国际消费电子展 | 月 8 马尾综合征

ces awarenss wristbandMy 8 month with 马尾综合征 is in the books now and what a month! We moved back to our old house on Sep 6 and began the process of unpacking. 我从九月告假 6 - 15 所以我可以帮助监视举动 (,甚至一点点帮助。) We’ve been taking it slowly, metering our energy and pain levels out. My wife and I enjoyed our time together immensely. We did our devotional times together and then discussed it in depth, often spending an hour or more a day on it. We found out that there is a lot of truth in the statement, “The closer a couple gets to God, the closer they get to each other.” We had a great time of reconnecting in a relaxed atmosphere. We sure needed this time!

Just prior to the end of Month 7, I reached a low point in battling CES. The long days of physical challenge, the emotional toll, and the strain on my wife as well came to a head. 我不知道它,然后, but God was preparing me for what was just days away. He broke me down completely as I spent several hours one night, sobbing and crying out to Him. I was looking for answers and understanding. 终于, I was spent physically, 情感, mentally and spiritually. Then there was nothing. No prompting, no comfort, no answers. I fell asleep.

Blessed be your nameImmediately upon waking the following morning, I knew God had answered. His peace was on me like never before and I felt His comfort wrapping me. Not a in a physical sense, but just knowing, throughout my being, that He had heard and was showing His love for me. It changed my outlook on life, my Cauda Equina Syndrome, and much more. I even changed the title of this blog. You can read more about it here - http://wp.me/p3A64Y-7V

During the study my wife and I were doing together after moving, each of us (separately) came to a realization that we had slowly taken back our lives from God and that He was calling us back to fully committing to Him. We explored the depth of that commitment because it was clear that it was far more than we had ever considered it to be. As we each pondered it that day, the Word sank in. That evening, I told my wife that I had decided to go all in – yielding my life to God for His purposes. She had made the same decision. We rejoiced together.

In Month 8, I also came to the end of the road for legal action regarding my Cauda Equina Syndrome. I had 2 separate law firms look at the case for a possible malpractice claim. Both attorneys say that without doubt there was 医疗事故 committed on me. 然而, under Ohio law, the “value” of a medical malpractice case is determined by how much better your outcome would have been if the malpractice made a difference. I have been very blessed by the Lord in my recovery thus far. Most who are afflicted with Cauda Equina Syndrome are left mostly or totally disabled for the rest of their lives – dealing with pain, numbness/lack of feeling, bladder and bowel problems and sexual dysfunction.

I’ve pushed hard since my surgery, spending a week in Acute Rehab at the hospital then 2 months of outpatient 物理疗法. I’ve done my stretches and exercises faithfully. I willed myself back to work and worked through pain for several months. My recovery, by objective standards, has been remarkable. My prognosis at the time of the surgery was in the worst possible outcome category due to the malpractice and delay in diagnosing and treating the CES. God fooled them all. I still have all of the above problems, but they are quite manageable with proper treatment and sensible limitations on my activities. I’m in the top 5% of outcome possibilities. So you can see that had the malpractice not occurred, my actual outcome wouldn’t be much, if any, better than it has been. Legally, that means the malpractice didn’t matter. I will be dealing with these symptoms and restrictions for the rest of my life but because I am doing better than I should, it isn’t worth anything. You know what? I’ll take my recovery over having done poorly enough to have a good malpractice case – ANY DAY!!!

The week after my wife and I committing and yielding fully to the Lord was one of great spiritual attack upon us. Everything that could go wrong did, 10 times over it did. And then some! I’ve never seen anything like it in my 55 岁月. We were so overwhelmed with PROBLEMS that arose with everything, from fighting with an unscrupulous business, to insurance issues with health, home, life and auto insurances, to mail going missing (it took one important letter 20 days to make it 40 miles), pharmacy orders disappearing in transit (and unable to reach anyone in the company to fix it), to car problems, and much, much more!

起初, we fell back to our old ways and began to feel overwhelmed and angry. But God wasn’t going to let us go back to what we were. He showed us that it was a spiritual attack and calmed us with His comfort. You know what, He was right. None of it surprised Him, He has our lives so He can do whatever He wants with them, and the result was amazing. We put out a prayer request and many people from all over the country prayed. We were protected and the attacks ceased.

