending a week in Acute Rehab at the hospital then 2 months of outpatient ការ​ព្យាបាល​រាងកាយ. I’ve done my stretches and exercises faithfully. I willed myself back to work and worked through pain for several months. My recovery, by objective standards, has been remarkable. My prognosis at the time of the surgery was in the worst possible outcome category due to the malpractice and delay in diagnosing and treating the CES. God fooled them all. I still have all of the above problems, but they are quite manageable with proper treatment and sensible limitations on my activities. I’m in the top 5% of outcome possibilities. So you can see that had the malpractice not occurred, my actual outcome wouldn’t be much, if any, better than it has been. Legally, that means the malpractice didn’t matter. I will be dealing with these symptoms and restrictions for the rest of my life but because I am doing better than I should, it isn’t worth anything. You know what? I’ll take my recovery over having done poorly enough to have a good malpractice case – ANY DAY!!!

The week after my wife and I committing and yielding fully to the Lord was one of great spiritual attack upon us. Everything that could go wrong did, 10 times over it did. And then some! I’ve never seen anything like it in my 55 years. We were so overwhelmed with PROBLEMS that arose with everything, from fighting with an unscrupulous business, to insurance issues with health, home, life and auto insurances, to mail going missing (it took one important letter 20 days to make it 40 miles), pharmacy orders disappearing in transit (and unable to reach anyone in the company to fix it), to car problems, and much, much more!

At first, we fell back to our old ways and began to feel overwhelmed and angry. But God wasn’t going to let us go back to what we were. He showed us that it was a spiritual attack and calmed us with His comfort. You know what, He was right. None of it surprised Him, He has our lives so He can do whatever He wants with them, and the result was amazing. We put out a prayer request and many people from all over the country prayed. We were protected and the attacks ceased.

In the rest of Month 8, I’m now commuting 100 miles a day, round trip. I can make the trip in to work in just 45 នាទី. ទោះ​ជា​យ៉ាង​ណា, the trip home takes about 65-75 នាទី. In the old days (last month), I would have worked myself up in a tizzy with Road Rage in that time! ឥឡូវ​នេះ, God is in control of when I get to work and when I get home. I just enjoy talking with Him and being courteous to the other drivers who are desperately frazzled. I used to pride myself on my “excellent” driving skills allowing me to move through traffic quicker than others. Now I drive to help others, even though they won’t often know it. And I get a much bigger charge out of the new way!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Photo credit: Wikipedia)

In summary, at the end of Month 8, life is good. It certainly isn’t what I would have designed or wanted from the individual aspects. But the whole of what God has made of my life and done in me with His relationship with me, is great! I love my wife more than I ever knew one could love. And the love for my Christian family has multiplied many times over. My life is now focused on how I can help others as I go through life knowing that God’s desire for me is to become, in words, គំនិត, and actions, an extension of Jesus. When others interact with me, they must see Jesus and His love for them. This is what drives me now. It is what should drive all who call themselves Christians. Charles Spurgeon once said, Every Christian is either a missionary or an imposter.” Which are you?

ខែ 8 = more normal feeling, more changing of tingly not painful into tingly painful (this means movement towards normal feeling), and better bowel & bladder activity. I was told the nerves would regenerate for a year with most of the regeneration occurring in the first 6 ខែ. I’d had no significant changes since Month 2. Maybe I was too busy fighting Cauda Equina Syndrome rather than living with it. I’m not going to say that this is a reward from God for yielding to Him because I don’t believe He operates that way. He loves us all and wants us all to trust in Jesus, first for salvation and secondly for life. All that He allows or causes in our lives are to bring us to those two goals – first to rely on Jesus’ death in our place as the only way we can have a right relationship with Him and live with Him in Heaven one day. Once we have done that, God focuses all of His resources towards us to make us into images of Jesus – we are molded to have kind and loving words like Jesus, have gracious and generous thoughts like Jesus, and not WWJD (What Would Jesus Do?) but WDJD – What Did Jesus Do? How did He act with love for others and for the Father? Not what we think He would act like regarding something today, instead acting out of His love in ALL things.

What a month! What a life! Thanks for reading, my family, my friends, and my extended family in His Spirit.

