Tag Archives: Lėtinė liga

Uodega arklių sindromas – Nenumatytos lengvata

I really didn't want to believe it...

Bet šiandien jis yra tam tikrų.

Praėjusią savaitę, Aš padaugėjo problemų su mano likutis. Now that really helps when I've also got a torn peroneal sausgyslė ant dešinės kulkšnies! Bet kokiu atveju, Ketvirtadienį vakare mano Uodega arklių sindromas rezervavimo ante - Aš išaugo skausmas mano dešinės kojos kulkšnies / (nervų skausmas, raumenų mėšlungis, įsivaizduojamas skausmas - visa tai).

ps21v14Taigi, įsivaizduokite mano nustebimą, kai vėlai šeštadienį, tiesiog prieš miegą, likutis grąžinamas kartu su žymiai sumažėjo skausmas!! Nuėjau miegoti galvoju, kad jis būtų laimingas atsitiktinumas. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Na sekmadienio rytą, skausmas vis dar buvo labai mažas. Mes nuvyko į bažnyčią ir grįžo namo. I waited for the pain to increase... Grįžęs namo iš bažnyčios sekmadienio vakarą buvau labai tikisi, kad nuolatinis pasikeitimas įvyko, bet vis tiek aš laukiau.

Pabudus ryte, mano kojų jaučiau, kad aš galėtų paleisti juos vėl, jei ne sausgyslės. Of course my legs wouldn't let me run anyway, bet ji jau per 36 valandos - pakankamai ilgas, pareiškiu, kad mano kojų skausmas dramatiškai pasikeitė į gerąją pusę. Visa tai tik po to, kai 1 metų ženklas. Iš tikrųjų, kaip aš po šio, rytoj ženklai 1 metų jubiliejų mano dekompresijos operacijos.

moving-forward-quotes253

I've also regain some feeling in the back (pakirpti sparnus) plotas mano kairės kojos - that's new feeling too! Taigi pažanga toliau. Dievas turi nuostabų jausmą laiko - tik tada, kai manote, kad reikia skatinti vienoje srityje, Jis suteikia jums paskatinimas kitoje. Ir tai paskatinimas pasiekia ir tęsiasi pati teisė į rajoną jums reikia eiti. Taigi, tai yra dvigubas palaiminimas! Ačiū, Viešpats!

Continuing the walk...

D.V.

Davidas

 

CES | Mėnuo 11 su uodegoje equina sindromas

Mėnuo 11 turi nuskraidinti (kaip turi Mėnesio 12 iki šiol, Taigi tai vėlai pranešimas).

.lies

Mėnuo 10 baigėsi kai kurių blogų dalykų vyksta mano asmeninio gyvenimo. Tai tęsėsi beveik visą mėnesį 11 taip pat. I was dealing with the feelings caused by my šeima member and also a friend. Iš dviejų, neveikia draugystė hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, bet trumpas, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, bet tai buvo taip seniai kažkas aš nusprendė, kad arti mano širdies padarė tokį dalyką.

 

.unknowingNenoriu draugystė suskaidytas, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; Tačiau tai nebus taip arti, kaip prieš ... aš ne už mano gyvenime, kai aš noriu pasitikėti melagiai pakankamai, kad būtų galima juos į mano ratas artimų draugų. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Kalėdos came and went during Month 11. We had a nice, quiet time - bet older man, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Padėkos & Kalėdos) visada buvo didelis šou, kuriame visi įdėti į kaukę ir gyveno iš melas, kad mes visi buvo normalus, caring family. The rest of the year told a different, sad story. I survived, bet nenukentėjo, by getting out. 2014 žymi mano 21g metus gyvena šimtus (kažkada tūkstančių) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, arba pasiimti ją aukštyn, Galiu suskaičiuoti ant vienos rankos pirštų, kiek kartų mano šeima aplankė mane tie 21 years. I, tačiau, aplankė juos bent keliolika kartų.

Dėl mano CES ...

Nors ėjau kaip Frankenšteinas ir negali jausti mano kulkšnys, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Aš žinojau, ką nors kitą, nei nervo skausmas Uodega arklių sindromas was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, bet tai nauji metai, with a new insurance deductible. And of course I’m on a high deductible plan (ne savo noru - tai visi mano darbdavys siūlo).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “elektros šokas"Įrašykite jausmus, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B yra vis dar problema, kad mano valdymo aikštelė (tai šlapimo pūslės & Žarnos, ne Lova & Pusryčiai).

Man buvo skatinami, kaip mėnesį 11 uždarytas, iš nedidelės grupės Biblijos studijos we’re doing in our home. Between that and studying for my CMA egzaminas vasario, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Turiu kitų projektų pora mano paruošto sąrašo, todėl aš ir toliau likti užimtas.

Ar mano Uodega equina sindromas įtakos visa tai? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Taip, Turiu blogų dienų, tiek fiziškai, tiek emociškai - tikiuosi ne tiek tuo pačiu metu! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, puoselėjo mane, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, tačiau tai, ką nuotykių aš esu!

