於二月 11, 2013, 我從來沒有聽說過 馬尾綜合徵 (國際消費電子展). That changed the next day. This very day, 18 幾個月前, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, 但我開始叫馬尾症候群之旅.
On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, 特別是考慮到它了 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.
許多神經外科醫生和其他醫生說， 神經再生 只發生 12 個月, 也有人說 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 個月. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.
對我來說，, 自從幾個月我 1 週年慶已與一些小的回歸有挑戰性 - 但, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, 這通常是圍繞 1 小時 10 分鐘. The last 10 - 15 驅動我會得到的“電擊”的感覺分鐘，從身體的其它部位更早如此熟悉，我恢復.
These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (駕駛飛機, 在這種情況下, 開車 - 確保你不會碰到某人或某事), 導航 (不要迷路和汽車就意味著要確保你不要錯過了轉彎而分心), 溝通 (在空氣中, 我們會從地面上的控制器得到幫助, 在車, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾英寸左右我的腳帶, beginning about ½ inch above the bottoms of the feet (my toes excepted as they have had feeling for some time.)
My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 腳, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, slowly but surely, I continue to strengthen and improve.
I still cannot stand for more than 20 - 30 秒, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (no pun intended.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, with 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.
Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depression, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and 為它工作!