CES | Måned 8 med Cauda Equina syndrom

ces awarenss wristbandMin 8th måned med Cauda equine syndrom er i bøkene nå og hva en måned! Vi flyttet tilbake til vår gamle house sep 6th , og startet prosessen med utpakking. Jeg tok fri fra Sep 6 - 15 slik at jeg kunne bidra til å overvåke farten (og kanskje hjelpe litt.) Vi har tatt det sakte, måling vår energi og smerte nivåer ut. Min kone og jeg likte vår tid sammen umåtelig. Vi gjorde våre andakt ganger sammen, og deretter diskutert det i dybden, ofte å bruke en time eller mer om dagen på det. Vi fant ut at det er mye sannhet i utsagnet, "Jo nærmere et par får til Gud, jo nærmere de kommer hverandre. "Vi hadde en flott tid for å gjenoppta kontakten i en avslappet atmosfære. Vi sikker trengte denne gangen!

Like før slutten av måneden 7, Jeg nådde et lavpunkt i kampen CES. De lange dager med fysisk utfordring, den emosjonelle toll, og belastningen på min kone kom i tillegg til et hode. Jeg visste ikke det da, men Gud forberedte meg for hva som var bare dager unna. Han brøt meg ned helt som jeg brukte flere timer en natt, hulket og gråt ut til Ham. Jeg var ute etter svar og forståelse. Omsider, Jeg ble brukt fysisk, følelsesmessig, mentalt og åndelig. Så var det ingenting. Ingen spørre, ingen trøst, ingen svar. Jeg sovnet.

Blessed be your nameUmiddelbart etter våkner neste morgen, Jeg visste at Gud hadde svart. Hans fred var på meg som aldri før, og jeg følte Hans trøst innpakning meg. Ikke en i en fysisk forstand, men bare å vite, hele mitt vesen, at han hadde hørt og viste sin kjærlighet for meg. Det forandret mitt syn på livet, Cauda Equine Syndrome min, og mer. Jeg endret selv tittelen på denne bloggen. Du kan lese mer om det her - http://wp.me/p3A64Y-7V

I løpet av studien ble min kone og jeg gjør sammen etter flytting, hver enkelt av oss (separat) kom til en erkjennelse av at vi hadde sakte tatt tilbake våre liv fra Gud, og at han ble ringe oss tilbake til fullt å binde seg til Ham. Vi utforsket dybden av dette engasjementet, fordi det var klart at det var langt mer enn vi noen gang hadde vurdert det til å være. Som vi alle tenkte det den dagen, Ordet sank i. Den kvelden, Jeg fortalte min kone at jeg hadde bestemt seg for å gå all in - gir mitt liv til Gud for hans hensikter. Hun hadde gjort det samme vedtaket. Vi frydet oss sammen.

I måneds 8, Jeg kom også til enden av veien for søksmål angående min Cauda Equina syndrom. Jeg hadde 2 separate advokatfirmaer ser på saken for en mulig malpractice krav. Begge advokater sier at uten tvil var det medisinsk malpractice begått på meg. Men, henhold til Ohio lov, "verdien" av en medisinsk malpractice tilfelle bestemmes av hvor mye bedre din utfallet ville ha vært dersom malpractice gjort en forskjell. Jeg har blitt veldig velsignet av Herren i min utvinning hittil. De fleste som er rammet med Cauda Equina syndrom er igjen stort sett eller totalt ufør for resten av livet - å håndtere smerte, nummenhet / mangel på følelse, blære-og tarmproblemer og seksuell dysfunksjon.

Jeg har presset hardt siden operasjonen min, tilbringe en uke i Akutt Rehab på sykehuset da 2 månedene av poliklinisk Fysioterapi. Jeg har gjort mine strekker og øvelser trofast. Jeg villet meg selv tilbake på jobb og jobbet gjennom smerter i flere måneder. Min gjenvinning, etter objektive standarder, har vært bemerkelsesverdig. Min prognose ved tidspunktet for kirurgi var i det verste mulige utfall kategori på grunn av malpractice og forsinkelse i diagnostisering og behandling CES. Gud lurt dem alle. I fortsatt ha alle de ovennevnte problemer, men de er ganske overkommelig med riktig behandling og fornuftige begrensninger på mine aktiviteter. Jeg er i toppen 5% av utfallet muligheter. Så du kan se at hadde misligheter ikke forekommet, min faktiske utfallet ville ikke være mye, hvis noen, bedre enn det har vært. Legally, det betyr at malpractice gjorde ikke saken. Jeg skal håndtere disse symptomene og begrensninger for resten av mitt liv, men fordi jeg gjør bedre enn jeg burde, det er ikke verdt noe. Du vet hva? Jeg tar min utvinning enn å ha gjort dårlig nok til å ha en god malpractice tilfelle - alle dager!!!

