Cauda Equina Syndrome – Nyem unforeseen

I really didn't want to believe it...

Tiam sis hnub no tau tseeb.

as thiv tas los, Kuv muaj ntau zog teeb meem nrog kuv tshuav. Now that really helps when I've also got a torn peroneal tendon on the right ankle! Xijpeem, Thursday evening my Cauda Equina Syndrome upped the ante - I got increased pain in my right foot/ankle (nerve pain, muscle cramps, imaginary pain - all of it).

ps21v14So imagine my surprise when late on Saturday, just before bedtime, the balance returned along with greatly decreased pain!! I went to bed thinking it to be a fluke. I didn't mention it to my wife because I thought it was just one of those transitory things we get when we suffer with CES.

Well Sunday morning, the pain was still very low. We went on to church and came home. I waited for the pain to increase... After returning home from church Sunday evening I was very hopeful that a permanent change had occurred, but still I waited.

On waking this morning, my feet felt like I could run on them again if not for the tendon. Of course my legs wouldn't let me run anyway, but it had now been over 36 hours - long enough to declare that my foot pain has dramatically changed for the better. All of this just after the 1 year mark. In fact, as I post this, tomorrow marks the 1 year anniversary of my decompression surgery.

moving-forward-quotes253

I've also regain some feeling in the back (hamstring) area of my left leg - that's new feeling too! So progress continues. God has a wonderful sense of timing - just when you think you need encouragement in one area, He gives you encouragement in another. And that encouragement reaches out and stretches itself right into the area you need it to go. So that is a double blessing! Thank you, Lord!

Continuing the walk...

D.V.

David

 

Zaj dabneeg rau rov tom qab – CES | Lub hli 3 cov Cauda Equina Syndrome

Txais tos kom rov qab zaj dabneeg, Part 3.

Cov posts yuav yuav tuag ntawm thaum kuv nrog stricken Cauda Equina Syndrome Thaum pib kuv blog thaum uas lub hli 4.

Apr 17th, 2013, Tsev:

Ntawm kuv - my rehabilitation continues and I am seeing improvement, which is welcome, but not always pleasant. As I start getting feeling back in an area, it is usually pain that I feel. I've had a lot of pain related to a very tight piriformis muscle in my right hip. I've had exercises and stretches for it, which have helped some. As some other pains have subsided, it is time to concentrate on the biggest pain I feel right now and that is at the top of the hip on the back side. It comes from a knotted up, top end of the piriformis.

Monday at Physical Therapy, my therapist took about 5 minutes to do a deep muscle massage of that spot. It "hurt good" the whole time. A few minutes after the massage, the pain decreased to nothing. I had much better mobility, no pain from walking or sitting! Monday and the first 1/2 of Tuesday were great. Ces, of course, the muscle started tightening again. Thursday I have my next PT session. Kim is going with me and my therapist, Carrie, is going to show her where and what to do. During the relief from this pain, I need very little pain medication. Now that is a goal I'm looking for!

I'm working 1/2 time right now, and with the PT and still rebuilding stamina, that works good for me. I will stay at 1/2 - 3/4 time a few more weeks then try to make it back to full time.

Feeling recovered in the last week:

Right outside thigh (parts) - result is that I feel the tight, inflamed tendon there now
Bottoms of feet - I can now feel when the floor is cool
Top of right foot - anything that touches it feels like I'm being stung by a wasp
Both calves - I can now feel the cramps they have been having

Still numb/no feeling:

Backside and groin areas
Thighs - back side, upper 4 inches only, both legs
Lower legs - I can tell touch to these areas, no pain in shins or sides, calves cramping though
Feet & Ankles - still mostly numb

Still hard to balance - I can stand without assistance for 60 - 90 seconds, I can reach a short distance (in certain directions only) for objects

Sitting - still tough to sit for long. Some chairs I can last an hour, others 10 minutes. And how long I can bear to sit in which chairs changes from day to day.

Walking (with walker) - pain from the piriformis usually limits me to walking around 400 feet at a time with a long rest in between

Walking (with cane) - I can now walk short distances (<50 feet) with a cane. Very tiring to do so, so I don't do it much. Therapist recommends 3 short cane walks a day.

