Happy New Year to Cauda Equina Syndrome Sufferers!

I'd like to wish each of you a Happy 2014!

In 2014:

May you not get Cauda Equina Syndrome if you do not already have it!

May your symptoms decrease and your quality of life increase.

May you come to terms with how your body fails you.

May you once again know some of the things Cauda Equina Syndrome has taken.

May you have knowledgeable physicians.


Here's to a great 2014 to all of you in the CES community who are serving those newly diagnosed and educating health professionals in order to keep others from joining our exclusive club.

Best wishes!


Collateral puas tsuaj los ntawm Cauda Equina Syndrome

Walk This Way...

Raws li paub los ntawm kev coj, los yog paub txog ib tug neeg muaj, Cauda Equina Syndrome, nws ua ib mockery uas koj walking los tus moj yam. I've described myself as walking like Frankenstein. Tam sim no los tshiab, kev lom zem uas CES tau.

Lawm muaj pib rov qab mus rau sab ntawm kuv qij taws. Thaum nws muaj, I've noticed a different type of pain on the outside of my right ankle. Kuv tus poj niam saib nws thiab hais tias muaj ib qho bump muaj.

broken ankle side x-ray
Jared Zimmerman / Foter.com / CC LOS-NC-ND

Thaum xub thawj, Kuv xav tias kuv txhais khau yuav tsum tau muab tshuaj ntxuav kuv. Tab sis, nyob hauv ib lub menyuam pob zog. Muaj ib tug sawv ntxov, ua ntej kuv txhais ko taw o wv nruab hnub, Yog luag tsis hnov mob ntshe yog kov raug. Raws li tus taw o kuv txhais khau chwv hauv ib lub menyuam pob thiab nws tau progressively heev txog rau hnub no txawm kuv tus mob meds. Nws cov kab tawm heev thaum txog lub 3 thiab yuav pab tau kuv tus moj yam.



Kuv tau mus ib pab no sawv ntxov. Yog paub - tam torn leeg. Qhov no "nodule" yog vim dab tsi tshwm sim los ntawm tus mob no yog. Surprise, surprise! Tus kws kho mob tau CES yeej paub thiab paub heev kuj nce mentsis txog nws.

Tu tom ntej, ib qho MRI kom paub meej tias paub thiab muaj lub paj conduction kuaj seb hais txog kuv cov tsuaj paj nyob rau sab extremities.

Cauda Equina Syndrome - qhov khoom plig uas yuav mus muab!

CES | Lub hli 10 cov Cauda Equina Syndrome

CES | Lub hli 10

Lub hli 9 tuaj ib kaw nrog kuv niam thiab kuv npaj tau rau nws lub hauv caug hloov phais. Peb twb npaj zoo. Ces, raws li cov neeg uas muaj ib tug nqaum dweller caij tawm muaj nag xob nag cua, nws ntaus.

Peb los txog ntawm lub tsev kho mob kom ntxov thiab ntsuam xyuas nyob rau ntawm 6:59 a.m. Nws noj ua ntej op tom 8 sijhawm ua ntej tavsu, 30 feeb lig thiab lub snowball uas pib dov. Lawv coj nws mus hlais tawm ntawm 9:49 thiab yeej pib thaum phais 10:23 – tam sim no ib txhia 53 feeb qab raws sij hawm. Yog vim li cas txhua qhov no tseem ceeb? Kuv muaj Cauda Equina Syndrome thiab zaum, tshwj xeeb tshaj yog nyob rau hauv cov mejyig seeb, yuav siv sij hawm ib hu rau kuv.

Kuv yuav tsum tau sawv thiab taug kev ncig every ces feem ntau ces zaum nram qab, raws li tej no ib lub taub Tawvv zoo ntev lub sij hawm rau kuv. Kuv twb xuas nrog txhua tus huas feeb ntau. Tom 11:43, Kuv tus poj niam hlais tawm tas thiab nws mus rov qab. I spoke with the surgeon and then went to wait some more.

I got a couple of calls on my cell phone from a recovery room nurse explaining that my wife was slow in being able to move her good leg. They had done a spinal block for the anesthesia rather than a general. After the block, she would have to stay in recovery until she could move legs, feet, and sets of toes. I hunted down the cafeteria to get some food. After a long walk, I found it.

The food wasn’t bad at all. I sat, resting my legs, until my butt & lower back began hurting again. I dreaded the long walk back to the waiting area, but I had to walk again, so off I went. I actually stopped along the way to give my hips a rest. Walking tires out my leg muscles, particularly my hips, very quickly. I’ve been doing strengthening exercises, but haven’t seen much improvement in several months.

Arriving back at the waiting area, I sat down again for the wait. Just before 3 p.m., they called me to the front desk and advised me that my wife was leaving recovery for her room. Off I went, slowly but surely… down the hall to the next section of the hospital, up the elevators, then down a couple of more halls to her room. On the verge of needing to sit down again, I arrived at her room. There was no name plate on the wall by the door but I entered anyway. Nothing but 2 chairs and a nightstand were there. On the whiteboard, no patient, nurse, or tech names were written. Did I have the right room? Just then, a nurse came in and asked if I was in the right place. I thought of several pain induced sarcastic remarks but quickly quashed those, instead saying, “I guess I beat her here.” The nurse left.

