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Atnaujinimas – 18 Mėnesių prieš… Mano kelionė su uodegoje equina sindromas Pradėjo

18 Mėnesių atgal ...

Vasario 11, 2013, Aš niekada girdėjote apie Uodega arklių sindromas (CES). Tai pasikeitė kitą dieną. Tai labai diena, 18 mėnesių prieš, Aš pabudau be žemiau mano juosmens jausmas. Kažkas labai negerai vyksta su mano kūno! Aš nežinojau, tai tada, bet aš pradėjau savo kelionę, vadinamą Uodega Uodega sindromas.

Apie šį dienoraštį aš kronika pirmus metus toje kelionėje. Man buvo labai palaimino mano atsigavimo, ypač atsižvelgiant į tai, kad ėmėsi 14 dienų, kad mano dekompresijos operacija, o ne turintys bet jausmas žemiau mano juosmens. Aš ne padengti, kas buvo parašyta prieš detales, tačiau šis atnaujinimas suteikia greitą pažvelgti mano pažangą nuo vienerių metų ženklo.

Daugelis neurochirurgai ir kiti gydytojai sako, kad nervų regeneracija atsiranda tik už 12 mėnesių, o kiti sako 12 - 18 mėnesiai yra laikas, per kurį ką gijimo nutiks nutinka. Mano kineziterapeutas man pasakė, 18 - 24 mėnesių. Aš nežinau, jei tai yra "Fronto" informacija ar ji tiesiog bando motyvuoti man labiau, nei aš jau buvo.

Man, mėnesiais, nes mano 1 metų jubiliejų buvo sudėtinga nežymius regresijos - bet, Aš vis dar matau spurts reikšmingas regeneracijos procesas. Aš per dažnai nervo skausmo laikotarpiu mano dešiniaja koja viršuje. Tai atrodė apsunkina mano vakaro važinėti, kuris paprastai yra aplink 1 valanda 10 protokolas. Paskutinis 10 - 15 minučių diską norėčiau gauti "elektro-šoko" jausmas, kad pažįstami iš kitų kūno dalių anksčiau mano atsigavimo.

Tai buvo toks skausmingas, aš beveik tapo pavojinga vairuotojui. Aš vėl nukrito ant mano skrydžio mokymo įgūdžių - ABC - Valdyti orlaivį (Fly plokštumoje, šiuo atveju, vairuoti automobilį - įsitikinkite, kad jums nereikia paleisti į ką nors ar kažkas), Vykti (Nesupraskite prarastas ir už automobilį, tai reiškia, įsitikinkite, kad jums nereikia praleisti valandėlę, kai išsiblaškęs posūkis), Bendraukite (Į orą, mes norime gauti pagalbos iš kontrolierių ant žemės, automobilyje, tai tiesiog reiškia Comfort - pabandyti rasti poziciją, kur skausmas išnyks. Šie skausmai man paliko maždaug prieš mėnesį. Kaip jie paliko, jie pateikti man su išvykstate dabartį daugiau jausmas mano kojų. Aš dabar tik sutrikusi jausmas ½ - ¾ colio juosta aplink mano kojų, pradeda apie ½ colio virš kojų nuosėdos (mano pirštai neįtraukė, nes jie turėjo jausmas tam tikrą laiką.)

Mano kojos buvo jausmas grįžti išskyrus kojų nugaros ir vidinės dalį sėdmenų, bet tik mažesnis ½, kad ir atitinkantis priekinis plotas. Tai taip pat yra neseniai tobulinimas. Dabar aš galiu vaikščioti be pagalbinių prietaiso per 100 pėdų, bet mano kojos ir klubų yra visiškai išnaudotos žvejybos pastangos ir yra vidutinio sunkumo skausmo pabaigoje. Bet aš gerinti, lėtai, bet užtikrintai, Aš ir toliau stiprinti ir gerinti.

Aš vis dar negaliu stovėti daugiau nei 20 - 30 sekundžių, nei sėdėti ilgiau nei valandą be problemų. Tai riboja mano galimybes keliauti ir skaudžiai praleistus (ne kalambūras skirti.) Aš nuolat stumia pagerinti. Jei aš ne, Aš nežinau, kiek aš galiu pagerinti. Taigi aš dirbu visą laiką, su 2 valandos nuskristi važinėti laikas. Ir aš vaikščioti, kai tik galiu, į negalės, bet daugiau klausimu. Iki to laiko aš namo aš išnaudotos. Aš vis dar turėjo atlikti operaciją dėl suplėšyti sausgyslė mano dešiniaja koja.