Uken etter at min kone og jeg forplikter og gir fullt til Herren var en av store åndelige angrep på oss. Alt som kunne gå galt gjorde, 10 ganger over det gjorde. Og litt til! Jeg har aldri sett noe lignende i mitt 55 år. Vi ble så overveldet med problemene som oppsto med alt, fra å slåss med en skruppelløs forretnings, til forsikringssaker med helse, hjem, liv og auto forsikringer, til e-post går glipp (det tok ett viktig brev 20 døgn for å gjøre det 40 miles), apotek ordrer forsvant i transitt (og ute av stand til å nå alle i selskapet for å fikse det), problemer med bilen, og mye, mye mer!

Ved første, vi falt tilbake til våre gamle måter og begynte å føle seg overveldet og sint. Men Gud var ikke til å la oss gå tilbake til det vi var. Han viste oss at det var en åndelig angrep og roet oss med sin trøst. Du vet hva, Han hadde rett. Ingen av det overrasket ham, Han har våre liv slik at han kan gjøre hva han vil med dem, og resultatet var fantastisk. Vi legger ut en bønn forespørsel og mange mennesker fra hele landet ba. Vi var beskyttet og angrepene opphørte.

I resten av måneden 8, Jeg er nå pendling 100 miles en dag, rundtur. Jeg kan ta turen inn til arbeid i nettopp 45 minutter. Men, turen hjem tar ca 65-75 minutter. I gamle dager (siste måned), Jeg ville ha jobbet meg opp i en tizzy med Road Rage i den tiden! Nå, Gud er i kontroll over når jeg får jobbe, og når jeg kommer hjem. Jeg bare liker å snakke med ham og å være høflig til de andre sjåførene som er desperat uryddig. Jeg pleide å stolthet meg selv på mine "gode" kjøreferdigheter tillater meg å flytte gjennomgangstrafikk raskere enn andre. Nå kjører jeg for å hjelpe andre, selv om de ikke vil ofte vite det. Og jeg får en mye større kostnad ut av den nye veien!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Photo credit: Wikipedia)

Oppsummert, ved utgangen av måneden 8, livet er bra. Det er absolutt ikke det jeg ville ha konstruert eller ønsket fra de enkelte aspekter. Men hele det Gud har gjort i livet mitt og gjort i meg med Hans forhold til meg, er stor! Jeg elsker min kone mer enn jeg noen gang visste man kunne elske. Og kjærligheten til kristne familien min har mangedoblet. Livet mitt er nå fokusert på hvordan jeg kan hjelpe andre som jeg går gjennom livet og vite at Guds ønske for meg er å bli, i ord, tanker, og handlinger, en forlengelse av Jesus. Når andre samhandle med meg, de må se Jesus og Hans kjærlighet for dem. Dette er det som driver meg nå. Det er hva som skal kjøre alle som kaller seg kristne. Charles Spurgeon sa en gang, "Alle kristne er enten en misjonær eller en bedrager."Hvilke er du?

Måned 8 = Mer normal følelse, mer endring av tingly ikke smertefullt inn tingly smertefullt (dette betyr bevegelse mot normal følelse), og bedre tarm & blære aktivitet. Jeg ble fortalt nervene ville regenerere etter et år med det meste av regenerering oppstår i første 6 måneder. Jeg hadde ikke hatt vesentlige endringer siden Måned 2. Kanskje jeg var for opptatt slåssing Cauda Equina syndrom heller enn living med den. Jeg kommer ikke til å si at dette er en belønning fra Gud for å gi etter for ham fordi jeg ikke tror han opererer på den måten. Han elsker oss alle og vil ha oss alle til å stole på Jesus, først for frelse og for det andre for livet. Alt han gjør eller fører i våre liv er å bringe oss til disse to mål - først til å stole på Jesu død i vårt sted som den eneste måten vi kan ha et rett forhold til Ham og leve med Ham i himmelen en dag. Når vi har gjort det, Gud fokuserer alle sine ressurser mot oss for å gjøre oss til bilder av Jesus - er vi støpt å ha snille og kjærlige ord som Jesus, har nådig og sjenerøs tanker som Jesus, og ikke WWJD (Hva ville Jesus gjort?) men WDJD - Hva gjorde Jesus? Hvordan fikk han opptre med kjærlighet til andre og for Faderen? Ikke hva vi tror han ville opptre som om noe i dag, i stedet handler ut av Hans kjærlighet i alle ting.