CES | Mėnuo 9 su uodegoje equina sindromas

Mėnuo 9 nuėjo į istorijos knygas apie 11/11. Aš ir toliau turi pagerinti simptomų mano Uodega arklių sindromas. Mažiau mano kojos yra visiškai nutirpęs dabar, su apie kitą 10% iš nutirpęs sričių atgauti Tingly jausmas virš mėnesio kursą. Savo kojų nuosėdos jaustis mažiau skausmo, mažiau, kaip jie vaikščioti ant armatūros (http://wp.me/p3A64Y-6Y) ir daugiau kaip normalus. Į viršų jį išjungti, mano kojos tampa vis stipresnis.

Dėl grįžta į Lancaster, mes pakeitėme pirminės sveikatos priežiūros gydytojai (vėl) ir nauja siūloma naudojant padų fascitas boot padėti mano pėdos nervai sugriežtinti naktį. Kai aš keltis ryte, mano pirštai išlenda į dešinę žemyn ir užtrunka šiek tiek laiko vaikščioti ištiesinti juos. Su nervo, kad eina iš mano didįjį pirštą aukštyn per čiurnos (the bendra peroneal nervų, Manau,) griežtinimas, Tai daro atsižvelgiant normalų ilgio žingsnis mano kairės kojos sunkiau. Tai yra todėl, kad dešinės kojos nebus lankstyti aukštyn pakankamai. Taigi tai suteikia man šlubuoti arba valcavimo judėjimo tiek mano eisena.

Total Knee replacement : AP view (Xray).
Iš viso kelio sąnario pakeitimo operacijos : AP vaizdas (Xray). (Nuotraukų kredito: Vikipedija)

Pastaruosius pusę mėnesio 9 ruošėsi mano žmonos kelio sąnario pakeitimo operacijos. Ji buvo skausmas gana ilgą laiką. Skausmas buvo išlaikyti savo atsibunda naktį. Tai buvo gauti per daug duoti ir gauti operacija padaryta nusveria trūkumus. Taigi pamatę labai rekomenduojama chirurgas ortopedas, lankyti klasę (Aš turėjau eiti į jį per), ir įtikinti sveikatos priežiūros specialistus, kad aš mano cukranendrių galėtų rūpintis savo, chirurgija buvo nustatytas 11/13.

Mes ruošiasi pradėti naują tarnystę bažnyčioje & bendruomenės, kuris yra pradėjimo daug mūsų laiko priemonė. Mes padarėme keletą gyvenimo būdo pakeitimus, arba tiksliau, mes padarėme pakeitimus, kas turi prioritetas mūsų gyvenime. Mes busier nei mes jau ilgą laiką, dar turime laiko ir energijos naujų dalykų, kaip sena imtis mažesnę vietą mūsų gyvenime. Mes tikimės, kad Mėnesio 10 su tikintis mano žmonos operacijos ir atsigavimo. Mes tikimės, kad jos atleidimo nuo skausmo ir daugiau jausmas grįžta mane. Nors tik vienas iš tų, yra didelė tikimybė, imsimės ką duoda Dievas ir džiaugtis juo. Mėnuo 9 buvo geras.

Sustiprinti pagal Zemanta

CES | Mėnuo 8 su uodegoje equina sindromas

ces awarenss wristbandMano 8d month with Uodega arklių sindromas is in the books now and what a month! We moved back to our old house on Sep 6d and began the process of unpacking. Aš paėmė laiko ne Nuo rugsėjis 6 - 15 , kad galėčiau padėti stebėti judėti (o gal net padėti šiek tiek.) We’ve been taking it slowly, metering our energy and pain levels out. My wife and I enjoyed our time together immensely. We did our devotional times together and then discussed it in depth, often spending an hour or more a day on it. We found out that there is a lot of truth in the statement, “The closer a couple gets to God, the closer they get to each other.” We had a great time of reconnecting in a relaxed atmosphere. We sure needed this time!

Just prior to the end of Month 7, I reached a low point in battling CES. The long days of physical challenge, the emotional toll, and the strain on my wife as well came to a head. Aš nežinojau, tai tada, but God was preparing me for what was just days away. He broke me down completely as I spent several hours one night, sobbing and crying out to Him. I was looking for answers and understanding. Eventually, I was spent physically, emotionally, mentally and spiritually. Then there was nothing. No prompting, no comfort, no answers. I fell asleep.

Blessed be your nameImmediately upon waking the following morning, I knew God had answered. His peace was on me like never before and I felt His comfort wrapping me. Not a in a physical sense, but just knowing, throughout my being, that He had heard and was showing His love for me. It changed my outlook on life, my Cauda Equina Syndrome, and much more. I even changed the title of this blog. You can read more about it here - http://wp.me/p3A64Y-7V

During the study my wife and I were doing together after moving, each of us (separately) came to a realization that we had slowly taken back our lives from God and that He was calling us back to fully committing to Him. We explored the depth of that commitment because it was clear that it was far more than we had ever considered it to be. As we each pondered it that day, the Word sank in. That evening, I told my wife that I had decided to go all in – yielding my life to God for His purposes. She had made the same decision. We rejoiced together.