Nepaisant, kad, Dievas leido man gyventi mažas grupes ir klases bažnyčioje. Esu tikrai palaimintas. Nė vienas iš mūsų, kurie kenčia su CES nori likti, nes mes esame. Mes išmokti susidoroti su traumų ir mes kovoti įveikti kuo daugiau jos veikia, kaip įmanoma. Tai lengva apsižvalgyti, matau žmones, kurie nevertina paprastą veiksmą, kad galėtų vaikščioti. Arba paleisti. Arba stovėti kelias minutes. Arba kelionės 6 valandos apsilankyti su senais draugais ar daug kitų dalykų. Pažvelgus jie bus tikrai sukelti pralaimėjimo, depresija, ir spirale žemyn. Pažiūrėkite, ką mes galime atlikti vietoje! Gyvenimas yra kitoks, ne daugiau kaip. Tai nėra teisinga, bet tada mes žinome, kad ilgą laiką. Aš pasirinksiu tegul mano negalios stiprinti man, o ne apibrėžti man. Aš iššūkis jums pasirinkti tikslą ir dirbti už jį!

 

CES | Mėnuo 11 su uodegoje equina sindromas

Mėnuo 11 turi nuskraidinti (kaip turi Mėnesio 12 iki šiol, Taigi tai vėlai pranešimas).

.lies

Mėnuo 10 baigėsi kai kurių blogų dalykų vyksta mano asmeninio gyvenimo. Tai tęsėsi beveik visą mėnesį 11 taip pat. I was dealing with the feelings caused by my šeima member and also a friend. Iš dviejų, neveikia draugystė hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, bet trumpas, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, bet tai buvo taip seniai kažkas aš nusprendė, kad arti mano širdies padarė tokį dalyką.

 

.unknowingNenoriu draugystė suskaidytas, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Eventually, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; Tačiau tai nebus taip arti, kaip prieš ... aš ne už mano gyvenime, kai aš noriu pasitikėti melagiai pakankamai, kad būtų galima juos į mano ratas artimų draugų. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Kalėdos came and went during Month 11. We had a nice, quiet time - bet older man, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Padėkos & Kalėdos) visada buvo didelis šou, kuriame visi įdėti į kaukę ir gyveno iš melas, kad mes visi buvo normalus, caring family. The rest of the year told a different, sad story. I survived, bet nenukentėjo, by getting out. 2014 žymi mano 21g metus gyvena šimtus (kažkada tūkstančių) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, arba pasiimti ją aukštyn, Galiu suskaičiuoti ant vienos rankos pirštų, kiek kartų mano šeima aplankė mane tie 21 years. I, tačiau, aplankė juos bent keliolika kartų.

Dėl mano CES ...

Nors ėjau kaip Frankenšteinas ir negali jausti mano kulkšnys, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Aš žinojau, ką nors kitą, nei nervo skausmas Uodega arklių sindromas was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, bet tai nauji metai, with a new insurance deductible. And of course I’m on a high deductible plan (ne savo noru - tai visi mano darbdavys siūlo).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “elektros šokas"Įrašykite jausmus, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&B yra vis dar problema, kad mano valdymo aikštelė (tai šlapimo pūslės & Žarnos, ne Lova & Pusryčiai).

Man buvo skatinami, kaip mėnesį 11 uždarytas, iš nedidelės grupės Biblijos studijos we’re doing in our home. Between that and studying for my CMA egzaminas vasario, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Turiu kitų projektų pora mano paruošto sąrašo, todėl aš ir toliau likti užimtas.

Ar mano Uodega equina sindromas įtakos visa tai? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Taip, Turiu blogų dienų, tiek fiziškai, tiek emociškai - tikiuosi ne tiek tuo pačiu metu! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, puoselėjo mane, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, tačiau tai, ką nuotykių aš esu!

Uodega equina sindromas sukelia daugiau žalos

Sometimes it just doesn't seem to end.moving-forward-quotes253

Kadangi turėjau nervų atauga po padarytą žalą mano uodegoje equina sindromas, I was able to feel a pain in my right ankle that wasn't like the pain in my other ankle nor the other side of my right one. Aš jį patikrinome prieš Kalėdas. Dr. sakė, kad jis manė, kad tai buvo suplėšyti sausgyslė & užsisakiau nervų laidumo testą (Siekiant nustatyti, kiek nervus vis dar egzistuoja) ir dėl šios teisės kulkšnies MRT. Bandymai buvo atlikti iš karto po Kalėdų.

