Update – 18 Duela hilabete… My Journey with Cauda Equina Syndrome Began

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18 Hilabete Duela ...

Feb On 11, 2013, Ez nuen inoiz entzun Cauda zaldi sindromea (CES). That changed the next day. This very day, 18 Duela hilabete, I awoke with no feeling below my waist. Something very wrong was going on with my body! I didn’t know it then, baina cauda equina sindromea izeneko bidaia hasi nintzen.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, batez ere, hartu duten 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

Neurokirurgialariak eta beste mediku askok diotenez, nerbio birsorkuntza bakarrik gertatzen da 12 hilabete, beste batzuek diotenez, berriz, 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 hilabete. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

Niretzat, geroztik hilabeteetan nire 1 urteko urteurrena izan dira erregresio batzuk txikiak dituzten erronka - baina, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, hau da, normalean inguruan 1 ordu 10 minutu. The last 10 - 15 unitatean "elektro-shock" sentimendua nuke minutu beraz, gorputzeko beste toki batzuetako familiar lehenago nire berreskuratzeko.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (Fly planoan, kasu honetan,, gidatzeko autoa - ziurtatu ez duzu norbait edo zerbait sartu exekutatu), Nabigatu (Ez zaitez galdu eta autoa ziurtatu ez duzula txanda bat galtzen du arreta, berriz, galdu esan nahi du), Komunikatu (Airean, litzaidake laguntza eskuratzeko lurrean kontrolagailu dugu, autoan, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾ hazbeteko nire oinez inguruan band, buruzko ½ oinak, beheko gainetik inch hasita (nire behatzak salbuespentzen izan dute gisa denbora pixka bat sentitzen.)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 oinak, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, poliki-poliki, baina ziur aski, Indartu eta hobetzen jarraituko dut.

I still cannot stand for more than 20 - 30 segundo, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (Pun ez burutu nahi.) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, Honekin 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, depresioa, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and hemen lanean!

 

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