Walking (unassisted) - I can walk very slowly, make dead sure of my balance for each step, for a distance of 5 - 8 feet. This is new.

Summary - progress being made, a long way to go yet. Keep on praying for Kim and me as there are still other issues from the cauda equina syndrome which are likely to never get back to normal and affect everyday life. These are the toughest as there is no treatment available for these issues, it is just up to the Lord whether the nerve damage heals or not.

Our hopes and faith are in Vaj tswv's hands. Praise be to God for His blessings!

Apr 26th, NovaCare Rehabilitation, Westerville, Auj:

Ntawm kuv - Well today is a sad day of sorts. It is my physical therapist's last day here in Ohio. She is a Doctor of Physical Therapy student who has been doing her final internship at NovaCare in Westerville. After today, she will be finished and headed back to Buffalo, NY to graduate. Congratulations, Carrie!

NovaCare had a goodbye party for her yesterday with a Shrek theme. Carrie was dressed up as Donkey. As for me, the following picture will confirm what some of you have thought about me for a long time....

Carrie

 

 

Apr 20th, 2013, Tsev:

Ntawm kuv - Bummer... but good, I hope. The front of my right thigh feels like it is itching. Of course when I scratch it, I don't feel a thing. But I'm hopeful that this is an indicator of feeling coming back to that area. However, nothing escapes the fact that it is a total bummer having a body part itch and not be able to get relief from scratching it 🙂

And with that, we come to the end of the back story. Continue with Month 4>>>

Zaj dabneeg rau rov tom qab – CES | Lub hli 1 cov Cauda Equina Syndrome

Txais tos kom rov qab zaj dabneeg.

Cov posts yuav yuav tuag ntawm thaum kuv nrog stricken Cauda Equina Syndrome Thaum pib kuv blog thaum uas lub hli 4. So join me as we look back at the beginning...

Feb 25th, 2013, Riverside Methodist Hospital, day of my decompression surgery:

Ntawm kuv tus poj niam, Kim - David was taken down to pre op at 5:30 tag kis no. Surgery was at 7:30. Out by 9:30. All went well, but he still has residual tingling in his feet. He has not moved much all day; pain is at a 2 (MUCH better than before). Tomorrow he sees the phys therapist and IF he can walk he can go home they say. But he has not had a bm, still has a catheter, and they were concerned with his kidneys. So he had an ultrasound of them. Maybe tomorrow we will know more. Thanks so much for all the prayers! He continues to bless us with such a movement of encouragement we are awestruck. Thanks so very much!

Feb 28th, 2013, Riverside Methodist Hospital:

Ntawm kuv - Today should be my last in the medical side of the hospital. The plan is for me to start intensive rehab therapy on an inpatient basis here at the hospital. I don't have much pain, but there is still numbness and tingling from my hips to toes. My right side is weaker than the left, but am able to get up on my feet and walk 50+ feet (I had not walked since 2/11, so it feels good, even if it is challenging and added to the pain.)

No one knows how long for the rehab yet... They say anywhere from a few days to a couple of weeks. Of course, I could go home today and rehab there, but the house isn't suited to it and I still need a good bit of help that Kim is unable to provide. Thank you all for your prayers and thoughts during this time. Now the tough part begins, and we still need the prayers. Peb hlub koj tag nrho!

Mar 2nd, 2013, Acute Inpatiant Rehab Center, Riverside Methodist Hospital:

Update from Kim on David - His occupational and kev kho lub cev sessions are productive; his lower back across hips still grieve him but nowhere near as badly as before; hamstrings are way too tight and require stretching exercises as does his core; 6 sessions today dispersed thruout the morning and afternoon hours; he got a good sleep last night and hopes to tonite as well. His foot stability is the biggest obstacle now. He uses walker & special toilet chair but is able to get in and out of bed ok, and walk halfway around the rehab unit on 6th floor now. This all takes time. He is still catheterized and will be well into next week or longer depending on some bladder control test on Wednesday. His bowels are loosening almost too much now !! ;O We so appreciate everyone praying so fervently and consistently for recovery. Even with trials of your own, you still pray. THAT is LOVE for ya! Big hugs to all.