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ភាព​អយុត្តិធម៌ – រឿង​ផ្នែក​ច្បាប់ Cauda Equina រោគសញ្ញា​របស់​ខ្ញុំ

Malpractice - 165/365 Because it is rare, some who develop ជម្ងឺ equine Cauda are the victims of medical malpractice. រឿង​រ៉ាវ​រៀប​រាប់​ច្រើន, រួម​ជា​មួយ​នឹង​អ្នក​ដែល​បាន​ចងក្រង​ជា​ឯកសារ​មួយ​ចំនួន, ការ​ពិព័រណ៍ CES ត្រូវ​បាន​នាំ​យក​មក​នៅ​លើ​ឬ​បាន​ធ្វើ​កាន់តែ​អាក្រក់​ដោយ malpractice. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, no one can be certain if a case exists or how it will turn out. This is my story. It has been reviewed by 2 Ohio attorneys who have experience in Cauda Equina Syndrome malpractice cases. You won't like what it says about our legislatures, legal system, and of course doctor education.

My Cauda Equina Syndrome started with my injury. Within 10 hours of the onset of my CES symptoms, I was in an Emergency Room in Westerville, OH. Upon waking on the morning of Feb 12, 2013, I found that I not only had the severe back and sciatic pain of the night before, but now I was NUMB from the waist down! I could not void my bladder nor defecate. I could not move my feet up ទាំង​នេះ 3nor down and without feeling in my feet and ankles, I could not balance. These are all classic symptoms of Cauda Equina Syndrome. Fortunately we had a wheelchair (and some adult diapers) and just after 10 a.m., I arrived at the ER in my wheelchair.

We had been told that this ER was fast and efficient, and it was close to the office of the physician who suspected Cauda Equina Syndrome and sent us to an ER (with specific directions to have an MRI done.) Immediately upon arrival at the ER, I was wheeled to an exam room and I transferred from my wheelchair to the exam table. My vitals were taken and the male nurse assigned to me came in for the initial assessment. He stood about 5' 4", អំពី 150 pounds, a pleasant. individual who began asking about my symptoms. With my mentioning Cauda Equina Syndrome, he asked if I was incontinent. I said, "No. I can't go!" He then asked me to stand up. I told him I couldn't. I knew I would fall right over, not because my legs wouldn't support me but because I had no balance. And I knew that his small frame would be overwhelmed by my 6 foot tall, 325 pound body. No way he can stop me from falling over if he doesn't prevent it to start with. I told him so, yet he insisted. The results were predictable. On standing up, I immediately began tilting (away from him, naturally) and over I went. The nurse could no longer stop it. The rolling chair in front of a fixed desk was in line with my movement. I was able to grab the back of the chair and as it rolled into the desk, it locked in and I was able to stop my fall. He asked me again if I was incontinent. I responded as I had before. That concluded the initial exam.

A short while later the nurse came back in. He told me that the ER doctor had ordered an MRI for me. The MRI machine was located at the other end of this Ohio Health Medical Campus and did not have an opening for me for almost 4 ម៉ោង. I had to wait, on that exam table, in pain, until then. The nurse did check on me a couple of times, one time bringing me a couple of replacement diapers as my bladder was so full it was leaking (I still couldn't go!) Thankfully, my wife had some snacks in her purse or I would have been without food for over 10 hours that day - not good for a diabetic! No one ever asked if I was hungry, even though I was there over lunch time. Around 2:15 p.m. the nurse came and took me to the MRI machine. As we wheeled in, I could see that the machine was an older type that was very small. I did not think I would fit. They told me the test would last about 45 minutes and that I needed to lie as still as possible (easy to do when you rate your pain at a 10 and you are not medicated - NOT). I was put into the machine and I did fit, ទោះ​ជា​យ៉ាង​ណា, as I tried to breathe,

The opening in a GE Signa MRI machine
The opening in a GE Signa MRI machine (Photo credit: Wikipedia)

I could not fully expand my chest to take in a breath. I could get no more than 1/2 a breath before the constriction of the machine prevented further expansion of my chest. After several partial breaths, I knew that I could not breathe this way for 45 នាទី. I told them so and I was removed from the machine - it was just a little too small. As I was wheeled back to the ER, the nurse told me about the larger machines and the open MRI machines in the area. He said, "We can get you into one of those. We'll see what we can do about that." I was returned to the exam table to wait. A half an hour passed with no one checking on me. Then the ER doctor arrived. He told me who he was and that he had been overseeing my care. He then asked me twice if I was incontinent. Again I responded with, "Not incontinent, I can't go!" Then he said, "You do NOT have Cauda Equina Syndrome. Since we are an Emergency Room and your case is not emergent, we can not refer you to an outpatient MRI facility. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, for a first available appointment. He can order an MRI for you." With that he was gone.

