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ажурирање – 18 Неколико месеци раније… Моје путовање са цауда екуина синдром Беган

18 Неколико месеци раније…

он Феб 11, 2013, Никада нисам чуо за Цауда коњски синдром (ЦЕС). То се променило следећег дана. Данас, 18 неколико месеци раније, Пробудио сам се без осећања испод мог струка. Нешто веома погрешно се дешава са мојим телом! Нисам то знао тада, али сам почетак путовање под називом цауда екуина синдром.

На овом блогу сам забележио прву годину тог путовања. Ја сам био веома благословени у мом опоравку, посебно имајући у виду да је требало 14 дана да имам декомпресију операцију и немају никакав осећај испод мог струка. Ја не покрива детаље о томе шта је написано пре, али ово ажурирање даје брз поглед на мој напредак од годину дана знак у.

Многи неурохирурга и друге лекари кажу да нервне регенерације јавља само за 12 месеци, док други кажу 12 - 18 месеци је време у коме се оно што лечење ће се десити деси. Мој физиотерапеут ми је рекао 18 - 24 месеци. Ја не знам да ли је ово "линији фронта" Информације о или да ли је она само покушава да ме подстакне даље од већ сам био.

За мене, су месеци од мој 1 годишњица су изазов са неким мањим регресије - али, Ја сам увек видим спуртс значајних регенерације изјашњавања месту. Прошао сам кроз период од честих болова нервне у врху моје десне ноге. Изгледало је да се погоршава моје вече путује, што је обично око 1 сат 10 записник. Последњи 10 - 15 минута вожње бих добили "електро-шок" осећај да раније познате из других делова тела у мом опоравку.

То су били тако болно скоро сам постао опасан возач. Пао сам на своје лета вештина за обуку - АБЦ - пилотирати (Авионом, у овом случају, drive the car – make sure you don’t run into someone or something), Navigate (Don’t get lost and for the car it means make sure you don’t miss a turn while distracted), Communicate (In the air, we’d get help from controllers on the ground, in the car, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ inch band around my foot, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, већ само доњи ½ тога и одговарајући предњи површина. И то је недавно побољшање. Ја сам сада у стању да хода без помоћним уређајима за преко 100 м, али ноге и кукови су потпуно исцрпљена од напора и да су у умереним боловима до краја. Али ја побољшање, полако али сигурно, И даље јачање и побољшање.

И даље не могу да поднесем више од 20 - 30 секунде, ни одстоји више од једног сата без проблема. Ово ограничава моју способност да путује и крајње је пропустио (не пун интендед.) Стално гурају да се побољша. Ако не, Нећу знати колико могу побољшати. Тако радим пуно радно вријеме, са 2 сати повратна заменити време. И шетам кад год могу, до тачке нису у могућности да више. У време када дођем кући сам исцрпљен. Ја још нисам морао имати операцију на торн тетиве у десном стопалу.

Без обзира на то, Бог је допустио да доведе мале групе и часове у цркви. Заиста сам благословен. Нико од нас који се мучи са ЦЕС желе да останемо такви какви јесмо. Учимо да се бави повреде и боримо се да превазиђе колико њеног утиче на могуће. Лако је гледати около, видели људе који не цене само акт бити у стању да хода. или рун. Или одстоји неколико минута. или путовање 6 сати у посету са старим пријатељима или многе друге ствари. Гледајући ово ће сигурно довести до пораза, депресија, и спирала. Погледајте шта можемо уместо тога остварити! Живот је другачији, Није готово. То није фер, али онда смо знали да већ дуже време. Бирам да пустим инвалидност ме ојача, rather than define me. I challenge you to choose your goal and work for it!

 

ЦЕС | Месец 11 са цауда екуина синдромом

Месец 11 има летео (као има месец 12 до сада, тако то касно порука).

.lies

Месец 10 ended with some bad things happening in my personal life. These continued through most of Month 11 as well. I was dealing with the feelings caused by my породица member and also a friend. Of the two, сломљен пријатељство hurt far more. The relationship with my family member had been on a long slow descent with an abrupt, али кратко, cliff at the end. The broken friendship is something that I didn’t see coming… a total surprise and shock. We’ve all been there before, али то је било тако давно неко сам сматрао да затвори у мом срцу је урадио такву ствар.

