ЦЕС | Месец 8 са цауда екуина синдромом

ces awarenss wristbandМој 8ог месец са Цауда коњски синдром је у књигама сада и шта месец! Преселили смо се вратили у нашу стару кућу на сеп 6ог и почео процес распакивања. Узео сам слободне дане од Сеп 6 - 15 тако да сам могао да помогнем прати потез (а можда чак и помоћи мало.) Ми смо били узимајући га полако, мерење наше енергије и бол нивое напоље. Моја супруга и ја уживали наше време заједно неизмерно. Урадили смо наше побожне пута заједно и онда разговарали га у дубини, често троше сат или више дневно на њему. Сазнали смо да постоји доста истине у изјави, "Ближе пар добија Богу, ближе добију једни другима. "Имали смо велику време поновног у опуштеној атмосфери. Ми сигурно потребан овај пут!

Непосредно пре краја месеца 7, Достигао сам ниску тачку у борби против ЦЕС. Дуге дана физичког изазов, емоционални путарина, и притисак на моју жену и дошла до врхунца. Нисам то знао тада, али Бог ме је припремао за оно што је само неколико дана у гостима. Он ме је покварио потпуно, као што сам провео неколико сати једну ноћ, јеца и плаче напоље Њему. Ја сам у потрази за одговорима и разумевању. Коначно, Ја сам провео физички, емотивно, ментално и духовно. Тада није било ништа. Не навело, не удобност, нема одговора. Заспах.

Blessed be your nameОдмах након буђења следећег јутра, Знао сам да је Бог одговорио. Његов мир је на мене као никада пре и осетила сам његов комфор ме амбалаже. Не у физичком смислу, али само знајући, током мог бића, да је чуо и показивао своју љубав за мене. То ми је променило поглед на живот, Цауда Коњски синдром мој, и много више. Ја чак променио наслов овог блога. Можете прочитати више о томе овде - http://wp.me/p3A64Y-7V

Током студија моја супруга и ја радили заједно после селидбе, свако од нас (одвојено) дошао до сазнања да смо полако узима натраг своје животе од Бога и да нас је Он зове назад у потпуности обавезује да Њему. Испитана дубину те посвећености, јер је било јасно да је то било далеко више него што смо икада сматрали да је то. Као што смо сваки дан да је размишљао да, Реч је потонуо у. То вече, Рекао сам жени да сам одлучио да одем у све - дајући свој живот Богу за Његове сврхе. Она је донела исту одлуку. Заједно радовали смо.

У месецу 8, Такође сам дошао до краја пута за правну акцију поводом мог цауда екуина синдром. Имао сам 2 одвојена адвокатске фирме погледајте случај за могућу злоупотребе захтеву. Оба адвокати кажу да без сумње постоји Медицинска злоупотребу починио на мене. Међутим, под Охио закону, "вредност" од медицинске злоупотребе случају одређује колико боље би ваш исход био да злоупотребе направио разлику. Био сам веома благословен од Господа у мом опоравку до сада. Већина који су потлачени са цауда екуина синдромом су углавном лево или потпуно онемогућена за остатак свог живота - бави болом, утрнулост / недостатак осећања, проблеми са бешиком и цревима и сексуална дисфункција.

Напорно сам гурнуо од моје операције, проводе недељу дана у акутном Рехаб у болници тада 2 месеци амбулантног Физикална терапија. Ја сам урадио своје вежбе истезања и вежби верно. Хтео сам се вратио на посао и радили кроз бол за неколико месеци. Мој опоравак, објективним стандардима, је био изузетан. Моја прогноза је у време операције био је у категорији најгори могући исход због несавесног и кашњења у дијагностици и лечењу ЦЕС. Бог их је све преварио. Ја увек имам све горе наведене проблеме, али они су прилично управљати са правилно лечење и чулним ограничења о мојим активностима. Ја сам у врху 5% могућности исхода. Дакле, можете видети да је имао злоупотребе није дошло, мој стварни исход не би много, ако их има, боље него што је била. Легално, то значи Злоупотреба није битно. Ја ћу се бавити овим симптомима и ограничења за остатак мог живота, али зато ја радим боље него што би требало, не вреди ништа. Знаш шта? Ја ћу узети мој опоравак преко учинивши слабо довољно да имате добру злоупотребе случај - Сваки дан!!!