Shortly, a person came in and told my wife and I that 2 more people would be coming in, one with the discharge papers and another to wheel me out of the facility. អំពី 3:15, the woman with the prescription and discharge papers came in. The discharge papers said I should come back to the ER if any of my symptoms got worse OR if I developed any of these symptoms:

"Increased pain, abdominal pain, fever, difficulty controlling bowel/bladder, or any further concerns."

That was on one page of the instructions.

Another page stated this:

"YOU SHOULD SEEK MEDICAL ATTENTION IMMEDIATELY, EITHER HERE OR AT THE NEAREST EMERGENCY DEPARTMENT, IF ANY OF THE FOLLOWING OCCURS:

  • Loss of bowel or bladder control (you soil of wet yourself).
  • Weakness of inability to walk or user your leg(s) or arm(s).
  • Pain not relieved by pain medication.
  • Fever (temperature over 100.5 F) or shaking chills.
  • Severe pain that settles over one particular vertebrae (bone) in your back."

I laughed when I read these! Well as much as one can laugh while in the worst pain I've ever felt. I already had most of these return or get immediate attention symptoms!! The woman said that these were just generic discharge instructions for herniated discs and not specific to me.

Most medical literature states that decompressive surgery must be done within 24-48 hours or the outcome is far worse. Once those 48 hours are gone, you're pretty well going to wind up disabled for the rest of your life. So says the literature. I can tell you right now that that is not always the case as I'm living proof, but that is another story.

Other medical literature says that the surgery must be done within 6-12 hours to effect the outcome. Still other studies say that time to surgery doesn't affect the outcome. Why such divergence? Cauda Equina Syndrome is rare. No one knows exactly how rare, but my research of available estimates would indicate no more than a few hundred new cases a year in the U.S.

It ultimately took 2 weeks for my surgery to be performed. The surgery at Riverside Methodist Hospital in Columbus, OH went well, I went through Acute Rehab there for a week after the surgery. I then went through 15 sessions of Physical Therapy at NovaCare in Westerville, OH. My outcome is that I have some normal feeling again in my waist area somewhat in my thighs and in my shins. I have painful tingling in other parts of my thighs and in my feet. My calves are mostly numb unless pressed upon - then I can tell the leg muscles are cramped up, but the good part is that I can't feel the cramps. I do stretches several times a day for calves and hamstrings. I use vision for balance and the leg weakness has diminished, i.e. strength has returned, to the point where I can walk about 500 feet with a cane and about 125 feet unassisted. Bowel and bladder functioning is that they function, I just can't control them or tell when I have to go - I get surprises. I try to go on a regular schedule to avoid surprises and I can tell most of the time when my bladder is getting close to the leaking point. I get a minute or two of warning on bowel movements most of the time, but I don't generally feel them.

In other words, my delayed surgery should have left me disabled, in bed, cathing myself, and on pain killers. I work full time, am ambulatory over short distances don't need cathing, and am on mild, non-narcotic pain relievers. In short, my recovery has been great. One of the best. ទោះ​ជា​យ៉ាង​ណា, I still have a life of everyday being a physical challenge and struggle. That won't change, but that's okay (subject of another story.) I did a lot of wondering if I would have gotten back to normal, or almost normal, had I had surgery quickly, នៅ​ក្នុង 48 ម៉ោង. Feeling that the care I received from the ER doctor was negligent, I took everything to a Columbus, OH attorney. He called on another attorney in Cleveland, OH for a second opinion.

They both agreed that malpractice was committed, that the ER doctor "dropped the ball" as one of the attorneys put it. ទោះ​ជា​យ៉ាង​ណា, due to the standards for malpractice claims in Ohio, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (my really much better than predicted by the facts outcome) would be an insurmountable challenge in court. Since that is the portion that really drives the dollar amount of any settlement, and thus the attorney's fees, my remarkable, blessed recovery makes pursuing the malpractice and negligence of the ER doctor not feasible. If I had not pushed to recover, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, and will go through the rest of my life, amounts to nothing. Our legal system is such that only lucrative cases are pursued. And our medical system does not educate doctors, nurses, and first responders adequately nor does it keep them updated. Had the ER doctor realized that bladder retention and not only incontinence is an indicator, we would have been golden. The info regarding retention is widely available on the internet and in medical journals.

To discount the correct diagnosis on the basis of 1 symptom is not what I want in a doctor. I feel that justice has lost in this one. ទោះ​ជា​យ៉ាង​ណា, I am at peace with this as I relate in this post - My Blog Title Changed but Still About Cauda Equina Syndrome and Me.