In the rest of Month 8, I’m now commuting 100 miles a day, round trip. I can make the trip in to work in just 45 分钟. 然而, the trip home takes about 65-75 分钟. In the old days (last month), I would have worked myself up in a tizzy with Road Rage in that time! 现在, God is in control of when I get to work and when I get home. I just enjoy talking with Him and being courteous to the other drivers who are desperately frazzled. I used to pride myself on my “excellent” driving skills allowing me to move through traffic quicker than others. Now I drive to help others, even though they won’t often know it. And I get a much bigger charge out of the new way!

Charles Spurgeon (C.H. Spurgeon)
Charles Spurgeon (C.H. Spurgeon) (照片来源: 维基百科)

In summary, at the end of Month 8, life is good. It certainly isn’t what I would have designed or wanted from the individual aspects. But the whole of what God has made of my life and done in me with His relationship with me, is great! I love my wife more than I ever knew one could love. And the love for my Christian family has multiplied many times over. My life is now focused on how I can help others as I go through life knowing that God’s desire for me is to become, in words, 想法, and actions, an extension of Jesus. When others interact with me, they must see Jesus and His love for them. This is what drives me now. It is what should drive all who call themselves Christians. Charles Spurgeon once said, Every Christian is either a missionary or an imposter.” Which are you?

月 8 = more normal feeling, more changing of tingly not painful into tingly painful (this means movement towards normal feeling), and better bowel & bladder activity. I was told the nerves would regenerate for a year with most of the regeneration occurring in the first 6 个月. I’d had no significant changes since Month 2. Maybe I was too busy fighting Cauda Equina Syndrome rather than living with it. I’m not going to say that this is a reward from God for yielding to Him because I don’t believe He operates that way. He loves us all and wants us all to trust in Jesus, first for salvation and secondly for life. All that He allows or causes in our lives are to bring us to those two goals – first to rely on Jesus’ death in our place as the only way we can have a right relationship with Him and live with Him in Heaven one day. Once we have done that, God focuses all of His resources towards us to make us into images of Jesus – we are molded to have kind and loving words like Jesus, have gracious and generous thoughts like Jesus, and not WWJD (What Would Jesus Do?) but WDJD – What Did Jesus Do? How did He act with love for others and for the Father? Not what we think He would act like regarding something today, instead acting out of His love in ALL things.

What a month! What a life! Thanks for reading, my family, my friends, and my extended family in His Spirit.


冤 – 我的马尾症候群法律故事

Malpractice - 165/365 ecause实属罕见, 一些谁开发 马尾综合征 是的受害者 医疗事故. 轶事典故比比皆是, 还有一些记载的人, 的CES上被带到上或不当行为而恶化. Given the laws covering malpractice in varying jurisdictions and the variability of each person's CES, 如果存在的情况下没有人可以肯定,否则将如何转出. 这是我的故事. 它已被审查 2 俄亥俄州律师谁在马尾症候群纠纷案件的经验. You won't like what it says about our legislatures, 法制, 当然医生的教育.

我的马尾症候群开始与我的伤. 内 10 我的CES上出现症状的时间, 我是在魏斯特维尔急诊室, OH. 醒来后的上月的早晨 12, 2013, 我发现,我不仅有严重的背部和前一天晚上的坐骨神经疼痛, 但现在我是从腰部向下麻木! 我不能丧失我的膀胱也没有大便. 我不能移动我的脚 这些 3也不下来,没有在我的脚和脚踝感觉, 我不能平衡. 这些都是马尾症候群的所有典型症状. 幸运的是我们有一个轮椅 (和一些成人纸尿裤) 而刚过 10 上午, 我在我的轮椅到达急诊室.