Недељу дана после моја супруга и ја починио и попустљив потпуно Господу била је једна од велике духовне напада на нас. Све што може да пође наопако урадили, 10 пута више то урадили. А онда неки! Никад нисам видео ништа слично томе у мојој 55 године. Били смо тако преплављени са проблемима који су настали са свиме, из борбе са бескрупулозном бизнис, за питања осигурања са здравственим, дом, живот и ауто осигурања, у пошту нестају (то је један важан писмо 20 дана да се направи 40 миља), пхармаци налози нестају у транзиту (и не може да достигне некога у компанији да поправи), проблема ауто, и много, много више!

Прво, враћамо пао на нашим старим начинима и почели да се осећају преплављени и љут. Али Бог није хтео да се вратимо на оно што смо били. Он нам је показао да је то био напад духовни и смирио нас са Његовом удобност. Знаш шта, Био је у праву. Ништа од тога изненадио, Он има наше животе, тако Он може да уради шта год жели са њима, и резултат је био невероватан. Ми смо ставили ван захтев молитву и много људи из свих крајева земље молио. Ми смо били заштићени и напади престали.

У остатку месеца 8, Сада сам миграције 100 миља дан, повратно путовање. Ја могу да путовање у послу у само 45 записник. Међутим, повратак кући траје око 65-75 записник. У старим данима (прошлог месеца), Ја бих се обрађена у тиззи са Роад Раге у то време! Сада, Бог је у контроли, када сам се на посао и када сам се кући. I just enjoy talking with Him and being courteous to the other drivers who are desperately frazzled. I used to pride myself on my “excellent” driving skills allowing me to move through traffic quicker than others. Now I drive to help others, even though they won’t often know it. And I get a much bigger charge out of the new way!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (Фото кредит: Википедиа)

In summary, at the end of Month 8, life is good. It certainly isn’t what I would have designed or wanted from the individual aspects. But the whole of what God has made of my life and done in me with His relationship with me, is great! I love my wife more than I ever knew one could love. And the love for my Christian family has multiplied many times over. Мој живот је сада усмерена на то како ја могу да помогнем другима као што сам ићи кроз живот знајући да је Божија жеља за мене је да постане, у речима, мисли, и акције, продужетак Исуса. Када други комуницирају са мном, они морају да виде Исуса и Његову љубав према њима. То је оно што ме покреће сада. То је оно што би требало да возе сви који себе називају хришћанима. Charles Spurgeon је једном рекао, "Сваки хришћанин је или мисионар или варалица."Које су ти?

Месец 8 = Више нормално осећање, више мењање тингли не болан у тингли болан (то значи кретање ка нормалном осећање), и боље црева & активност бешике. Речено ми је да би нерви регенерише за годину дана са већином регенерацију јављају у прва 6 месеци. Сам имао значајне промене од Месеца 2. Можда сам био превише заузет борба Цауда екуина Синдроме него живот с тим. Нећу да кажем да је ово награда од Бога за попустљив Њему, јер ја не верујем Он функционише на тај начин. Он нас све воли и жели да сви верују у Исуса, прво за спасење и друго за живот. Све што Он дозвољава или изазива у нашим животима су да нас доведе до та два циља - први да се ослони на Исусову смрт уместо нас, као једини начин да можемо да имамо исправан однос са Њим и живи са Њим у Рају један дан. Када смо то урадили, Бог фокусира све своје ресурсе ка нама да нас направи снимке у Исуса - ми се обликовала да има љубазних и љубавне речи као Исуса, имају милостиве и великодушне мисли као Исуса, и не ВВЈД (Шта би Исус урадио?) али ВДЈД - Шта ли је Исус До? Како Он поступа са љубављу за друге и за Оца? Није оно што ми мислимо Он ће деловати као нешто у вези данас, уместо вд од Његове љубави у свему.

Шта месец! Какав живот! Хвала за читање, моја породица, моји пријатељи, и моја породица проширена у Његовом Духу.