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ចំណង​ជើង​កំណត់​ហេតុ​បណ្ដាញ​ផ្លាស់​ប្តូ​រ​ប៉ុន្តែ​នៅ​តែ​អំពី Cauda Equina រោគសញ្ញា & ខ្ញុំ

I have changed the title of my blog. Why? Not out of boredom or just liking change, much has happened since my last post. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... and His immediate purposes behind it.

My faith has seen me through this "Battle" with ជម្ងឺ equine Cauda (ពិព័រណ៍ CES) thus far, but I had no idea where my faith journey was heading. Yes, I wondered why this had happened, what God wanted me to learn and how I should view it. We all know that bad things happen to good people and good things happen to bad people. We always want to know why and often the answer we get is that we may never know why in this lifetime so we just have to live with it. I've heard a lot over the years about people with terrible injuries and diseases "fighting" or "battling" those things which seek to either ruin or take their life. Friends and relatives have been touched by, and some lost to, injuries or disease. Now it is my turn.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. God wanted so much more from me but I had succumbed to "The Rat Race" and devoted myself to my work. Don't get me wrong, work is important, but so much more had suffered. My relationship with my wife, my time and service to God and the joy was gone from my life. Through this time of a changed life, where the daily routine of getting up and going to work is a draining physical challenge for me, I've seen myself as battling CES as though my faith, grit and determination were being tested. While they were being tested, that wasn't all. My focus had been on recovering far more than the doctors and physical therapists ever thought I could, further than the medical research said I could. I was going to win my "Battle". I didn't, and don't, hold out the idea of a complete recovery but my goal has been to be able to walk without assistance again - a lofty goal for someone with CES.

It was my attitude that needed changing. I saw this as a challenge where my faith would see me through and coming out the other side of this I would give the credit to God. I would be a faithful soldier in His service. Nothing wrong with that, but... God wanted me. All of me. He has wanted all of me for a long time. I thought I had given myself to Him fully many years ago. He has used me in so many ways everywhere I've lived. But as I said, I had slowly slipped back in to taking His blessings and running with it for my own purposes without even considering His. My wife tried to help me see it, but I was too focused on my goal - which had been so out of reach and now, because of God's blessing, was within my grasp. My attitude had slowly changed and was no longer good. God's smackdown on me physically also affected me emotionally, mentally and spiritually as well. Eventually, everything was stripped away but the spiritual. I found that I had taken myself back from God and He was calling me to give myself completely to Him. Only this time, I understand there is much more depth in this commitment than I ever thought possible before.


In the Ohio derecho storms of June 29, 2012, we lost an old Ash tree that was 85 feet in length. Two men gave us a really good quote on cutting up the tree, removing the stump, and hauling it all away. They figured they could do it in 2 days, 6 hours a day . The stump was incredibly stubborn. Once they started on it, they found it had thick roots running out in all directions for many, many feet. It was too thick for their saws. They chopped at it with axes and worked 3 days from morning till dark. They even had another person come help. And still the stump remained. Finally they rented a stump grinder and did their best. That stump beat them badly for days. នៅ​ទី​បញ្ចប់, they accomplished what we needed leaving a small mound where the tree had been, ទោះ​ជា​យ៉ាង​ណា, there are still roots under that mound. And they had spent over 40 hours on the project. Their quote earned them less than $6 per hour.

That's how it is when I first gave myself "fully" to God. I saw what looked like full commitment and made that commitment. Over time, there was more and more revealed but I had my goals and dreams too and there was no time, no room, for truly giving myself to God as fully as He wanted. In time, I took back what I had given Him. Suddenly, this year, God changed all of that. Stricken with an injury that would change the rest of my life, taking away many of the things I wanted to do and accomplish, I now had time for Him. I've learned that He wants all of me, and I've made that commitment to Him. ឥឡូវ​នេះ, whatever recovery I have is fine with me. Of course being who I am, I will still be pushing for the best results possible. As with many whom God used in the past, He has place His mark of ownership on me - my CES. It is a reminder of whose I am, whose strength I depend on, and who has complete control of my life. We are not to give God a little, or even a large, part in our lives. He wants our whole life to be a part of His. He wants to live out His life through us. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. Not just our character, but character drives motivation, and out of motivation comes actions. God uses the events in our lives to transform us (Romans 12), and He transforms us into people who think, act, speak, and love just like Jesus. Why? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - look at how we Christians live! That isn't God's plan. Time for me to get with the plan. And I no longer fight CES, but it is a mark of ownership on me and of my commitment to God. So it is now "ជីវិត​របស់​ខ្ញុំ​ជាមួយ​នឹង Cauda Equina រោគសញ្ញា" and thus the new name for my blog.


 

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