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ажурирање – 18 Месеци наназад… Моето патување со синдром на кауда еквина Почна

18 Months Ago…

On Feb 11, 2013, I had never heard of Cauda коњски синдром (CES). That changed the next day. This very day, 18 месеци наназад, I awoke with no feeling below my waist. Something very wrong was going on with my body! И јас не ја знам тогаш, but I was beginning the journey called Cauda Equina Syndrome.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, especially given that it took 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Many neurosurgeons and other physicians say that nerve regeneration only occurs for 12 месеци, while others say 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 месеци. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

За мене, the months since my 1 year anniversary have been challenging with some minor regression – but, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, which is usually around 1 час 10 минути. The last 10 - 15 minutes of the drive I would get the “electro-shock” feeling so familiar from other body parts earlier in my recovery.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Fly the plane, in this case, drive the car – make sure you don’t run into someone or something), Navigate (Don’t get lost and for the car it means make sure you don’t miss a turn while distracted), Communicate (In the air, we’d get help from controllers on the ground, in the car, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ inch band around my foot, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 нозе, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, slowly but surely, I continue to strengthen and improve.

I still cannot stand for more than 20 - 30 секунди, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, with 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depression, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and work for it!

 

А Реал Туш додека живеат со cauda equina синдром

Cauda Equina Syndrome Finally Singing in the ShowerI've reached another milestone! This week I was able to take a full shower while standing!

That doesn't sound like a big deal to some, но за нас, кои се занимаваат со cauda equina синдром стои за било должината на времето не е опција. One of the things CES takes from you is leg strength. Even if feeling returns, сила не може. So to stand in the shower for the few minutes it takes to shower, и додавање на физичкиот напор на туширање, е голема пресвртница за мене!

One letdown though is that it did take so much strength that I can't do it every day, or even most days... уште. But the future is before us and we shall see what it brings, но сега за сега не можам да ров туш седиште. I am currently passing Month 13 со CES, so I've really got to get busy on my Month 12 и месец 13 извештаи! Hope to have them up this weekend.

Cauda коњски синдром – Непредвидени олеснување

I really didn't want to believe it...

Но, денес тоа е сигурно.

Минатата недела, Јас се зголеми проблеми со мојата рамнотежа. Now that really helps when I've also got a torn peroneal тетива на десниот глужд! Како и да е, Четврток вечер ми Cauda коњски синдром покренато на ante - Добив зголемена болка во десната нога / глуждот (нервна болка, грчеви во мускулите, имагинарни болка - сето тоа).

ps21v14Значи замислете мое изненадување кога доцна во сабота, само пред спиење, рамнотежата врати заедно со голема мера се намали болката!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

И недела наутро, болката сеуште беше многу ниска. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, но сепак јас чекав.

При будење ова утро, моите нозе чувствував како да сум би можеле да работат на нив повторно, ако не за тетива. Of course my legs wouldn't let me run anyway, но тој сега е над 36 часа - доволно долго за да се изјасни дека мојата нога болка е драматично променета на подобро. All of this just after the 1 години марка. In fact, како што јас ја објавите оваа, утре се одбележува 1 годишнината од моите декомпресија хирургија.

moving-forward-quotes253

I've also regain some feeling in the back (тетивата) областа на мојата лева нога - that's new feeling too! So progress continues. God has a wonderful sense of timing - Токму кога мислите дека ви е потребно охрабрување во една област, Тој ви дава охрабрување во друга. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Ви благодарам, Господ!

Continuing the walk...

D.V.

Дејвид

 

CES | Месец 11 со cauda equina синдром

Месец 11 има пренесен од страна на (како има месец 12 досега, на тој начин оваа доцна пост).

.lies

Месец 10 ended with some bad things happening in my personal life. These continued through most of Month 11 as well. I was dealing with the feelings caused by my семејство member and also a friend. Of the two, скршени пријателство hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, но кратко, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, но тоа е толку долго, бидејќи некој што смета дека блиску во моето срце има направено такво нешто.

 

.unknowingНе сакам пријателството растурени, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. На крајот, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; сепак тоа нема да биде како блиски, како пред ... Јас не сум во точка во мојот живот, каде јас сум подготвен да му верувате на лажговци доволно да им се дозволи во мојот круг на блиски пријатели. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Божиќ came and went during Month 11. We had a nice, quiet time - но оlder да се добие, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Денот на благодарноста & Божиќ) секогаш беа големи шоуа, каде што секој се стави на маска и живееле надвор лага дека сите бевме нормални, caring family. The rest of the year told a different, sad story. I survived, но не неповреден, by getting out. 2014 означува мојот 21ул година на живеење стотици (некаде илјадници) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, или ја земам, Јас може да смета на прстите од едната рака колку пати моето семејство ме посети во тие 21 години. I, сепак, ги посетија најмалку десетина пати.

На мојот CES ...

Додека одев како Франкенштајн и не можат да се чувствуваат моите глуждови, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Знаев нешто друго од нервна болка на Cauda коњски синдром was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, но тоа е нова година, with a new insurance deductible. And of course I’m on a high deductible plan (не по избор - тоа е за сите мојот работодавец понуди).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “електричен шок"Тип чувства, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. Б&Б е уште едно прашање што е потребно многу за управување (тоа е мочниот меур & Дебелото црево, не Кревет & Појадок).

Јас сум бил охрабрен, како месец 11 затворена, од страна на мала група Проучување на Библијата we’re doing in our home. Between that and studying for my ЦВА испит во февруари, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Имам неколку други проекти на мојот подготвен список, па јас ќе продолжи да остане зафатен.

Дали мојот cauda equina синдром влијае на сите на овој? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, Имам лоши денови, и физички и емотивно - се надевам не и двете во исто време! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, мене негуваат, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, но она што авантура Јас сум на!