Енханцед би Земанта

Неправда – Мој цауда екуина синдром Правни прича

Malpractice - 165/365 Because it is rare, some who develop Цауда коњски синдром are the victims of Медицинска злоупотребу. Anecdotal stories abound, along with some documented ones, of CES being brought on or made worse by malpractice. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, no one can be certain if a case exists or how it will turn out. This is my story. It has been reviewed by 2 Ohio attorneys who have experience in Cauda Equina Syndrome malpractice cases. You won't like what it says about our legislatures, legal system, and of course doctor education.

My Cauda Equina Syndrome started with my injury. Within 10 hours of the onset of my CES symptoms, I was in an Emergency Room in Westerville, ОХ. Upon waking on the morning of Feb 12, 2013, I found that I not only had the severe back and sciatic pain of the night before, but now I was NUMB from the waist down! I could not void my bladder nor defecate. I could not move my feet up ово 3nor down and without feeling in my feet and ankles, I could not balance. These are all classic symptoms of Cauda Equina Syndrome. Fortunately we had a wheelchair (and some adult diapers) and just after 10 a.m., I arrived at the ER in my wheelchair.

We had been told that this ER was fast and efficient, and it was close to the office of the physician who suspected Cauda Equina Syndrome and sent us to an ER (with specific directions to have an MRI done.) Immediately upon arrival at the ER, I was wheeled to an exam room and I transferred from my wheelchair to the exam table. My vitals were taken and the male nurse assigned to me came in for the initial assessment. He stood about 5' 4", око 150 pounds, a pleasant. individual who began asking about my symptoms. With my mentioning Cauda Equina Syndrome, he asked if I was incontinent. I said, "No. I can't go!" He then asked me to stand up. I told him I couldn't. I knew I would fall right over, not because my legs wouldn't support me but because I had no balance. And I knew that his small frame would be overwhelmed by my 6 foot tall, 325 pound body. No way he can stop me from falling over if he doesn't prevent it to start with. I told him so, yet he insisted. The results were predictable. On standing up, I immediately began tilting (away from him, naturally) and over I went. The nurse could no longer stop it. The rolling chair in front of a fixed desk was in line with my movement. I was able to grab the back of the chair and as it rolled into the desk, it locked in and I was able to stop my fall. He asked me again if I was incontinent. I responded as I had before. That concluded the initial exam.

A short while later the nurse came back in. He told me that the ER doctor had ordered an MRI for me. The MRI machine was located at the other end of this Ohio Health Medical Campus and did not have an opening for me for almost 4 сати. I had to wait, on that exam table, in pain, until then. The nurse did check on me a couple of times, one time bringing me a couple of replacement diapers as my bladder was so full it was leaking (I still couldn't go!) Thankfully, my wife had some snacks in her purse or I would have been without food for over 10 hours that day - not good for a diabetic! No one ever asked if I was hungry, even though I was there over lunch time. Around 2:15 p.m. the nurse came and took me to the MRI machine. As we wheeled in, I could see that the machine was an older type that was very small. I did not think I would fit. They told me the test would last about 45 minutes and that I needed to lie as still as possible (easy to do when you rate your pain at a 10 and you are not medicated - NOT). I was put into the machine and I did fit, међутим, as I tried to breathe,

The opening in a GE Signa MRI machine
The opening in a GE Signa MRI machine (Фото кредит: Википедиа)

I could not fully expand my chest to take in a breath. I could get no more than 1/2 a breath before the constriction of the machine prevented further expansion of my chest. After several partial breaths, I knew that I could not breathe this way for 45 записник. I told them so and I was removed from the machine - it was just a little too small. As I was wheeled back to the ER, the nurse told me about the larger machines and the open MRI machines in the area. He said, "We can get you into one of those. We'll see what we can do about that." I was returned to the exam table to wait. A half an hour passed with no one checking on me. Then the ER doctor arrived. He told me who he was and that he had been overseeing my care. He then asked me twice if I was incontinent. Again I responded with, "Not incontinent, I can't go!" Then he said, "You do NOT have Cauda Equina Syndrome. Since we are an Emergency Room and your case is not emergent, we can not refer you to an outpatient MRI facility. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, for a first available appointment. He can order an MRI for you." With that he was gone.

Shortly, a person came in and told my wife and I that 2 more people would be coming in, one with the discharge papers and another to wheel me out of the facility. Око 3:15, the woman with the prescription and discharge papers came in. The discharge papers said I should come back to the ER if any of my symptoms got worse OR if I developed any of these symptoms:

"Increased pain, abdominal pain, fever, difficulty controlling bowel/bladder, or any further concerns."