 

.unknowingНе желим пријатељство сломљен, but it remains that way to this day. For almost a month, I didn’t know how I would feel should my friend ask for forgiveness. Коначно, the hurt receded. This allowed me to align my feelings with my caring for this person. I am now at the point where I can forgive my friend should they ask for it. I can also continue the friendship; међутим то не би било тако близу као пре ... Нисам у тренутку у свом животу, где сам вољан да верујем лажови довољно да им се омогући у мом кругу блиских пријатеља. Perhaps I never will be. The really sad part is that I don't think this person has the first clue that they've done anything to hurt me.

 

 

.trust

Божић came and went during Month 11. We had a nice, quiet time - али Олдер добијем, the more I miss having a family that loves one another. We don’t have children and that puts us in a lonely place too. I come from a very dysfunctional family. Perhaps that is why I have such revulsion for liars. My family’s holiday gatherings (Благодарење & Божић) су увек били велики шоу где свако стави маску и живели ван лаж да смо сви нормални, caring family. The rest of the year told a different, sad story. I survived, али не неповређен, by getting out. 2014 обележава мој 21ст година живи на стотине (Сометиме хиљаде) of miles from family. If you rule out the “visits” when they were just bringing my Mom to see me, или по њу, Ја могу да рачунају на прстима једне руке колико пута моја породица ме је посетио у онима 21 године. I, међутим, су их посетили најмање десетак пута.

На мојим ЦЕС ...

Док сам ходао као Франкенштајн и не могу да осетим зглобове, it seems I had such a poor gait that I tore a tendon in my right ankle. Now that I have some feeling there, Знао сам нешто друго осим бола нерава од Цауда коњски синдром was going on. The Doc said only surgery will fix it, but for now I’m only wearing an ankle brace. Had I noticed this earlier last year I would have had the surgery, али то је нова година, with a new insurance deductible. And of course I’m on a high deductible plan (не по избору - то је све моје понуде послодавца).

I have regained feeling in a lot of areas. The results of the nerve conductivity tests showed most of the L4/L5 damage has healed. This was the level at which the disk blew out, so I happy with that finding. However the points below L4/L5 still show significant injury and the jury is still out as to what will happen with those areas. I do have more “струјног удара"Укуцајте осећања, mostly in my right foot. The backs of my thighs and lower buttocks are still numb as is most of my genital area. B&Б је и даље питање које захтева много менаџмента (то је бешике & Црево, не Кревет & Доручак).

Ја сам био охрабрен, као Монтх 11 затворено, од стране мале групе Библија студија we’re doing in our home. Between that and studying for my ЦМА испит у фебруару, I haven’t had much time for other things or maintaining relationships. I’ll be so glad once this exam is taken. I’ve had to give up some things – things I love doing - on the schedule in order to concentrate on these. After the exam, Имам неколико других пројеката на мојој листи спреман, тако да ћу наставити да остане заузет.

Да ли мој синдром цауда екуина утиче на све ово? Definitely! Does it help shape my life? Absolutely! Is it defining me? In some small way… it is a part of me, just as my arms or legs are. Yes, Имам лоше дане, и физички и емотивно - надам се не и у исто време! Through it all I rely on God’s love to see me through. In His love He knew that my back would be injured and He used that event to prod me to grow closer to Him. He has sustained me, хранили ме, and lifted me up. I am a better person, at a better place in life because of God taking the lemons of Cauda Equina Syndrome and helping me make lemonade out of them. Where that will lead I do not know, али оно што сам ја на авантура!

Цауда екуина синдром изазива више штете

Sometimes it just doesn't seem to end.moving-forward-quotes253

Као што сам имала нервни прираста након штете коју је проузроковао мој цауда екуина синдром, I was able to feel a pain in my right ankle that wasn't like the pain in my other ankle nor the other side of my right one. Имао сам то проверио пре Божића. Др. је рекао да је мислио да је поцепана тетива & наредио нерв проводљивости тест (да утврди штету у износу нерава и даље присутан) и МР на том десном зглобу. Тестови су урадили одмах после Божића.