In Month 8, I also came to the end of the road for legal action regarding my Cauda Equina Syndrome. I had 2 separate law firms look at the case for a possible malpractice claim. Both attorneys say that without doubt there was medical malpractice committed on me. Tačiau, under Ohio law, the “value” of a medical malpractice case is determined by how much better your outcome would have been if the malpractice made a difference. I have been very blessed by the Lord in my recovery thus far. Most who are afflicted with Cauda Equina Syndrome are left mostly or totally disabled for the rest of their lives – dealing with pain, numbness/lack of feeling, bladder and bowel problems and sexual dysfunction.

I’ve pushed hard since my surgery, spending a week in Acute Rehab at the hospital then 2 months of outpatient Fizinė terapija. I’ve done my stretches and exercises faithfully. I willed myself back to work and worked through pain for several months. My recovery, by objective standards, has been remarkable. My prognosis at the time of the surgery was in the worst possible outcome category due to the malpractice and delay in diagnosing and treating the CES. God fooled them all. I still have all of the above problems, but they are quite manageable with proper treatment and sensible limitations on my activities. I’m in the top 5% of outcome possibilities. So you can see that had the malpractice not occurred, my actual outcome wouldn’t be much, if any, better than it has been. Legally, that means the malpractice didn’t matter. I will be dealing with these symptoms and restrictions for the rest of my life but because I am doing better than I should, it isn’t worth anything. You know what? I’ll take my recovery over having done poorly enough to have a good malpractice case – ANY DAY!!!

The week after my wife and I committing and yielding fully to the Lord was one of great spiritual attack upon us. Everything that could go wrong did, 10 times over it did. And then some! I’ve never seen anything like it in my 55 years. We were so overwhelmed with PROBLEMS that arose with everything, from fighting with an unscrupulous business, to insurance issues with health, home, life and auto insurances, to mail going missing (it took one important letter 20 days to make it 40 miles), pharmacy orders disappearing in transit (and unable to reach anyone in the company to fix it), to car problems, and much, much more!

Pirma, we fell back to our old ways and began to feel overwhelmed and angry. But God wasn’t going to let us go back to what we were. He showed us that it was a spiritual attack and calmed us with His comfort. You know what, He was right. None of it surprised Him, He has our lives so He can do whatever He wants with them, and the result was amazing. We put out a prayer request and many people from all over the country prayed. We were protected and the attacks ceased.

In the rest of Month 8, I’m now commuting 100 miles a day, round trip. I can make the trip in to work in just 45 protokolas. Tačiau, the trip home takes about 65-75 protokolas. In the old days (last month), I would have worked myself up in a tizzy with Road Rage in that time! Dabar, God is in control of when I get to work and when I get home. I just enjoy talking with Him and being courteous to the other drivers who are desperately frazzled. I used to pride myself on my “excellent” driving skills allowing me to move through traffic quicker than others. Now I drive to help others, even though they won’t often know it. And I get a much bigger charge out of the new way!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Nuotraukų kredito: Vikipedija)

In summary, at the end of Month 8, life is good. It certainly isn’t what I would have designed or wanted from the individual aspects. But the whole of what God has made of my life and done in me with His relationship with me, is great! I love my wife more than I ever knew one could love. And the love for my Christian family has multiplied many times over. My life is now focused on how I can help others as I go through life knowing that God’s desire for me is to become, in words, mintys, and actions, an extension of Jesus. When others interact with me, they must see Jesus and His love for them. This is what drives me now. It is what should drive all who call themselves Christians. Charles Spurgeon once said, Every Christian is either a missionary or an imposter.” Which are you?

Mėnuo 8 = more normal feeling, more changing of tingly not painful into tingly painful (this means movement towards normal feeling), and better bowel & bladder activity. I was told the nerves would regenerate for a year with most of the regeneration occurring in the first 6 mėnesių. I’d had no significant changes since Month 2. Maybe I was too busy fighting Cauda Equina Syndrome rather than living with it. I’m not going to say that this is a reward from God for yielding to Him because I don’t believe He operates that way. He loves us all and wants us all to trust in Jesus, first for salvation and secondly for life. All that He allows or causes in our lives are to bring us to those two goals – first to rely on Jesus’ death in our place as the only way we can have a right relationship with Him and live with Him in Heaven one day. Once we have done that, God focuses all of His resources towards us to make us into images of Jesus – we are molded to have kind and loving words like Jesus, have gracious and generous thoughts like Jesus, and not WWJD (What Would Jesus Do?) but WDJD – What Did Jesus Do? How did He act with love for others and for the Father? Not what we think He would act like regarding something today, instead acting out of His love in ALL things.

What a month! What a life! Thanks for reading, my family, my friends, and my extended family in His Spirit.

Sustiprinti pagal Zemanta