Hva en måned! Hva et liv! Takk for lesing, familien min, vennene mine, og utvidede familien min i hans ånd.

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Urettferdighet – Min Cauda Equina syndrom Juridisk Story

Malpractice - 165/365 Because it is rare, some who develop Cauda equine syndrom are the victims of medisinsk malpractice. Anecdotal stories abound, along with some documented ones, of CES being brought on or made worse by malpractice. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, no one can be certain if a case exists or how it will turn out. This is my story. It has been reviewed by 2 Ohio attorneys who have experience in Cauda Equina Syndrome malpractice cases. You won't like what it says about our legislatures, legal system, and of course doctor education.

My Cauda Equina Syndrome started with my injury. Within 10 hours of the onset of my CES symptoms, I was in an Emergency Room in Westerville, OH. Upon waking on the morning of Feb 12, 2013, I found that I not only had the severe back and sciatic pain of the night before, but now I was NUMB from the waist down! I could not void my bladder nor defecate. I could not move my feet up disse 3nor down and without feeling in my feet and ankles, I could not balance. These are all classic symptoms of Cauda Equina Syndrome. Fortunately we had a wheelchair (and some adult diapers) and just after 10 på morgenen, I arrived at the ER in my wheelchair.

We had been told that this ER was fast and efficient, and it was close to the office of the physician who suspected Cauda Equina Syndrome and sent us to an ER (with specific directions to have an MRI done.) Immediately upon arrival at the ER, I was wheeled to an exam room and I transferred from my wheelchair to the exam table. My vitals were taken and the male nurse assigned to me came in for the initial assessment. He stood about 5' 4", om 150 pounds, a pleasant. individual who began asking about my symptoms. With my mentioning Cauda Equina Syndrome, he asked if I was incontinent. I said, "No. I can't go!" He then asked me to stand up. I told him I couldn't. I knew I would fall right over, not because my legs wouldn't support me but because I had no balance. And I knew that his small frame would be overwhelmed by my 6 foot tall, 325 pound body. No way he can stop me from falling over if he doesn't prevent it to start with. I told him so, yet he insisted. The results were predictable. On standing up, I immediately began tilting (away from him, naturally) and over I went. The nurse could no longer stop it. The rolling chair in front of a fixed desk was in line with my movement. I was able to grab the back of the chair and as it rolled into the desk, it locked in and I was able to stop my fall. He asked me again if I was incontinent. I responded as I had before. That concluded the initial exam.

A short while later the nurse came back in. He told me that the ER doctor had ordered an MRI for me. The MRI machine was located at the other end of this Ohio Health Medical Campus and did not have an opening for me for almost 4 timer. I had to wait, on that exam table, in pain, until then. The nurse did check on me a couple of times, one time bringing me a couple of replacement diapers as my bladder was so full it was leaking (I still couldn't go!) Thankfully, my wife had some snacks in her purse or I would have been without food for over 10 hours that day - not good for a diabetic! No one ever asked if I was hungry, even though I was there over lunch time. Around 2:15 p.m. the nurse came and took me to the MRI machine. As we wheeled in, I could see that the machine was an older type that was very small. I did not think I would fit. They told me the test would last about 45 minutes and that I needed to lie as still as possible (easy to do when you rate your pain at a 10 and you are not medicated - NOT). I was put into the machine and I did fit, men, as I tried to breathe,

The opening in a GE Signa MRI machine
The opening in a GE Signa MRI machine (Photo credit: Wikipedia)

I could not fully expand my chest to take in a breath. I could get no more than 1/2 a breath before the constriction of the machine prevented further expansion of my chest. After several partial breaths, I knew that I could not breathe this way for 45 minutter. I told them so and I was removed from the machine - it was just a little too small. As I was wheeled back to the ER, the nurse told me about the larger machines and the open MRI machines in the area. He said, "We can get you into one of those. We'll see what we can do about that." I was returned to the exam table to wait. A half an hour passed with no one checking on me. Then the ER doctor arrived. He told me who he was and that he had been overseeing my care. He then asked me twice if I was incontinent. Again I responded with, "Not incontinent, I can't go!" Then he said, "You do NOT have Cauda Equina Syndrome. Since we are an Emergency Room and your case is not emergent, we can not refer you to an outpatient MRI facility. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, for a first available appointment. He can order an MRI for you." With that he was gone.