That was on one page of the instructions.

Another page stated this:

"YOU SHOULD SEEK MEDICAL ATTENTION IMMEDIATELY, EITHER HERE OR AT THE NEAREST EMERGENCY DEPARTMENT, IF ANY OF THE FOLLOWING OCCURS:

  • Loss of bowel or bladder control (you soil of wet yourself).
  • Weakness of inability to walk or user your leg(s) or arm(s).
  • Pain not relieved by pain medication.
  • Fever (temperature over 100.5 F) or shaking chills.
  • Severe pain that settles over one particular vertebrae (bone) in your back."

I laughed when I read these! Well as much as one can laugh while in the worst pain I've ever felt. I already had most of these return or get immediate attention symptoms!! The woman said that these were just generic discharge instructions for herniated discs and not specific to me.

Most medical literature states that decompressive surgery must be done within 24-48 hours or the outcome is far worse. Once those 48 hours are gone, you're pretty well going to wind up disabled for the rest of your life. So says the literature. I can tell you right now that that is not always the case as I'm living proof, but that is another story.

Other medical literature says that the surgery must be done within 6-12 hours to effect the outcome. Still other studies say that time to surgery doesn't affect the outcome. Why such divergence? Cauda Equina Syndrome is rare. No one knows exactly how rare, but my research of available estimates would indicate no more than a few hundred new cases a year in the U.S.

It ultimately took 2 weeks for my surgery to be performed. The surgery at Riverside Methodist Hospital in Columbus, OH went well, I went through Acute Rehab there for a week after the surgery. I then went through 15 sessions of Physical Therapy at NovaCare in Westerville, ОХ. My outcome is that I have some normal feeling again in my waist area somewhat in my thighs and in my shins. I have painful tingling in other parts of my thighs and in my feet. My calves are mostly numb unless pressed upon - then I can tell the leg muscles are cramped up, but the good part is that I can't feel the cramps. I do stretches several times a day for calves and hamstrings. I use vision for balance and the leg weakness has diminished, i.e. strength has returned, to the point where I can walk about 500 feet with a cane and about 125 feet unassisted. Bowel and bladder functioning is that they function, I just can't control them or tell when I have to go - I get surprises. I try to go on a regular schedule to avoid surprises and I can tell most of the time when my bladder is getting close to the leaking point. I get a minute or two of warning on bowel movements most of the time, but I don't generally feel them.

In other words, my delayed surgery should have left me disabled, in bed, cathing myself, and on pain killers. I work full time, am ambulatory over short distances don't need cathing, and am on mild, non-narcotic pain relievers. In short, my recovery has been great. One of the best. Међутим, I still have a life of everyday being a physical challenge and struggle. That won't change, but that's okay (subject of another story.) I did a lot of wondering if I would have gotten back to normal, or almost normal, had I had surgery quickly, у 48 сати. Feeling that the care I received from the ER doctor was negligent, I took everything to a Columbus, OH attorney. He called on another attorney in Cleveland, OH for a second opinion.

They both agreed that malpractice was committed, that the ER doctor "dropped the ball" as one of the attorneys put it. Међутим, due to the standards for malpractice claims in Ohio, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (my really much better than predicted by the facts outcome) would be an insurmountable challenge in court. Since that is the portion that really drives the dollar amount of any settlement, and thus the attorney's fees, my remarkable, blessed recovery makes pursuing the malpractice and negligence of the ER doctor not feasible. If I had not pushed to recover, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, and will go through the rest of my life, amounts to nothing. Our legal system is such that only lucrative cases are pursued. And our medical system does not educate doctors, nurses, and first responders adequately nor does it keep them updated. Had the ER doctor realized that bladder retention and not only incontinence is an indicator, we would have been golden. The info regarding retention is widely available on the internet and in medical journals.

To discount the correct diagnosis on the basis of 1 symptom is not what I want in a doctor. I feel that justice has lost in this one. Међутим, I am at peace with this as I relate in this post - My Blog Title Changed but Still About Cauda Equina Syndrome and Me.