Mar 3rd, 2013, Acute Inpatiant Rehab Center, Riverside Methodist Hospital:

Ntawm kuv - The staff tells me I will be finished at the rehab unit on Wed (6th)! I just hope that my week left knee doesn't slow that down.

Mar 3rd, 2013, Tsev:

From Kim - Well, it's good to have David home again! Now for the disciplining of each of us to make sure he gets the PT exercises done (some he does, some I need to do TO/for him). He is still incontinent in both areas, so we're keeping the Depends folks in business 🙂

Thanks so much for the prayers, and we thank God for His answering in His way, in His time. David's not out of the woods yet with his walking/stability though. We'll keep y'all posted.

Mar 12th, 2013:

My first month with Cauda Equina Syndrome ends ... Month 2>>>>

CES | Lub hli 11 cov Cauda Equina Syndrome

Lub hli 11 muaj twb ya los (thaum muaj lub hli 12 li ntawd, nyob deb, yog li no lig tsev xa).

.lies

Lub hli 10 twb nrog tej yam uas phem zom rau hauv kuv tus kheej lub neej. Cov no txuas ntxiv mus los ntawm ntau lub hlis 11 zoo li. Kuv twb soj ntsuam nrog cov kev xav ntawm kuv tsev neeg tug tswv thiab tau ib tug phooj ywg. Ntawm ob, cov tawg friendship raug mob nyob deb dua. Cov kev sib raug zoo nrog kuv tsev neeg lawm rau lub qhovntsej thiaj tsis ntev qeeb mob nrog kev ceev, tiam sis luv, pob tsuas kawg. Tus friendship tawg yog tej yam uas kuv tsis pom los... tus tag nrho surprise thiab poob siab. Peb twb tag lawm ua ntej, tiam sis txij so long ib tug neeg uas kuv tuav uas muab kaw rau hauv kuv lub plawv thiaj muaj xws ib tshaj plaws.

 

.unknowingKuv tsis xav tau lub friendship liam sim, tab sis nws tshua tus ua li ntawd mas mus no ib hnub. Yuav luag ib lub hlis, Kuv tsis paub li cas kuv yuav xav tias yuav tau kuv cov phooj ywg kom pub. Nws thiaj li, tus twg tau txav lawm. Qhov no pub kuv dlhos tau kuv txoj kev xav rau kuv tu tus neeg no. Kuv yog tam sim no nyob rau kis twg kuv yuav zam txim rau kuv tus phooj ywg lawv yuav tsum tau hais rau nws. Kuv tseem tus friendship; tiam sis nws tsis yuav li kaw ua ntej li... Kuv tsis nyob tus taw tes rau hauv kuv lub neej nyob qhov twg kuv kam ntseeg liars txaus los cia rau hauv kuv lub vajvoog zoo phooj ywg. Kab tias kuv yeej tsis yuav. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Christmas tuaj thiab mus thaum lub hli 11. Peb muaj ib tug zoo, cov sij hawm nyob ntsiag to - tab sis qhov oKuv tau lder, ntau tus kuv nco muaj ib tsev neeg hlub ib leeg. Peb tsis muaj cov me nyuam yaus thiab cov uas txo nws hwj peb nyob rau ib qho chaw kho siab heev. Kuv tuaj ntawm ib tsev neeg dysfunctional heev. Kab tias yog vim li cas kuv muaj xws revulsion kev liars. Kuv tsev neeg cov nyiaj so koobtsheej gatherings (Thanksgiving & Christmas) yeej ib txwm loj qhia tau hais tias qhov twg sawv daws muab tso rau hauv ib daim npog qhov ncauj thiab nyob hais lus dag tias peb twb tsis tag, tu tsev. Kom lub xyoo qhia ib yam, tu siab dab neeg. Kuv dim, tiam sis unscathed tsis, Thaum koj mus. 2014 tias kuv 21St xyoo nyob 175,000 (sometime txhiab) mais ntawm tsev neeg. Yog tias koj txiav txim seb tus "tas" thaum ntawd lawv cia li nqa kuv niam kom kuv pom, los yog yuav tau de nws tu, Kuv yuav suav rau lub toes ntawm tes ib pes tsawg zaus vim kuv tsev neeg tau xyuas kuv cov 21 xyoo. KUV, Txawm li cas los, tau xyuas kom tsawg lub teb lub sij hawm.