Shortly, a person came in and told my wife and I that 2 more people would be coming in, one with the discharge papers and another to wheel me out of the facility. Om 3:15, the woman with the prescription and discharge papers came in. The discharge papers said I should come back to the ER if any of my symptoms got worse OR if I developed any of these symptoms:

"Increased pain, abdominal pain, fever, difficulty controlling bowel/bladder, or any further concerns."

That was on one page of the instructions.

Another page stated this:

"YOU SHOULD SEEK MEDICAL ATTENTION IMMEDIATELY, EITHER HERE OR AT THE NEAREST EMERGENCY DEPARTMENT, IF ANY OF THE FOLLOWING OCCURS:

  • Loss of bowel or bladder control (you soil of wet yourself).
  • Weakness of inability to walk or user your leg(s) or arm(s).
  • Pain not relieved by pain medication.
  • Fever (temperature over 100.5 F) or shaking chills.
  • Severe pain that settles over one particular vertebrae (bone) in your back."

I laughed when I read these! Well as much as one can laugh while in the worst pain I've ever felt. Jeg already had most of these return or get immediate attention symptoms!! The woman said that these were just generic discharge instructions for herniated discs and not specific to me.

Most medical literature states that decompressive surgery must be done within 24-48 hours or the outcome is far worse. Once those 48 hours are gone, you're pretty well going to wind up disabled for the rest of your life. So says the literature. I can tell you right now that that is not always the case as I'm living proof, but that is another story.

Other medical literature says that the surgery must be done within 6-12 hours to effect the outcome. Still other studies say that time to surgery doesn't affect the outcome. Why such divergence? Cauda Equina Syndrome is rare. No one knows exactly how rare, but my research of available estimates would indicate no more than a few hundred new cases a year in the U.S.

It ultimately took 2 weeks for my surgery to be performed. The surgery at Riverside Methodist Hospital in Columbus, OH went well, I went through Acute Rehab there for a week after the surgery. I then went through 15 sessions of Physical Therapy at NovaCare in Westerville, OH. My outcome is that I have some normal feeling again in my waist area somewhat in my thighs and in my shins. I have painful tingling in other parts of my thighs and in my feet. My calves are mostly numb unless pressed upon - then I can tell the leg muscles are cramped up, but the good part is that I can't feel the cramps. I do stretches several times a day for calves and hamstrings. I use vision for balance and the leg weakness has diminished, i.e. strength has returned, to the point where I can walk about 500 feet with a cane and about 125 feet unassisted. Bowel and bladder functioning is that they function, I just can't control them or tell when I have to go - I get surprises. I try to go on a regular schedule to avoid surprises and I can tell most of the time when my bladder is getting close to the leaking point. I get a minute or two of warning on bowel movements most of the time, but I don't generally feel them.

In other words, my delayed surgery should have left me disabled, in bed, cathing myself, and on pain killers. I work full time, am ambulatory over short distances don't need cathing, and am on mild, non-narcotic pain relievers. In short, my recovery has been great. One of the best. Men, I still have a life of everyday being a physical challenge and struggle. That won't change, but that's okay (subject of another story.) I did a lot of wondering if I would have gotten back to normal, or almost normal, had I had surgery quickly, innenfor 48 timer. Feeling that the care I received from the ER doctor was negligent, I took everything to a Columbus, OH attorney. He called on another attorney in Cleveland, OH for a second opinion.

They both agreed that malpractice was committed, that the ER doctor "dropped the ball" as one of the attorneys put it. Men, due to the standards for malpractice claims in Ohio, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (my really much better than predicted by the facts outcome) would be an insurmountable challenge in court. Since that is the portion that really drives the dollar amount of any settlement, and thus the attorney's fees, my remarkable, blessed recovery makes pursuing the malpractice and negligence of the ER doctor not feasible. If I had not pushed to recover, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, and will go through the rest of my life, amounts to nothing. Our legal system is such that only lucrative cases are pursued. And our medical system does not educate doctors, nurses, and first responders adequately nor does it keep them updated. Had the ER doctor realized that bladder retention and not only incontinence is an indicator, we would have been golden. The info regarding retention is widely available on the internet and in medical journals.

To discount the correct diagnosis on the basis of 1 symptom is not what I want in a doctor. I feel that justice has lost in this one. Men, I am at peace with this as I relate in this post - My Blog Title Changed but Still About Cauda Equina Syndrome and Me.