Grįžau vakar į gydytoją, kad gauti rezultatai. Niekada sugadinti - dar daug; sausgyslė - suplėšyti, ir blaškosi taip, kad tik nustatyti jį bus chirurgija. Na mes tik pradėjome naujus metus, kad operacija būtų iš kišenės sąskaita. Ne problema, jei yra kažkas į kišenę. Po 4 operacijų ir reabilitacijos pernai tarp Kim ir aš, kišenės yra plikas. Taigi, mes turime pasitikėti Dievu suteikti šią. Jokia nuostata = nėra operacija.

blessings-healing-mercies-lauras-story-song-lyrics-the-positive-pear1So I'm wearing a brace and have order to take it easy. Dr. parodė man judesius Aš esu neleisti mano koja padaryti, kartu su kai kurių veiklos apribojimų (kurių dauguma aš negaliu to padaryti vistiek dėl uodegoje equina sindromas). Jis sakė, kad jei ji tampa per daug skausminga ar turiu daugiau blogų dienų kaip geras, tai bus laikas veikti.

Tada yra atsigavimas - ne svoris guolis mesti už 3 dienos, vaikščioti mesti už 3 daugiau savaičių, prilaikant boot dar 3 daugiau savaičių po kineziterapijos. Dabar tai tik ne į korteles.

Kaip tai susiję su mano uodegoje equina sindromas? The inflammation of my superficial peroneal nerve restricted how far upwards I could bend my right foot, todėl, kai atsižvelgiant žingsnis į priekį su savo kaire koja, šis apribojimas nuolat mano kulkšnis nuo lenkiantis pirmyn taip, kaip turėtų. Once it hit that point, jis būtų "ritinys" į išorę (teisė) pusė čiurnos. This caused a lot of motion in bad ways on the tendon, galiausiai sukelia ašarą.

Taigi toliau mes einame. So far this has affected the speed and length of my walking. We'll see what else it affects. But in this, ir visų dalykų, my wife and I trust God's plan for us. And we praise Him and continue to walk, nors ir lėčiau, su juo šioje kelionėje.

 

CES | Mėnuo 10 su uodegoje equina sindromas

CES | Mėnuo 10

Mėnuo 9 atėjo į pabaigą su mano žmona ir aš rengiasi savo kelio endoprotezavimo operacijos. Buvome gerai pasirengę. Tada, kaip su pakrantės gyventojas jojimo iš uraganas, jis trenkė.

Mes atvyko į ligoninę anksti ir patikrinta ne 6:59 a.m. Ji buvo nuvežta į iš anksto-op ne 8 a.m., 30 minutes late and the snowball started rolling. They took her to surgery at 9:49 and surgery actually started at 10:23 – now some 53 minutes behind schedule. Why is all of this important? I have Cauda Equina Syndrome and sitting, especially in uncomfortable chairs, takes a toll on me.

I had to get up and walk around every so often then sit back down, as neither is a good long term proposition for me. I was hurting more with each passing minute. Į 11:43, my wife’s surgery was done and she went to recovery. I spoke with the surgeon and then went to wait some more.

I got a couple of calls on my cell phone from a recovery room nurse explaining that my wife was slow in being able to move her good leg. They had done a spinal block for the anesthesia rather than a general. After the block, she would have to stay in recovery until she could move legs, pėdų, and sets of toes. I hunted down the cafeteria to get some food. After a long walk, I found it.

The food wasn’t bad at all. I sat, resting my legs, until my butt & lower back began hurting again. I dreaded the long walk back to the waiting area, but I had to walk again, so off I went. I actually stopped along the way to give my hips a rest. Walking tires out my leg muscles, particularly my hips, very quickly. I’ve been doing strengthening exercises, but haven’t seen much improvement in several months.

Arriving back at the waiting area, I sat down again for the wait. Just before 3 p.m., they called me to the front desk and advised me that my wife was leaving recovery for her room. Off I went, slowly but surely… down the hall to the next section of the hospital, up the elevators, then down a couple of more halls to her room. On the verge of needing to sit down again, I arrived at her room. There was no name plate on the wall by the door but I entered anyway. Nothing but 2 chairs and a nightstand were there. On the whiteboard, no patient, nurse, or tech names were written. Did I have the right room? Just then, a nurse came in and asked if I was in the right place. I thought of several pain induced sarcastic remarks but quickly quashed those, instead saying, “I guess I beat her here.” The nurse left.