Вратио сам се јуче код лекара да добијете резултате. Никада оштетити - још много; тетива - искидан, и поцепана до те мере да само поправити за то ће бити операција. Па управо смо почели нову годину, тако да операција ће бити ван џепа трошку. Није проблем ако постоји нешто у џепу. После 4 операције и рехабилитацију прошле године између Ким и мене, џепови су голи. Дакле, морамо да верујемо Богу да обезбеди за ово. Ниједна одредба = Не операцију.

blessings-healing-mercies-lauras-story-song-lyrics-the-positive-pear1So I'm wearing a brace and have order to take it easy. Др. показао ми покрете сам ја да не дозволи ми да се стопало, заједно са неким ограничењима активности (од којих већина не могу ионако због цауда екуина синдром). Он је рекао да, ако је то превише болно или имам више него добро лоше дане, онда ће бити време да се раде.

Затим, ту је опоравак - не-тежину имајући цаст за 3 недеља, Ходање цаст за 3 више недеља, припремају за још чизму 3 више недеља онда физикална терапија. Сада то једноставно није у картама.

Како се ово односи на мој цауда екуина синдром? Упала мог површног перонеал нерва рестриктивног колико сам могао да савијем навише своју десну ногу, па када се узме један корак напред са левом ногом, да ограничење чувају зглоб од савијања напред како би требало. Једном је погодио ту тачку, то би "ролна" напоље (право) страни скочног зглоба. То је изазвало доста кретања у лошим начинима на тетиве, на крају изазива сузе.

Дакле, идемо даље. До сада ово је утицало на брзину и дужину мог ходања. We'll see what else it affects. Али, у овом, и у свим стварима, my wife and I trust God's plan for us. И ми смо га хвале и настави да хода, мада спорије, са Њим на овом путовању.

 

ЦЕС | Месец 10 са цауда екуина синдромом

ЦЕС | Месец 10

Месец 9 came to a close with my wife and I preparing for her knee replacement surgery. We were well prepared. Онда, as with a coastal dweller riding out a hurricane, it hit.

We arrived at the hospital early and checked in at 6:59 a.m. She was taken to pre-op at 8 a.m., 30 minutes late and the snowball started rolling. They took her to surgery at 9:49 and surgery actually started at 10:23 – now some 53 minutes behind schedule. Why is all of this important? I have Cauda Equina Syndrome and sitting, especially in uncomfortable chairs, takes a toll on me.

I had to get up and walk around every so often then sit back down, as neither is a good long term proposition for me. I was hurting more with each passing minute. У 11:43, my wife’s surgery was done and she went to recovery. I spoke with the surgeon and then went to wait some more.

I got a couple of calls on my cell phone from a recovery room nurse explaining that my wife was slow in being able to move her good leg. They had done a spinal block for the anesthesia rather than a general. After the block, she would have to stay in recovery until she could move legs, м, and sets of toes. I hunted down the cafeteria to get some food. After a long walk, I found it.

The food wasn’t bad at all. I sat, resting my legs, until my butt & lower back began hurting again. I dreaded the long walk back to the waiting area, but I had to walk again, so off I went. I actually stopped along the way to give my hips a rest. Walking tires out my leg muscles, particularly my hips, very quickly. I’ve been doing strengthening exercises, but haven’t seen much improvement in several months.

Arriving back at the waiting area, I sat down again for the wait. Just before 3 p.m., they called me to the front desk and advised me that my wife was leaving recovery for her room. Off I went, slowly but surely… down the hall to the next section of the hospital, up the elevators, then down a couple of more halls to her room. On the verge of needing to sit down again, I arrived at her room. There was no name plate on the wall by the door but I entered anyway. Nothing but 2 chairs and a nightstand were there. On the whiteboard, no patient, nurse, or tech names were written. Did I have the right room? Just then, a nurse came in and asked if I was in the right place. I thought of several pain induced sarcastic remarks but quickly quashed those, instead saying, “I guess I beat her here.” The nurse left.

My wife did arrive shortly, и 1 of the chairs was an ortho chair, which type one of my techs during my stay at this hospital earlier this year due to my CES surgery had swiped from this floor to let me sit in. I was very pleased with this because they are comfortable. At last, a comfy chair! In comes my wife’s nurse and tech, along with the social worker. I thought I recognized the tech. When he said his name, Randall, I knew! He had been my tech 9 months earlier. He thought I looked familiar too when I asked him if he had worked on another floor 9 неколико месеци раније. He still works the neuro floor but does extra shifts on the ortho floor for some overtime.