我们被告知,这是急诊室快速,高效, 而据接近谁怀疑马尾神经综合征和把我们送到急诊室医生的办公室 (提供具体的方向有一个做了MRI检查。) 到达急诊室后立即, 我被推进到一个考场,我从我的轮椅转移到考试表. 我的命脉拍摄,并分配给我的男护士进来的初步评估. He stood about 5' 4", 关于 150 英镑, 一个愉快的. 个人谁开始询问我的症状. 随着我提的马尾症候群, 他问我是不是失禁. 我说, "不. I can't go!" 然后,他问我要站起来. I told him I couldn't. 我知道我会摔倒在右, not because my legs wouldn't support me but because I had no balance. 而且我知道,他的小框会被压垮我 6 身高尺, 325 英镑机构. No way he can stop me from falling over if he doesn't prevent it to start with. 我告诉他这样, 但他坚持. 结果可想而知. 上站起来, 我立刻开始倾斜 (离他远点, 自然) 而在我去. 护士再也不能阻止它. 在一个固定的办公桌前的椅子上滚动在我的运动线. 我能够抓住椅子背和它滚到桌子, 它锁定在和我能阻止我的秋天. 他问我,如果再我失禁. 我回答,因为我以前有. 这结束了首次考试.

过了一会儿,护士回来了. 他告诉我,急诊室的医生为我订购了核磁共振检查. MRI机器是位于本俄亥俄健康医疗校园的另一端,没有开口对我来说几乎 4 小时. 我不得不等待, 该考试表, 在痛苦中, 直到这时. 护士也检查了我几次, 有一次把我一对夫妇更换尿布,作为我的膀胱是如此的充满了漏水 (I still couldn't go!) 感激地, 我的妻子在她的钱包一些零食或者我本来没有食物了 10 那天小时 - 对于糖尿病患者也不好! 从来没有人问我是不是饿了, 尽管我在那里吃午饭的时间. 围绕 2:15 比前收市价. 护士来了,把我的MRI机器. 正如我们在轮式, 我看得出来,机器是旧的类型,这是非常小的. 我没想到我会适合. 他们告诉我的测试将持续约 45 分钟,我需要的还是在于尽可能 (容易当你给你的痛苦在做 10 而你是不是药 - 不). 我被放进机器,我做了适当的, 然而, 当我试着呼吸,

The opening in a GE Signa MRI machine
在GE Signa的MRI机器开幕 (照片来源: 维基百科)

我不能完全展开我的胸口采取了一口气. 我能得到不超过 1/2 机器的收缩之前,呼吸抑制我的胸口的进一步扩大. 经过多次局部的呼吸, 我知道我不能呼吸这样的 45 分钟. 我告诉他们,我是从计算机中删除 - 这只是一个有点小. 当我被推回急诊室, 护士告诉我关于大型机器和 开放式MRI 在该地区的机器. 他说,, "我们可以帮你进入其中的一个. We'll see what we can do about that." 我被退回来检查台上等待. 半过去了,没有人检查了我一个小时. 然后,急诊医生到达. 他告诉我他是谁,他一直监督我的关心. 然后,他问了我两次,如果我是大小便失禁. 我再次报以, "没有大小便失禁, I can't go!" 然后他说:, "你不要有马尾神经综合症. 由于我们是一个急诊室,你的情况是不会出现的, 我们不能转介你到门诊MRI设备. I'm going to give you a prescription for Percocet and a referral to our group's back specialist, 对于第一个可用的预约. 他可以订购了核磁共振检查为您服务。" 与他不见了.

不久, 一个人走了进来,告诉我的妻子和我的 2 更多的人会来的, 一个具有放电论文和另一轮我出的设施. 关于 3:15, 女人与处方药和放电的论文排在. 放电论文说我应该回到急诊室,如果我的任何症状变得更糟,或者如果我开发的任何这些症状:

"疼痛加剧, 腹痛, 发烧, 难以控制肠道/膀胱, 或任何进一步的关注。"



"您应该寻求 就医 紧接, 在这里或在最近的 急诊科, 如有下列情况发生:

  • 肠或膀胱失去控制 (湿自己,你的土壤).
  • 行走无力或用户你的腿的弱点(s) 或手臂(s).
  • 疼痛不是止痛药缓解.
  • 发烧 (温度超过 100.5 F) 或打寒颤.
  • 剧烈疼痛落户在一个特定的椎骨 (骨) 在你的背部。"

我笑了,当我读到这些! Well as much as one can laugh while in the worst pain I've ever felt. 我 已经有 大多数这些退货或得到立即关注症状!! 该女子说,这些都是为突出的椎间盘,而不是具体的我只是一般的出院指导.