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Log tittelen endret, men fortsatt om Cauda Equina syndrom & meg

Jeg have changed the title of my blog. Hvorfor? Ikke ut av kjedsomhet eller bare fornøyd endring, mye har skjedd siden mitt siste innlegg. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... og Hans umiddelbare formål bak det.

My faith has seen me through this "Battle" med Cauda equine syndrom (CES) thus far, but I had no idea where my faith journey was heading. Ja, I wondered why this had happened, what God wanted me to learn and how I should view it. We all know that bad things happen to good people and good things happen to bad people. We always want to know why and often the answer we get is that we may never know why in this lifetime so we just have to live with it. I've heard a lot over the years about people with terrible injuries and diseases "slåssing" eller "battling" those things which seek to either ruin or take their life. Friends and relatives have been touched by, and some lost to, injuries or disease. Now it is my turn.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. God wanted so much more from me but I had succumbed to "The Rat Race" and devoted myself to my work. Don't get me wrong, work is important, but so much more had suffered. My relationship with my wife, my time and service to God and the joy was gone from my life. Through this time of a changed life, where the daily routine of getting up and going to work is a draining physical challenge for me, I've seen myself as battling CES as though my faith, grit and determination were being tested. While they were being tested, that wasn't all. My focus had been on recovering far more than the doctors and physical therapists ever thought I could, further than the medical research said I could. I was going to win my "Battle". I didn't, and don't, hold out the idea of a complete recovery but my goal has been to be able to walk without assistance again - a lofty goal for someone with CES.

It was my attitude that needed changing. I saw this as a challenge where my faith would see me through and coming out the other side of this I would give the credit to God. I would be a faithful soldier in His service. Nothing wrong with that, but... God wanted me. All of me. He has wanted all of me for a long time. I thought I had given myself to Him fully many years ago. He has used me in so many ways everywhere I've lived. But as I said, I had slowly slipped back in to taking His blessings and running with it for my own purposes without even considering His. My wife tried to help me see it, but I was too focused on my goal - which had been so out of reach and now, because of God's blessing, was within my grasp. My attitude had slowly changed and was no longer good. God's smackdown on me physically also affected me emotionally, mentally and spiritually as well. Omsider, everything was stripped away but the spiritual. I found that I had taken myself back from God and He was calling me to give myself completely to Him. Only this time, I understand there is much more depth in this commitment than I ever thought possible before.


In the Ohio derecho storms of June 29, 2012, we lost an old Ash tree that was 85 feet in length. Two men gave us a really good quote on cutting up the tree, removing the stump, and hauling it all away. They figured they could do it in 2 days, 6 hours a day . The stump was incredibly stubborn. Once they started on it, they found it had thick roots running out in all directions for many, many feet. It was too thick for their saws. They chopped at it with axes and worked 3 days from morning till dark. They even had another person come help. And still the stump remained. Finally they rented a stump grinder and did their best. That stump beat them badly for days. Til slutt, they accomplished what we needed leaving a small mound where the tree had been, men, there are still roots under that mound. And they had spent over 40 hours on the project. Their quote earned them less than $6 per hour.

That's how it is when I first gave myself "fully" to God. I saw what looked like full commitment and made that commitment. Over time, there was more and more revealed but I had my goals and dreams too and there was no time, no room, for truly giving myself to God as fully as He wanted. In time, I took back what I had given Him. Suddenly, this year, God changed all of that. Stricken with an injury that would change the rest of my life, taking away many of the things I wanted to do and accomplish, I now had time for Him. I've learned that He wants all of me, and I've made that commitment to Him. Nå, whatever recovery I have is fine with me. Of course being who I am, I will still be pushing for the best results possible. As with many whom God used in the past, He has place His mark of ownership on me - my CES. It is a reminder of whose I am, whose strength I depend on, and who has complete control of my life. We are not to give God a little, or even a large, part in our lives. He wants our whole life to be a part of His. He wants to live out His life through us. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. Not just our character, but character drives motivation, and out of motivation comes actions. God uses the events in our lives to transform us (Romans 12), and He transforms us into people who think, act, speak, and love just like Jesus. Hvorfor? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - look at how we Christians live! That isn't God's plan. Time for me to get with the plan. And I no longer fight CES, but it is a mark of ownership on me and of my commitment to God. So it is now "Mitt liv med Cauda Equina syndrom" and thus the new name for my blog.


 

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