My wife’s pain was not well controlled the first 24 hours after surgery so she had to stay in the hospital for 2 nights instead of the planned 1. During this time, my pain was not well controlled either. The morning after surgery, I got out of bed and hurt so badly that I really didn’t want to move. Then I had to go to work… ugh! The next day, I got to pick my wife up and bring her home – Oh Happy Day! Then it was waiting on her, which was nothing like what she had to do while waiting on me earlier in the year! But I didn’t get much rest for a few days and I was in a lot of pain. I felt like I had 4 или 5 months earlier.

Slowly I she and I both recovered. After about 2 недеља, her recovery accelerated and by the end of 4 недеља (also the end of Month 10 of my CES), she was ready to start driving again. Only in the last week did my pain subside, in part due to Thanksgiving.

Central Ohio was visited by a snow storm just before Thanksgiving. With this being the first snow for our Elantra, I didn’t know how well it would do. I had it parked in the garage which requires a climb up a moderately steep hill for 70 м, then a 70 degree right turn, followed by another 40 feet of steep hill to get to our street. Our former ride, a 2010 Prius, made that in 4 inches of snow with no problem… not so the Elantra. To be fair, the Prius had high end Michelin all weather traction tires on it. Since we’re not worn out the OEM tires on the Elantra yet, we’ve not replaced the tires so this isn’t necessarily a fair comparison. У сваком случају, the Elantra couldn’t quite make it to the turn in the driveway… I was stuck. My wife’s ’98 Caddy was parked in front of the house with a straight shot up the last section of driveway, except her sister had parked it straight in instead of backing it in – no way to get it out until the driveway thaws.

Тако, being ever so adventurous, I decide the next day to walk down the driveway to get our snow shovel out of our outbuilding. Да, you guessed it, I slipped and fell. In the process, I injured my back. At first it seemed to be just muscle. After a day or so, it seemed like a disk bulging but not rupturing. Lots of heating pad time and rest helped my back return to normal. After all of this adventure, I feel better and with less pain than when the month started.

I had pain in the right superficial peroneal nerve since my Feb injury. Not really raw pain but a tightness, in the front part of my ankle. When walking and stepping forward with my left foot, if I stepped too far the nerve would bend no further and my ankle would roll to the right. Very disconcerting and painful. Last week my ankle gave a loud “pop” and the tightness and pain went away. Evidently the swollen nerve is continuing to decrease and did so to the point where it broke free of its impingement. Good. Very good.

Spiritually this month was a learning and testing month. Everything encountered in Month 10 was a challenge to some aspect of my surrender of everything to God in Month 9. I was pondering, for a time, the regression of my symptoms. I had my schedule overloaded. I was hurting and tired. A family member turned his back on me after I had been his biggest supporter while he was growing up. My crime against him was telling him some things he was saying weren’t true and I didn’t want him spreading falsehoods because it would make him look less intelligent. He told me off and cutoff communication. I also felt the sting of dishonesty from a friend. Those who know me know that honesty is an absolute with me. I give it and expect it. While I know that most people engage in what they consider small lies to their friends, it is extremely NOT a small matter with me. In this case, I'm sure they thought nothing of it, not even aware they did it... nor of how my discovery of it would affect me. My asking God to teach me to have more grace is being answered through this, but it is definitely not the way I would want to develop more grace.

In the end, physically I end Month 10 doing better than last month. Life is becoming still busier, and that is good due to what is making it that way. Emotionally & spiritually, I’m battling through the emotional aspects of actions by my family member and my friend. I have always been one for reconciliation but these will be difficult. So on to Month 11! Coming up on a year, and I think coming up on an end to the posts on this blog. My battle with CES turned into my life with CES, which has mostly pushed CES into the rearview mirror. Yes, I still have it. Yes, it affects me every day. Yes, it will still do so for the rest of my life. But I’ve come out of my encounter with it. It is God’s mark of ownership on me and I’m growing used to it being here. Its impact on me has been to drive profound and beneficial changes in me. That drive is coming to an end and soon it will be parked by the house, around but not used, destined to become a rusting old junk heap with weeds growing up around it. Yeah, that’s a good place for it.