该减压手术多数医疗文献的国家必须内完成 24-48 小时或结果是差远了. 一旦这些 48 时间是走了, you're pretty well going to wind up disabled for the rest of your life. 所以说,文学. I can tell you right now that that is not always the case as I'm living proof, 但这是另一个故事.

其他医学文献指出,手术必须在完成 6-12 小时以实现该结果. Still other studies say that time to surgery doesn't affect the outcome. 为什么这样的分歧? 马尾神经综合征是罕见的. 没有人知道到底有罕见, 但我可估计的研究将在一年指示不超过几百个新的案件在美国.

它最终把 2 要执行周为我的手术. 在河沿卫理公会医院在哥伦布手术, OH进展顺利, 我通过急性康复,手术后在那里度过了一个星期. 然后我经历 15 物理治疗在魏斯特维尔会议在NovaCare, OH. 我的结果是,我再有一些正常的感觉,在我的腰部有点在我的大腿和我的小腿. 我有痛苦的刺痛了我的大腿等部位,并在我的脚. 除非按下后,我的小腿大多是麻木 - 那么我可以告诉腿部肌肉都抽筋了, but the good part is that I can't feel the cramps. 我绵延,每天数次为小腿和腿筋. 我用视觉平衡和腿部无力有所减少, 即. 实力已经恢复, 到这种地步,我可以步行约 500 脚时带着一根手杖和有关 125 脚求告无门. 肠和膀胱功能是,它们的功能, I just can't control them or tell when I have to go - 我得到的惊喜. 我试着去定期调度,以避免意外,我可以告诉大多数的时候,我的膀胱是越来越接近泄漏点. 我得到排便警告一两分钟的大部分时间, but I don't generally feel them.

换句话说, 我推迟手术应该给我留下禁用, 在床上, cathing自己, 和止痛药. 我全职工作, am ambulatory over short distances don't need cathing, 而我对轻度, 非麻醉性止痛药. 总之, 我的恢复已经很大. 其中最好的. 然而, 我还有日常的是一个物理的挑战和斗争生活. That won't change, but that's okay (主题的另一个故事。) 我做了很多不知道的,如果我会得到回复正常, 或基本正常, 曾经我很快做了手术, 内 48 小时. 感觉我从急诊室医生接受的护理是疏忽, 我把一切都到哥伦布, 俄亥俄州律师. 他呼吁在克利夫兰另一个律师, 俄亥俄州第二意见.

他们都一致认为,医疗事故承诺, 该急诊医生 "搞砸了" 作为律师之一把它. 然而, 由于该标准在俄亥俄州医疗事故索赔, both attorneys felt that proving that the doctor's negligence greatly affected my outcome (我真的很远好于预期的事实结果) 将在法庭上不可逾越的挑战. 因为这是真正的驱动器的任何和解金额的部分, and thus the attorney's fees, 我的卓越, 祝福的恢复使得追求急诊室医生的违规行为,疏忽不可行. 如果我没有推到恢复, I could have gotten a nice settlement... I'll take my recovery anytime!

So the summary is that the laws in Ohio say that what I've been through, 并通过我的余生, 有等于无. 我们的法律制度是这样的,只有有利可图的情况下被追. 而我们的医疗制度不育医生, 护士, 和第一反应充分,也不让他们更新. 曾在急诊室医生意识到膀胱潴留而不仅仅是尿失禁是一个指标, 我们本来是金色的. 对于保留的信息是广泛使用在互联网上,并在医学期刊.

打折正确诊断的基础上, 1 症状是不是我想要的医生. 我觉得正义已经失去了在这一个. 然而, 我在和平,这是我与这个职位 - 我的博客标题改变,但仍有约马尾症候群与我.


博客标题改变,但仍有约马尾症候群 & 我

have changed the title of my blog. Why? Not out of boredom or just liking change, much has happened since my last post. I'll soon post about it, but for now we can say that the Lord has changed my view of what has happened to me... and His immediate purposes behind it.