My wife did arrive shortly, and 1 of the chairs was an ortho chair, which type one of my techs during my stay at this hospital earlier this year due to my CES surgery had swiped from this floor to let me sit in. I was very pleased with this because they are comfortable. At last, a comfy chair! In comes my wife’s nurse and tech, along with the social worker. I thought I recognized the tech. When he said his name, Randall, I knew! He had been my tech 9 months earlier. He thought I looked familiar too when I asked him if he had worked on another floor 9 months ago. He still works the neuro floor but does extra shifts on the ortho floor for some overtime.

My wife’s pain was not well controlled the first 24 hours after surgery so she had to stay in the hospital for 2 nights instead of the planned 1. During this time, my pain was not well controlled either. The morning after surgery, I got out of bed and hurt so badly that I really didn’t want to move. Then I had to go to work… ugh! The next day, I got to pick my wife up and bring her home – Oh Happy Day! Then it was waiting on her, which was nothing like what she had to do while waiting on me earlier in the year! But I didn’t get much rest for a few days and I was in a lot of pain. I felt like I had 4 los sis 5 months earlier.

Slowly I she and I both recovered. After about 2 weeks, her recovery accelerated and by the end of 4 weeks (also the end of Month 10 of my CES), she was ready to start driving again. Only in the last week did my pain subside, in part due to Thanksgiving.

Central Ohio was visited by a snow storm just before Thanksgiving. With this being the first snow for our Elantra, I didn’t know how well it would do. I had it parked in the garage which requires a climb up a moderately steep hill for 70 feet, then a 70 degree right turn, followed by another 40 feet of steep hill to get to our street. Our former ride, a 2010 Prius, made that in 4 inches of snow with no problem… not so the Elantra. To be fair, the Prius had high end Michelin all weather traction tires on it. Since we’re not worn out the OEM tires on the Elantra yet, we’ve not replaced the tires so this isn’t necessarily a fair comparison. Xijpeem, the Elantra couldn’t quite make it to the turn in the driveway… I was stuck. My wife’s ’98 Caddy was parked in front of the house with a straight shot up the last section of driveway, except her sister had parked it straight in instead of backing it in – no way to get it out until the driveway thaws.

So, being ever so adventurous, I decide the next day to walk down the driveway to get our snow shovel out of our outbuilding. Yep, you guessed it, I slipped and fell. In the process, I injured my back. At first it seemed to be just muscle. After a day or so, it seemed like a disk bulging but not rupturing. Lots of heating pad time and rest helped my back return to normal. After all of this adventure, I feel better and with less pain than when the month started.

I had pain in the right superficial peroneal nerve since my Feb injury. Not really raw pain but a tightness, in the front part of my ankle. When walking and stepping forward with my left foot, if I stepped too far the nerve would bend no further and my ankle would roll to the right. Very disconcerting and painful. Last week my ankle gave a loud “pop” and the tightness and pain went away. Evidently the swollen nerve is continuing to decrease and did so to the point where it broke free of its impingement. Good. Very good.

Spiritually this month was a learning and testing month. Everything encountered in Month 10 was a challenge to some aspect of my surrender of everything to God in Month 9. I was pondering, for a time, the regression of my symptoms. I had my schedule overloaded. I was hurting and tired. A family member turned his back on me after I had been his biggest supporter while he was growing up. My crime against him was telling him some things he was saying weren’t true and I didn’t want him spreading falsehoods because it would make him look less intelligent. He told me off and cutoff communication. I also felt the sting of dishonesty from a friend. Those who know me know that honesty is an absolute with me. I give it and expect it. While I know that most people engage in what they consider small lies to their friends, it is extremely NOT a small matter with me. In this case, I'm sure they thought nothing of it, not even aware they did it... nor of how my discovery of it would affect me. My asking God to teach me to have more grace is being answered through this, but it is definitely not the way I would want to develop more grace.

Thaum kawg, physically I end Month 10 doing better than last month. Life is becoming still busier, and that is good due to what is making it that way. Emotionally & spiritually, I’m battling through the emotional aspects of actions by my family member and my friend. I have always been one for reconciliation but these will be difficult. So on to Month 11! Coming up on a year, and I think coming up on an end to the posts on this blog. My battle with CES turned into my life with CES, which has mostly pushed CES into the rearview mirror. Yog, I still have it. Yog, it affects me every day. Yog, it will still do so for the rest of my life. But I’ve come out of my encounter with it. It is God’s mark of ownership on me and I’m growing used to it being here. Its impact on me has been to drive profound and beneficial changes in me. That drive is coming to an end and soon it will be parked by the house, around but not used, destined to become a rusting old junk heap with weeds growing up around it. Yeah, that’s a good place for it.