更新 – 18 几个月前… 我的旅程马尾综合征开始

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18 几个月前...

于二月 11, 2013, 我从来没有听说过 马尾综合征 (国际消费电子展). That changed the next day. This very day, 18 个月前, I awoke with no feeling below my waist. Something very wrong was going on with my body! 我不知道它,然后, 但我开始叫马尾症候群之旅.

On this blog I’ve chronicled the first year of that journey. I have been very blessed in my recovery, 特别是考虑到它了 14 days to have my decompression surgery and not having ANY feeling below my waist. I won’t cover the details of what has been written before, but this update gives a quick look at my progress since the one year mark.

许多神经外科医生和其他医生说, 神经再生 只发生 12 个月, 也有人说 12 - 18 months is the time in which what healing will happen does happen. My physical therapist told me 18 - 24 个月. I don’t know if this is “frontline” info or whether she was just trying to motivate me further than I already was.

对我来说,, 自从几个月我 1 周年庆已与一些小的回归有挑战性 - 但, I am still seeing spurts of significant regeneration taking place. I went through a period of frequent nerve pain in the top of my right foot. This seemed to be aggravated by my evening commute, 这通常是围绕 1 小时 10 分钟. The last 10 - 15 驱动我会得到的“电击”的感觉分钟,从身体的其它部位更早如此熟悉,我恢复.

These were so painful I almost became a dangerous driver. I fell back on my flight training skills – ABC – Aviate (驾驶飞机, 在这种情况下, 开车 - 确保你不会碰到某人或某事), 导航 (不要迷路和汽车就意味着要确保你不要错过了转弯而分心), 沟通 (在空气中, 我们会从地面上的控制器得到帮助, 在车, this just means Comfort – try to find a position where the pain subsides. Those pains left me about a month ago. As they left, they presented me with a going away present of more feeling in my feet. I now only have impaired feeling in a ½ - ¾英寸左右我的脚带, 开始约半英寸以上的脚的底部 (我的脚趾例外,因为它们有感觉一段时间。)

My legs have feeling back except for the backs of the legs and inner portion of the buttocks, but only the lower ½ of that and the corresponding front area. That too is a recent improvement. I am now able to walk without assistive device for over 100 脚, but my legs and hips are completely exhausted by the effort and are in moderate pain by the end. But I am improving, 缓慢而稳步地, 我继续加强和改善.

I still cannot stand for more than 20 - 30 秒, nor sit for more than an hour without problems. This limits my ability to travel and is sorely missed (没有双关语意。) I keep pushing to improve. If I don’t, I won’t know how much I can improve. So I work full time, 与 2 hours round trip commute time. And I walk whenever I can, to the point of not being able to any more. By the time I get home I am exhausted. I still have not had to have surgery on the torn tendon in my right foot.

Despite that, God has allowed me to lead small groups and classes at church. I am truly blessed. None of us who are afflicted with CES want to stay as we are. We learn to deal with the injury and we fight to overcome as much of its affects as possible. It is easy to look around, seeing people who do not appreciate the simple act of being able to walk. Or run. Or stand for a few minutes. Or travel 6 hours to visit with old friends or many other things. Looking at these will surely lead to defeat, 抑郁症, and a downward spiral. Look at what we can accomplish instead! Life is different, not over. It isn’t fair, but then we’ve known that for a long time. I choose to let my disability strengthen me, rather than define me. I challenge you to choose your goal and 为它工作!

 

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