My wife did arrive shortly, and 1 of the chairs was an ortho chair, which type one of my techs during my stay at this hospital earlier this year due to my CES surgery had swiped from this floor to let me sit in. I was very pleased with this because they are comfortable. At last, a comfy chair! In comes my wife’s nurse and tech, along with the social worker. I thought I recognized the tech. When he said his name, Randall, I knew! He had been my tech 9 months earlier. He thought I looked familiar too when I asked him if he had worked on another floor 9 mėnesių prieš. He still works the neuro floor but does extra shifts on the ortho floor for some overtime.

My wife’s pain was not well controlled the first 24 hours after surgery so she had to stay in the hospital for 2 nights instead of the planned 1. During this time, my pain was not well controlled either. The morning after surgery, I got out of bed and hurt so badly that I really didn’t want to move. Then I had to go to work… ugh! The next day, I got to pick my wife up and bring her home – Oh Happy Day! Then it was waiting on her, which was nothing like what she had to do while waiting on me earlier in the year! But I didn’t get much rest for a few days and I was in a lot of pain. I felt like I had 4 or 5 months earlier.

Slowly I she and I both recovered. After about 2 dienos, her recovery accelerated and by the end of 4 dienos (also the end of Month 10 of my CES), she was ready to start driving again. Only in the last week did my pain subside, in part due to Thanksgiving.

Central Ohio was visited by a snow storm just before Thanksgiving. With this being the first snow for our Elantra, I didn’t know how well it would do. I had it parked in the garage which requires a climb up a moderately steep hill for 70 pėdų, then a 70 degree right turn, followed by another 40 feet of steep hill to get to our street. Our former ride, a 2010 Prius, made that in 4 inches of snow with no problem… not so the Elantra. To be fair, the Prius had high end Michelin all weather traction tires on it. Since we’re not worn out the OEM tires on the Elantra yet, we’ve not replaced the tires so this isn’t necessarily a fair comparison. Bet kokiu atveju, the Elantra couldn’t quite make it to the turn in the driveway… I was stuck. My wife’s ’98 Caddy was parked in front of the house with a straight shot up the last section of driveway, except her sister had parked it straight in instead of backing it in – no way to get it out until the driveway thaws.

So, being ever so adventurous, I decide the next day to walk down the driveway to get our snow shovel out of our outbuilding. Yep, you guessed it, I slipped and fell. In the process, I injured my back. At first it seemed to be just muscle. After a day or so, it seemed like a disk bulging but not rupturing. Lots of heating pad time and rest helped my back return to normal. After all of this adventure, I feel better and with less pain than when the month started.

I had pain in the right superficial peroneal nerve since my Feb injury. Not really raw pain but a tightness, in the front part of my ankle. When walking and stepping forward with my left foot, if I stepped too far the nerve would bend no further and my ankle would roll to the right. Very disconcerting and painful. Last week my ankle gave a loud “pop” and the tightness and pain went away. Evidently the swollen nerve is continuing to decrease and did so to the point where it broke free of its impingement. Good. Very good.

Spiritually this month was a learning and testing month. Everything encountered in Month 10 was a challenge to some aspect of my surrender of everything to God in Month 9. I was pondering, for a time, the regression of my symptoms. I had my schedule overloaded. I was hurting and tired. A family member turned his back on me after I had been his biggest supporter while he was growing up. My crime against him was telling him some things he was saying weren’t true and I didn’t want him spreading falsehoods because it would make him look less intelligent. He told me off and cutoff communication. I also felt the sting of dishonesty from a friend. Those who know me know that honesty is an absolute with me. I give it and expect it. While I know that most people engage in what they consider small lies to their friends, it is extremely NOT a small matter with me. In this case, I'm sure they thought nothing of it, not even aware they did it... nor of how my discovery of it would affect me. My asking God to teach me to have more grace is being answered through this, but it is definitely not the way I would want to develop more grace.

In the end, physically I end Month 10 doing better than last month. Life is becoming still busier, and that is good due to what is making it that way. Emotionally & spiritually, I’m battling through the emotional aspects of actions by my family member and my friend. I have always been one for reconciliation but these will be difficult. So on to Month 11! Coming up on a year, and I think coming up on an end to the posts on this blog. My battle with CES turned into my life with CES, which has mostly pushed CES into the rearview mirror. Taip, I still have it. Taip, it affects me every day. Taip, it will still do so for the rest of my life. But I’ve come out of my encounter with it. It is God’s mark of ownership on me and I’m growing used to it being here. Its impact on me has been to drive profound and beneficial changes in me. That drive is coming to an end and soon it will be parked by the house, around but not used, destined to become a rusting old junk heap with weeds growing up around it. Yeah, that’s a good place for it.