Rau kuv CES...

Thaum kuv tau taug kev li Frankenstein thiab tsis tau hnov kuv qij taws, no mas, kuv twb tas li ib pluag tus moj yam uas kuv tore kev ib leeg nyob rau hauv kuv txoj kev los pob luj taws. Tam sim no tias kuv muaj ib puas muaj, Kuv paub ib yam dab tsi uas tsis yog lub paj qhov mob ntawm Cauda Equina Syndrome mus. Tus Doc hais xwb phais yuav kho, tabsis tamsim no kuv tabtom xwb hnav ib lub brace pob luj taws. Kuv twb pom yav dhau lub xyoo no kuv yuav tau muaj qhov phais, tab sis, nws yog ib lub xyoo tshiab, nrog tus tshiab tuav pov hwm uas yus them yus. Thiab tiv thaiv kuv lub caij uas yus them yus npaj siab (tsis yog los xaiv – yog tag nrho kuv qhov chaw ua haujlwm muab).

Kuv muaj regained lawm nyob rau ntau thaj chaw. Cov qhabnias ntawm paj conductivity xeem tsom feem ntau ntawm cov L4/L5 puas lawm kho. Qhov no ua rau cov theem uas tus disk tag lawm, ces kuv zoo siab nrog rau tus pab. Tiam sis lub ntsiab lus hauv qab no L4/L5 yeej qhia qhov kev raug mob thiab cov kev txiav txim yog tseem tawm ua yuav ua li cas nrog rau cov chaw. Kuv muaj ntau dua"electric poob siab"ntaus txoj kev xav, feem ntau nyob hauv kuv txoj kev mus ko taw. Lub nraub qaum ris kuv ncej thiab qis pob tw yeej tseem loog raws li yog feem ntau ntawm kuv qhov chaw mos. B&B tseem yog ib qhov teeb meem uas yuav siv los xyuas dua ntau (li no cov zis & Plob tsis so tswj, tsis Txaj & Noj tshais).

Kuv xav kom tau, thaum lub hli 11 kaw, los ntawm cov pab pawg me me Ntawv Vajtswv txoj kev tshawv no peb nyob nraum ua nyob hauv peb lub tsev. Thaum uas kawm rau kuv CMA cov tub ntxhais nyob rau lub ob hlis ntuj, Kuv tsis tau muaj ntau lub sij hawm rau lwm yam los ceev kom cov kev sib raug zoo. Kuv yuav zoo siab heev thaum twg no ntxiv. Kuv puas yuav tsum tau qhia txog tej yam uas – tej yam kuv nyiam ua - nyob rau lub sij hawm thiaj li mloog tau zoo rau hauv no. Tom qab uas tub ntxhais, Kuv muaj ob peb lwm tej yaam num nyob rau hauv daim ntawv kuv npaj, li ntawd, kuv yuav mus nyob rau tibneeg hu tauj coob.

Yog kuv Cauda Equina Syndrome rau tag nrho cov qhov no? Twv yuav raug hu! Nws puas pab shape kuv lub neej? Kiag li! Nws yog defining kuv? Tej me kev... nws yog ib feem ntawm kuv, thaum kuv caj npab los txhais ceg yog. Yog, Kuv muaj hnub phem, ob lub cev thiab sab kev xav – tsis hopefully ob qho tib lub sij hawm! Mus tas kuv cia Vajtswv txoj kev hlub rau kuv saib. Nyob hauv nws tus hlub nws paub hais tias kuv rov xav tau raug mob los thiab nws siv qhov kev tshwm sim los chob kuv yuav cog closer rau nws. Nws muaj li cas kuv, nurtured kuv, thiab kuv lifted. Kuv yog ib tug neeg zoo, nyob rau ib qhov chaw zoo nyob rau hauv lub neej vim yog Vaj tswv noj lub txiv qaub Cauda Equina Syndrome thiab pab kuv ua ID hauv lawv. Qhov uas yuav ua rau kuv tsis paub, tab sis, cas tus taug txuj kev nyuaj kuv lub caij!