My faith has seen me through this "Battle" 与 马尾综合征 (国际消费电子展) thus far, but I had no idea where my faith journey was heading. 是的, I wondered why this had happened, what God wanted me to learn and how I should view it. We all know that bad things happen to good people and good things happen to bad people. We always want to know why and often the answer we get is that we may never know why in this lifetime so we just have to live with it. I've heard a lot over the years about people with terrible injuries and diseases "fighting" 或 "battling" those things which seek to either ruin or take their life. Friends and relatives have been touched by, and some lost to, injuries or disease. Now it is my turn.

What I came to realize is that I had stopped growing spiritually and I was barely being effective in God's Kingdom. God wanted so much more from me but I had succumbed to "The Rat Race" and devoted myself to my work. Don't get me wrong, work is important, but so much more had suffered. My relationship with my wife, my time and service to God and the joy was gone from my life. Through this time of a changed life, where the daily routine of getting up and going to work is a draining physical challenge for me, I've seen myself as battling CES as though my faith, grit and determination were being tested. While they were being tested, that wasn't all. My focus had been on recovering far more than the doctors and physical therapists ever thought I could, further than the medical research said I could. I was going to win my "Battle". I didn't, and don't, hold out the idea of a complete recovery but my goal has been to be able to walk without assistance again - a lofty goal for someone with CES.

It was my attitude that needed changing. I saw this as a challenge where my faith would see me through and coming out the other side of this I would give the credit to God. I would be a faithful soldier in His service. Nothing wrong with that, but... God wanted me. All of me. He has wanted all of me for a long time. I thought I had given myself to Him fully many years ago. He has used me in so many ways everywhere I've lived. But as I said, I had slowly slipped back in to taking His blessings and running with it for my own purposes without even considering His. My wife tried to help me see it, but I was too focused on my goal - which had been so out of reach and now, because of God's blessing, was within my grasp. My attitude had slowly changed and was no longer good. God's smackdown on me physically also affected me emotionally, mentally and spiritually as well. 终于, everything was stripped away but the spiritual. I found that I had taken myself back from God and He was calling me to give myself completely to Him. Only this time, I understand there is much more depth in this commitment than I ever thought possible before.

In the Ohio derecho storms of June 29, 2012, we lost an old Ash tree that was 85 feet in length. Two men gave us a really good quote on cutting up the tree, removing the stump, and hauling it all away. They figured they could do it in 2 days, 6 hours a day . The stump was incredibly stubborn. Once they started on it, they found it had thick roots running out in all directions for many, many feet. It was too thick for their saws. They chopped at it with axes and worked 3 days from morning till dark. They even had another person come help. And still the stump remained. Finally they rented a stump grinder and did their best. That stump beat them badly for days. 到底, they accomplished what we needed leaving a small mound where the tree had been, 然而, there are still roots under that mound. And they had spent over 40 hours on the project. Their quote earned them less than $6 per hour.

That's how it is when I first gave myself "fully" to God. I saw what looked like full commitment and made that commitment. Over time, there was more and more revealed but I had my goals and dreams too and there was no time, no room, for truly giving myself to God as fully as He wanted. In time, I took back what I had given Him. Suddenly, this year, God changed all of that. Stricken with an injury that would change the rest of my life, taking away many of the things I wanted to do and accomplish, I now had time for Him. I've learned that He wants all of me, and I've made that commitment to Him. 现在, whatever recovery I have is fine with me. Of course being who I am, I will still be pushing for the best results possible. As with many whom God used in the past, He has place His mark of ownership on me - my CES. It is a reminder of whose I am, whose strength I depend on, and who has complete control of my life. We are not to give God a little, or even a large, part in our lives. He wants our whole life to be a part of His. He wants to live out His life through us. That's what the Bible means when Paul wrote in the 8th Chapter of Romans that we who believe are being shaped and molded by God to be just like Jesus. Not just our character, but character drives motivation, and out of motivation comes actions. God uses the events in our lives to transform us (Romans 12), and He transforms us into people who think, act, speak, and love just like Jesus. Why? So He can reach people who don't know, or those who don't care about His love.

No wonder so many in America today don't want anything to do with Christianity or church - look at how we Christians live! That isn't God's plan. Time for me to get with the plan. And I no longer fight CES, but it is a mark of ownership on me and of my commitment to God. So it is now "我的生活马尾综合征" and thus the new name for my blog.