Енханцед би Земанта

Блог назив промењен, али ипак о цауда екуина синдром & ми

I have changed the title of my blog. Why? Not out of boredom or just liking change, much has happened since my last post. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... and His immediate purposes behind it.

My faith has seen me through this "Battle" са Цауда коњски синдром (ЦЕС) thus far, but I had no idea where my faith journey was heading. Yes, I wondered why this had happened, what God wanted me to learn and how I should view it. We all know that bad things happen to good people and good things happen to bad people. We always want to know why and often the answer we get is that we may never know why in this lifetime so we just have to live with it. I've heard a lot over the years about people with terrible injuries and diseases "борба" или "battling" those things which seek to either ruin or take their life. Friends and relatives have been touched by, and some lost to, injuries or disease. Now it is my turn.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. God wanted so much more from me but I had succumbed to "The Rat Race" and devoted myself to my work. Don't get me wrong, work is important, but so much more had suffered. My relationship with my wife, my time and service to God and the joy was gone from my life. Through this time of a changed life, where the daily routine of getting up and going to work is a draining physical challenge for me, I've seen myself as battling CES as though my faith, grit and determination were being tested. While they were being tested, that wasn't all. My focus had been on recovering far more than the doctors and physical therapists ever thought I could, further than the medical research said I could. I was going to win my "Battle". I didn't, and don't, hold out the idea of a complete recovery but my goal has been to be able to walk without assistance again - a lofty goal for someone with CES.

It was my attitude that needed changing. I saw this as a challenge where my faith would see me through and coming out the other side of this I would give the credit to God. I would be a faithful soldier in His service. Nothing wrong with that, but... God wanted me. All of me. He has wanted all of me for a long time. I thought I had given myself to Him fully many years ago. He has used me in so many ways everywhere I've lived. But as I said, I had slowly slipped back in to taking His blessings and running with it for my own purposes without even considering His. My wife tried to help me see it, but I was too focused on my goal - which had been so out of reach and now, because of God's blessing, was within my grasp. My attitude had slowly changed and was no longer good. God's smackdown on me physically also affected me emotionally, mentally and spiritually as well. Коначно, everything was stripped away but the spiritual. I found that I had taken myself back from God and He was calling me to give myself completely to Him. Only this time, I understand there is much more depth in this commitment than I ever thought possible before.


In the Ohio derecho storms of June 29, 2012, we lost an old Ash tree that was 85 feet in length. Two men gave us a really good quote on cutting up the tree, removing the stump, and hauling it all away. They figured they could do it in 2 days, 6 hours a day . The stump was incredibly stubborn. Once they started on it, they found it had thick roots running out in all directions for many, many feet. It was too thick for their saws. They chopped at it with axes and worked 3 days from morning till dark. They even had another person come help. And still the stump remained. Finally they rented a stump grinder and did their best. That stump beat them badly for days. In the end, they accomplished what we needed leaving a small mound where the tree had been, међутим, there are still roots under that mound. And they had spent over 40 hours on the project. Their quote earned them less than $6 per hour.

That's how it is when I first gave myself "fully" to God. I saw what looked like full commitment and made that commitment. Over time, there was more and more revealed but I had my goals and dreams too and there was no time, no room, for truly giving myself to God as fully as He wanted. In time, I took back what I had given Him. Suddenly, this year, God changed all of that. Stricken with an injury that would change the rest of my life, taking away many of the things I wanted to do and accomplish, I now had time for Him. I've learned that He wants all of me, and I've made that commitment to Him. Сада, whatever recovery I have is fine with me. Of course being who I am, I will still be pushing for the best results possible. As with many whom God used in the past, He has place His mark of ownership on me - my CES. It is a reminder of whose I am, whose strength I depend on, and who has complete control of my life. We are not to give God a little, or even a large, part in our lives. He wants our whole life to be a part of His. He wants to live out His life through us. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. Not just our character, but character drives motivation, and out of motivation comes actions. God uses the events in our lives to transform us (Romans 12), and He transforms us into people who think, act, speak, and love just like Jesus. Why? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - look at how we Christians live! That isn't God's plan. Time for me to get with the plan. And I no longer fight CES, but it is a mark of ownership on me and of my commitment to God. So it is now "Мој живот са цауда екуина синдромом" and thus the new name for my blog.


 

Енханцед би Земанта